UK National Haemoglobinopathy Panel

Hello Twitterverse... This is our new home (no longer @PanelNational). Still the same NHP. Still championing the cause of haemoglobinopathy care. Let's talk, work and make things better! #NHP #NHS #NationalHaemoglobinopathyPanel #SickleCellDisease #Thallasaemia #RareAnaemias

Congratulations to @SubarnaChak for the very well deserved award for research and academia @BAPIOUK national conference @NatHaemPanel @Shivan_TT @gmenon1423 @redcellemma @BAPIOUK

Amazing weekend with @MFTnhs Haematology leading globally with our real world experience in treating #TDT at international masterclass. An achievement for the service. Sickle cell to follow.@FarhanAliAnjum1 @MFT_MRI @NatHaemPanel @teamukts @thalassaemiaTIF

Here we go! 😃 ☕️👩🏽‍🔬👨‍🔬📈📊📑🧐☕️🍛🍱🩸🧬🔭🤝☕️🫂🥱☕️💪🏼🤓⚡️ #ASCAT2025 #ascatconference

🎉Don't forget to join us for Milestones: Life Journeys with Sickle Cell this Saturday – a powerful event celebrating the journeys of those living with sickle cell into older adulthood 🩸💪. Register now: …sagingwithsicklecell.eventbrite.co.uk #SickleCell #Milestones #PatientVoices

If you’re thinking more about dating and relationships, or love life and family planning, we’ve got you covered with two podcast episodes on these topics. Check them out on our website or YouTube Channel or wherever you listen. buff.ly/LS8Xv7J

To the public & all Sickle Cell Disorder (SCD) stakeholders (patients, family, friends, carers, clinical staff); please sign this Parliamentary petition to list SCD drugs for NHS prescription charge exemption. Reduce the health inequalities. Change lives. petition.parliament.uk/petitions/7308…

And here are the quiz answers…

Celebrating World Sickle Cell Day at UCLH with the Red Cell Network and screenings of the docufilm 'Sickle!' #WorldSickleCellDay #redcellnetwork #NHS @uclh

World Sickle cell day …..time to raise awareness and tell it loud

Our paediatric patients Tell It Loud with some art work on World Sickle Cell Day

It's #WorldSickleCellDay This year’s theme ‘Tell it Loud’ reminds us to raise vital awareness. Many #SickleCellWarriors depend on regular blood transfusions so why not do something special and #GiveBlood. A good deed plus you get free tea & biscuits! Info: blood.co.uk

There’s still time to show your knowledge levels before we post the answers later…

#WorldSickleCellDay thank you Paediatric Sickle Cell Team @RWT_NHS for raising awareness #ActFasttosavealife #EverySecondCounts #SickleCellAwareness #DoYouKnowYourStatus free National Standards @SickleCellUK #iamproud to be the National Paediatric Adviser for Sickle Cell Disease

🩸 Today is #WorldSickleCellDay! Millions live with #SCD, facing pain, stigma & barriers to care. No child should die young. Adults deserve dignity. Governments must prioritise #SickleCell and #UniversalAccess to Care. Let’s #ShineTheLightOnSickleCell! #WSCD25 #TellItLoud

Test your (plus family and friends’) SCD knowledge and drop your answers below. Not in the UK? Share the facts of your home country. No cheating (google searches)! 🤓 #worldsicklecellday2025 #scd2025 #sicklecelldisorder #sicklecelldisease #nationalhaemoglobinopathypanel #NHP

It’s World Sickle Cell Disorder Day! How has the year to date been for you as a patient, family member, guardian, carer, doctor, nurse, psychologist in this arena? What can we do better and hope for, going forward? #worldsicklecellday #scd2025

We've got 3 places left for the #RoyalParksHalf on Sun 12 Oct! Join our staff, patients, & supporters for this brilliant half marathon through the beautiful Royal Parks! Contact: uclh.hcc@nhs.net / 020 3447 9526 #loveHCC #HCCFamily #TeamHaem @RoyalParksHalf #haematology @uclh

As we reflect on #NationalBloodWeek, we want to say thank you to everyone who got involved, whether you gave blood, spread the word, shared your story, or simply took a moment to learn more. ❤️ Your support helps make sure blood is there when people need it most.

Don't forget to join us at Hammersmith Hospital this week on Thursday for #WorldSickleCellDay!🩸Sickle Cell Alliance & WLHCC will be hosting our “Transforming Care & Strengthening Communities” event. Learn, connect & support those affected❤️. #SickleCell #TellItLoud

The UK govt & @NHSEngland are investing £9M to expand Spectra Optia tech — enabling faster, more accessible, and life-saving care for #SickleCell. 🔹 More centres 🔹 Out-of-hours services 🔹 Fewer hospital stays 📍 17K people in England live with #SCD theguardian.com/society/2025/j…