MND Elite

So angry @sajidjavid @RishiSunak @BorisJohnson You have taken Hope away! Funding over a few years will vastly outweigh any long term needs and will give suffers and families their lives back and hope

Thanks, Mick @onein300 @AberdareNic @ChrisJohnsonQPM @MummywithM & many other @MNDPatients aren't giving up either. @sajidjavid @KwasiKwarteng are now aware of @mndresearch underfunding & targeting issue. They've acknowledged it & are hopefully seeking solutions. #United2EndMND

As politicians spend the week pontificating about saving the world, closer to home MND remains the ‘forgotten disease’ as ⁦@Rob7Burrow⁩ tells the Sunday Express - he’s ‘devastated’ ⁦@RishiSunak⁩ and ⁦@BorisJohnson⁩ didn’t help in the budget..but he won’t give up

@MndElite @MndNavigate @mndassoc @ArthurRankHouse @CharlotteHawkns @Rob7Burrow @DoddieWeir5 In preparation for the might challenge in 2 weeks. This was my first time in the chair and racked up 2 miles @MndQuirk

We've just hit £2⃣9⃣,0⃣0⃣0⃣ 🤩 @MNDoddie5 Could we reach £30k by the time we finish?! 😍 #DoingItForDad #TacklingMND justgiving.com/fundraising/mu…

7 good mates in good health - 1 not in such good health that's me MND = 8. 2 in each team - will complete a half marathon between them = 6.5 miles each - not by walking - not by running - but in wheelchairs - this October raising funds for @ArthurRankHouse @CambsMNDBranch

Great to be involved in the @mndassoc Showcase today - I interviewed @NickGoldup1 about the care & support MND patients are being given, plus how technology is helping. Just watching @theJeremyVine interview @DrBrianDickie about the latest research. Fantastic work all 👏👏💙🧡

Well isn't this just incredible! 🤩 £1020 to @MNDoddie5 😍 Massive thanks to everyone who bought a bottle and an even bigger thanks to the absolutely amazing @ElecSpiritCo for this incredibly generous offer 🥰 Safe to say I'll be raising a glass in celebration tonight! 🍸

Thank you for sharing your story so eloquently and positively Lee, what an inspiring and moving read @MdnNavigate @MndElite Please share this positive message of hope and ambition and please support Lee's fundraising

Lee was diagnosed with bulbar onset MND, which affects speech first, in Dec 2019. He's still loving life and tells us his story of determination & hope. To watch Lee's inspirational story & support him as he fundraises for ARHC visit>arhc.org.uk/supporting-you… @MndNavigate @MndElite