Memej99-SickleCellLifeOfMemej

Exciting news! Uriel E. Owens #SickleCell Disease Association of the Midwest @sicklecellmw has been chosen for @NFL #MyCauseMyCleats by @Colts Adetomiwa Abawore #95 @tomiwabawore to spotlight our cause, #sicklecellawareness. Thank You, we are honored!❤️ donate.rayzeapp.com/orgs/toXZV9Svr…

@RobynCohenMD Now I just gotta find the time to keep up with my OWN Bluesky account & be active!!😂🤷🏾‍♀️ I’m trying! 🤗

We’re moving on from x, but we’re still on IG, LinkedIn, & FB. Please follow us on those platforms as we continue our work to ensure healthcare for All. Stay tuned for more exciting updates as we move forward & do even more! Thanks for your support!❤️ diversehealthhub.org

🎉 Happy Birthday to our Matriarch, Virginia Kirkwood!🎂She’s been a fearless advocate, loving caregiver, & the ♥️of Sickle Cell Midwest since it was est in 1981. We honor her dedication, wisdom & unwavering love. Wishing her a day as incredible as she is! 🎂🎈 #HappyBirthday

Hey y’all. I’m still around, just Extra busy & scattered here to there! Obviously Twitter is where I started but we know it’s different now. I’m on BSky as well, still working on posting as much as I used to post here. Also on TikTok (thesicklecelllifeofmemej), IG, FB. Sending ❤️

@LelenaPeacock Sending prayers, positivity & support.🙏🏿

I could use some prayers. I'm seeing a new doctor today. 🙏 I'm ridiculously nervous, which is frustrating. 🤣 Hope everyone is having a great day! 😘😘😘

Shining a Light on Sickle Cell This #RareDiseaseDay2025.SCD is considered a rare disease in other parts of the world, but it's common in Africa, though its impact is far-reaching. We stand with warriors, advocates, & allies in the fight for awareness, education, & better care.

@DanLairdMD Sending prayers for your Mom Dr. Laird.🙏🏿🙏🏿

Friends, as my dear mother, Lynda Laird, approaches the end of her life, surrounded by her loving family and friends, I ask for your prayers. We are asking for a painless and good death. May His holy will be done.

✊🏾 This #BlackHistoryMonth, we honor Victoria Gray, a trailblazer in #SickleCell research! 🧬 As the first SCD patient to undergo CRISPR gene-editing therapy, she made history & paved the way for groundbreaking treatments. Her courage brings hope for a cure! #SickleCellMidwest

Join us in celebrating #NationalBloodDonorMonth this January!🩸Did you know a single blood donation can save up to THREE lives? Be a hero today and give the gift of life. ♥️ #DonateBloodSaveLives #SickleCellMidwest #SickleCell #SickleCellAwareness #NBDM

Honor Dr. King with action this #MLKDay—a day on, not a day off! Many with #SickleCell rely on #blooddonations to survive. January is #NationalBloodDonorMonth, so give back and make it a #DayOfService: Schedule your donation today! savealifenow.org #MLKDayOfService #UEOScd

🎉We at UEO #SickleCellMidwest @sicklecellmw are thrilled to wish you a fantastic New Year! May 2025 bring you a healthier, happier year filled with incredible chances for growth & boundless Hope for all our #SickleCellWarriors. We stand by you & support you every step of the way

🎉Happy New Year from the Uriel E. Owens Sickle Cell Disease Association of the Midwest!🎉 Here’s to 2025: health, happiness, & hope. Together, we’ll raise awareness & support those living with #sicklecell. Let’s thrive! #SickleCellMidwest #NewYear2025 #HopeAndHealing

Until Next Time May you love and be loved. May butterflies greet you. May you sparkle like moissanite! May your burdens be few. May your needs be met. May joy, kindness, and peace find you. See you soon! #SpoonieChat x.com/DawnMGibson/st…

@DawnMGibson I love that! And you are AMAZING at all you do! It’s always others who see the MORE we could be & are.❤️ Friends have told me I’m a good writer & I’m like.. WHO? ME??😂 #SpoonieChat

I've been over here since 2011. A friend had to talk me into it. He saw something in me that I couldn't. He knew what I could do. And I became the writer, activist, and person you know right here. #SpoonieChat

@DawnMGibson A4: I think I joined after joining @national_pain?🤔? But I stayed bc of the Goddess Queen Host & the #chronicpain community here. I still think it’s SO beautiful for fellow #CPPs to share their thoughts & I ❤️ learning about other disabilities & #DisCo accounts! #SpoonieChat

Q4: Thinking back to the past, what drew you to #SpoonieChat? And what made you stay?

Spoonie Fam, Please join us 12/11/2024, @ 8PM ET/ 5PM PT to check in and talk about the 2025 #SpoonieChat tranistion. #DisCo #Disability x.com/DawnMGibson/st…

@DawnMGibson A4. #spooniechat I came to Twitter for the writing community and stumbled upon spoonichat. It was so great for me to find the chronic illness disability community because I always felt really alone. Hearing others stories let me know I wasn't alone and had similar stories!

A6: I used to be extremly online, but feel ready for a shift. #SpoonieChat

A3: because of food allergies & MCAS combined with Hanukkah, we 1) had to create several safe latkes recipes and 2) had to learn to make candy coins from scratch. #SpoonieChat