Neurodevelopmental Conditions Research@WMS

Today is Rare Disease Day 💙 Raising awareness and supporting research that aims to improve understanding and outcomes for people affected by rare conditions. #RareDiseaseDay #SupportRare #RareButStrong #HealthEquity #GeneticDisorders #RareDiseaseAwareness

@Drhayleytrower @warwickmed @uniofwarwick @CerebraNetwork Please share🙏 @kayladsmith05 @BissellStacey @DrKrellis @DanSutherland99 @MarieDunnion @PretermWarwick @NaomiLookInside @ChildGrowthUK @CerebraCharity @JessicaMingins @Catherine__L @ckrupinski @georgietedwards @laurenamyjenner @Laureneshelley @BethLJones93

Participate in the Checklist Project. A tool for parents to understand behaviours that challenge. For parents of children aged 4-18 with a moderate-profound learning disability. #disabilityresearch #geneticsyndromes @warwickmed @uniofwarwick @NeuroRes_WMS @CerebraNetwork

Participate in the Checklist Project. A tool for parents to understand behaviours that challenge. For parents of children aged 4-18 with a moderate-profound learning disability. #disabilityresearch #geneticsyndromes @warwickmed @uniofwarwick @drhayleytrower @CerebraNetwork

If you care for someone with a #learningdisability or #autism, please consider joining a session below to share your views on medication prescribed in primary care. This will help inform #research being led by our colleagues @KeeleUniversity.

Looking forward to giving a talk about how the Behaviour Checklist can support behaviours that challenge at the Child Growth Foundation conference for families and carers. #learningdisability #growthconditions #sotossyndrome #intellectualdisability #warwickmedschool

My first funding application as a PI was successful for the project Behaviours of Concern at Special Schools: Sharing Experiences. The Collaboration and Co-production Fund exists to build relationships between researchers and the public. @warwickmed @NeuroRes_WMS @CerebraNetwork

Proud of our PhD student, Nicky Thomas, whose systematic review exploring the role of general practice from perspectives of parents of children with intellectual disability is published today doi.org/10.3399/BJGPO.…… @HayleyRCrawford @NeuroRes_WMS @H_Atherton @kayladsmith05

bjgpopen.org/content/early/… Our PhD student Nicky Thomas is exploring the role of general practice for parents of children with intellectual disability. Recently published systematic review findings on this important topic can be viewed here:

Excellent presentation by Nicky on supporting the health and well-being of parents of children with intellectual disabilities @NeuroRes_WMS @WMS_RD

Wonderful talk from our PhD student Nicky on exploring the use of general practice for the health concerns of parents who care for a child with an intellectual disability #WMSPGR

Great to see our PhD student @kayladsmith05 presenting her poster today at the #WMSPGR on social anxiety in fragile X today! ☺️

Nicky Thomas sharing some important work on using general practice for mental and physical health concerns for parents who care for for children with intellectual disability #NDAS23

@Drhayleytrower explaining the important of having a clinical behaviour checklist for children with intellectual disability and complex needs #NDAS2023

We are looking forward to listening to all the talks today at #NDAS2023 starting the morning listening to @kayladsmith05 anxiety in #fragilexsyndrome

We had a fascinating day of talks today at our Cerebra Network workshop: Anxiety in Rare Genetic Syndromes organised by @HayleyRCrawford . Thanks to everyone who presented @kayladsmith05 @JoannaFMoss @Waite_Aston @JessicaMingins #geneticsyndromes #anxiety #fragilex

👉We are recruiting for a Post Graduate Research Coordinator - Join our lovely PGR Team! Check out the details below - deadline 26 March #recruitment #medschool ow.ly/jBuA50NmVQe

Research position working on an important clinical trial - applications close in 1 week. @CEDAR_Warwick @ProfRHastings @p_langdon @stat_PT @Matt_Buttery

If you're a healthcare professional & would like to learn more about intellectual disability in healthcare practice, check out these videos, developed by @HayleyRCrawford and @Drhayleytrower youtube.com/playlist?list=… via @ARC_WM @warwickmed #learningdisability #geneticsyndromes

Developed in consultation with parents, carers, teachers, educational psychologists and SENCOs, we hope that this resource will support educational practitioners working with children and young people with rare genetic syndromes in a range of educational settings.

📢Join our free webinar on 13th March when we launch new teacher resource; Supporting the Complex Needs of Children with Genetic Syndromes in Educational Practice. Link & QR code to register below👇#SEND #SEN #RareDiseases @CerebraNetwork @CerebraCharity @UoL_CEN @ESRCimpact 1/3