MilevaRepasky
26 posts
MilevaRepasky
@MilevaRepasky
Army Wife, mother to 3 amazing blessings, masters degree holder in psychology and fierce volunteer and advocate for Castleman Disease.
Pennsylvania, USA Katılım Eylül 2015
330 Takip Edilen68 Takipçiler
MilevaRepasky retweetledi
We drove from Pittsburgh to NYC for my sister’s birthday to see @RealHughJackman on Broadway tonight and all we got was this cup. #wherehughat #hopehughreokay #ryanreynoldssavetheday #MaximumEffort @MtnCav @MilevaRepasky
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MilevaRepasky retweetledi
MilevaRepasky retweetledi
MilevaRepasky retweetledi
NEW session!
Patient advocacy: a collaborative approach
at the #RareShowcase22
with Mileva Repasky from @CureCastleman!
Register for FREE now to catch her presentation!
findacure.org.uk/rare-disease-s…
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@lukebrosen Sending you guys lots of love and prayers!! ❤️❤️❤️
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It was hard to say goodnight tonight. One of us stays at the hospital with our gal, and one of us says goodnight and goes home. I said goodnight and went home to her big brother, all of us hoping she finds some relief from this cruel disease. It was hard to say goodnight tonight.
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MilevaRepasky retweetledi
''This role allows me to advocate the needs of our patients while also facilitating the needs of the organisation allowing our patients to have a voice in all that we do.'' Mileva Repasky of @CureCastleman bit.ly/PEOMilevaRepas…
#CastlemanDisease #PatientEngagement #PEOSeries
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MilevaRepasky retweetledi
The @CureCastleman is proud to be working with incredibly strong & #gritty women scientists, collaborators, advocates, and leaders. These women have contributed to the advancements of the CDCN’s mission of helping to ensure that all Castleman disease patients live full lives.
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MilevaRepasky retweetledi
Everyone wants effective #COVID19 treatments ASAP, but we have to be disciplined about evaluating the data in this incredibly complex disease. This is an interesting result, but it isn’t the final answer on whether statins are effective for COVID19. #ChasingMyCure #ChasingCOVID
Penn Medicine@PennMedicine
New data suggests #statins as a potentially helpful class of drugs to fight #COVID19. Drs. Daniel Rader and @DavidFajgenbaum propose a framework for a systematic approach to drug repurposing for the #coronavirus. spr.ly/6011GlywZ
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So proud to be apart of this @CureCastleman team and be actively extracting data on all off-label drugs #Repurposed to treat #COVID19.
David Fajgenbaum, MD@DavidFajgenbaum
My colleagues at @CureCastleman and I are in the process of extracting and analyzing data on all off-label drugs #repurposed to treat #COVID19 from 2500+ articles. More info: cdcn.org/drug-repurposi…
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MilevaRepasky retweetledi
MilevaRepasky retweetledi
How do you manage and maintain your #raredisease network? Our panelists are here to help. #DataDIY @cureangelman @CureCRB1 @CureCastleman
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It was such an honor to sit on the panel for @GlobalGenes #DataDIY this last week. Surrounded by so many people fighting to make a difference was inspiring!
Global Genes@GlobalGenes
Thank you to this wonderful panel for sharing their insights on maintaining your network. #DataDIY #RareDisease @CureCRB1 @CureCastleman @cureangelman
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So easy to stand beside @DavidFajgenbaum to fight for a cure for my daughter, Dr. David and so many others! #RareAsOne #curecastleman
Chan Zuckerberg Initiative@ChanZuckerberg
“I’m going to dedicate the rest of my life to trying to cure this disease.” @davidfajgenbaum, Castleman disease patient, and Co-Founder & Executive Director of @CureCastleman #RareAsOne #ChasingMyCure
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Yankee Candle® Fundraising - My Online Sales David is fundraising for his school choir!! Use seller if David54 and school code 990043078 yankeecandlefundraising.com/FFentry.htm?pu…
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'It’s our moments of struggle that define us. How we handle them is what matters.' - President Allan Trumbull (Angel Has Fallen) moviequotesandmore.com/angel-has-fall… via @MovieQuotesMore
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#ChasingMyCure is available @HarvardBooks. If you can’t come to Harvard to get your copy (ha ha) you can purchase it anywhere books are sold, or from Amazon!! 💙💙
Learn more: chasingmycure.com
Amazon: bit.ly/chasingmycure
*Now available everywhere*
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So incredibly proud of @DavidFajgenbaum for his amazing dedication to #castlemandisease and for always inspiring me to turn my hope into action!! #ChasingMyCure #thinkitdoit
David Fajgenbaum, MD@DavidFajgenbaum
What an amazing experience it was to be interviewed by @Christi_Paul on @HLNTV today! I am so excited that my story of nearly dying is being shared with the world! #ChasingMyCure is out in bookstores now and also available here amazon.com/dp/1524799610 #thinkitdoit #hopeintoaction
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What an amazing honor @DavidFajgenbaum!! This extraordinary memoir about his battle with #castlemandisease is inspiring!! Can’t wait to see if it advances!! #chasingmycure
CDCN@CureCastleman
@NextBigIdeaClub just named #ChasingMyCure one of the "6 Best Nonfiction Books of Fall 2019" What an honor to have our story named this by such inspiring authors @Gladwell @AdamMGrant @susancain @DanielPink STAY TUNED to find out if it advances to be picked for their next season
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In case you can't tell, we are SUPER excited for #ChasingMyCure to be released this Tuesday, September 10th!! So proud of my friend @DavidFajgenbaum!! Pre-order your copy and learn more about this incredible story at chasingmycure.com/books
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