Northwest PANDAS/PANS Network (NWPPN)

1.8K posts

Northwest PANDAS/PANS Network (NWPPN) banner
Northwest PANDAS/PANS Network (NWPPN)

Northwest PANDAS/PANS Network (NWPPN)

@NNwppn

Serving Pacific Northwest children diagnosed with PANDAS/PANS/AE and their families.

Katılım Mart 2019
518 Takip Edilen431 Takipçiler
Northwest PANDAS/PANS Network (NWPPN)
@WA_CCF We could use your support in getting House Bill 2196 for Washington children with PANDAS/PANS life saving care if Chair Bronoske would schedule our bill for an Executive Session. Can you help us stand up for these children who are suffering?
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Northwest PANDAS/PANS Network (NWPPN)
CALL TO ACTION ‼️‼️‼️‼️‼️‼️ Three 3️⃣ things we need you to do NOW in SUPPORT of Washington’s House Bill 2196 a #1 Submit a PRO position note 📝 #2 Submit a written testimony/statement #3 Join us in-person (WEAR BLUE 💙🧢💙) or tune in virtually next Friday for our hearing
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Northwest PANDAS/PANS Network (NWPPN)
Announcing 📢 the official filing of our PANDAS/PANS bill for the 2025-2026 legislative session 🥁 House Bill 2196, expanding access to PANDAS/PANS treatment that Washington provides for those on Medicaid. Thanks to our bill champions @TarraSimmons5 @SamLow39 & Rep Leavitt
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Northwest PANDAS/PANS Network (NWPPN)
This GIVING TUESDAY 🧺, consider SUPPORTING YOUR LOCAL PANDAS/PANS NONPROFIT serving Oregon, Washington, Idaho and Alaska ☝️ You donations are TAX DEDUCTIBLE and go towards our grassroots, boots on the ground advocacy, awareness and education efforts here in your local region.
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Northwest PANDAS/PANS Network (NWPPN)
Would LOVE if our local news outlets would build on this story and how these disorders are impacting our Northwest communities as well as investigate how our Children’s Hospitals are allowed to get away with refusing to care for this population 🕵️
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Northwest PANDAS/PANS Network (NWPPN)
PANDAS publicity on a national stage thanks to @EmilySimpson_OC & @BravoTVRHOC 🎥 📺 PANDAS and PANS are REAL DIAGNOSES that can impact any family ☝️ There are STANDARDS OF CARE for treatment that include antibiotics, anti inflammatories, steroids, IVIG and more ☝️
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