UK National Haemoglobinopathy Panel

Hello Twitterverse... This is our new home (no longer @PanelNational). Still the same NHP. Still championing the cause of haemoglobinopathy care. Let's talk, work and make things better! #NHP #NHS #NationalHaemoglobinopathyPanel #SickleCellDisease #Thallasaemia #RareAnaemias

It’s International Thalassaemia Day! We value the amazing individuals that live with this condition every day & the wonderful healthcare workers/specialists supporting them. As always, think; ‘How can I make a difference?’ #internationalthalassaemiaday #ITD2026 #Hiddennomore

It's #WorldThalassaemiaDay Thalassaemia is a blood disorder causing severe anaemia. Most people need regular transfusions from closely ethnicity-matched donors. Your donation could save a life 🩸

It's only 1 week to go until #COMy2026 – the 12th World Congress on Controversies in #MultipleMyeloma! 🇫🇷 From 14-17 May in Paris, France, we will be interviewing top experts to gain insights into the latest in #Myeloma. Stay tuned on VJHemOnc.com! 👀 #MMSM #HemOnc @COMyCongress

Happy #ITD2026 to all our patients, families and friends! We are promoting diagnosis, awareness and understanding today across our network #hiddennomore #VisabilityVoiceValue

Today is International Thalassaemia Day. How are you raising awareness today? We have lots of activities happening within our network. Photos to follow. youtu.be/pdS1eC-KkrY?si…

For every patient. For every family. For every caregiver, healthcare professional, and advocate. This #ITD2026, we raise our voices in hope, solidarity, and purpose — making the unseen visible and the unheard heard. Together, we are #HiddenNoMore. #8May #VisibilityVoiceValue

Congratulations to @SubarnaChak for the very well deserved award for research and academia @BAPIOUK national conference @NatHaemPanel @Shivan_TT @gmenon1423 @redcellemma @BAPIOUK

Amazing weekend with @MFTnhs Haematology leading globally with our real world experience in treating #TDT at international masterclass. An achievement for the service. Sickle cell to follow.@FarhanAliAnjum1 @MFT_MRI @NatHaemPanel @teamukts @thalassaemiaTIF

Here we go! 😃 ☕️👩🏽‍🔬👨‍🔬📈📊📑🧐☕️🍛🍱🩸🧬🔭🤝☕️🫂🥱☕️💪🏼🤓⚡️ #ASCAT2025 #ascatconference

🎉Don't forget to join us for Milestones: Life Journeys with Sickle Cell this Saturday – a powerful event celebrating the journeys of those living with sickle cell into older adulthood 🩸💪. Register now: …sagingwithsicklecell.eventbrite.co.uk #SickleCell #Milestones #PatientVoices

If you’re thinking more about dating and relationships, or love life and family planning, we’ve got you covered with two podcast episodes on these topics. Check them out on our website or YouTube Channel or wherever you listen. buff.ly/LS8Xv7J

To the public & all Sickle Cell Disorder (SCD) stakeholders (patients, family, friends, carers, clinical staff); please sign this Parliamentary petition to list SCD drugs for NHS prescription charge exemption. Reduce the health inequalities. Change lives. petition.parliament.uk/petitions/7308…

And here are the quiz answers…

Celebrating World Sickle Cell Day at UCLH with the Red Cell Network and screenings of the docufilm 'Sickle!' #WorldSickleCellDay #redcellnetwork #NHS @uclh

World Sickle cell day …..time to raise awareness and tell it loud

Our paediatric patients Tell It Loud with some art work on World Sickle Cell Day

It's #WorldSickleCellDay This year’s theme ‘Tell it Loud’ reminds us to raise vital awareness. Many #SickleCellWarriors depend on regular blood transfusions so why not do something special and #GiveBlood. A good deed plus you get free tea & biscuits! Info: blood.co.uk

There’s still time to show your knowledge levels before we post the answers later…

#WorldSickleCellDay thank you Paediatric Sickle Cell Team @RWT_NHS for raising awareness #ActFasttosavealife #EverySecondCounts #SickleCellAwareness #DoYouKnowYourStatus free National Standards @SickleCellUK #iamproud to be the National Paediatric Adviser for Sickle Cell Disease