NGO SLAP Macedonia retweetledi
Happy International PBC Day!
We're about to kick off the second day of our patient conference in not-so-sunny Edinburgh. Let us know where you're following from!
#PBCDay2024 #ProvidingBetterCare
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NGO SLAP Macedonia
799 posts
NGO SLAP Macedonia
@NgoSlap
Non-profit organization "Save Liver Association of Patients" Macedonia. -Raising awareness for patients suffering from liver diseases and dysfunctions.
Macedonia Katılım Şubat 2016
580 Takip Edilen335 Takipçiler
NGO SLAP Macedonia retweetledi
PBC Foundation and friends in Brussels.
Patients rally against EU ban on autoimmune drug. euronews.com/health/2024/07…
#PBC #SupportForLife
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NGO SLAP Macedonia retweetledi
An interesting day... we have permission to host a @PBCFoundation protest in Brussels re the ridiculous decision to recommend OCA license revoke in #PBC
Anyone want to join us?? Details to follow if you are interested... historic day for PBC patients.
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NGO SLAP Macedonia retweetledi
Good news! The 1st patient for the ASP-PSC study has been recruited 👏 This ground-breaking clinical trial funded by @CR_UK aims to see if the risk of cancer for people with primary sclerosing cholangitis (#PSC) can be reduced ➡️ buff.ly/3x8ucTq #LetsBeatPSC #PSCStudy
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NGO SLAP Macedonia retweetledi
If you or anyone in your followers has PSC, please share the patient survey below. This is phase 1 of an international collaboration between PSC patient groups and our long term goal is to develop a regulatory standard instrument to measure acute/bacterial cholangitis in PSC 🙏
PSC Support@PSCSupportUK
People with #PSC can experience an infection of the bile ducts (called “PSC flare” or “cholangitis attack”). If you're a PSC patient who's had an attack or flare consider filling in this survey, helping us improve care and develop treatments. buff.ly/3Ut2DeQ @PSCPartners
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NGO SLAP Macedonia retweetledi
A great video explaining some of the basics...
CymaBay Therapeutics@CymaBay
On #WorldLiverDay, we recognize the liver's central role in a myriad of vital functions in the body. With chronic liver disease on the rise, education surrounding #LiverHealth is so important. Watch to learn more about #PrimaryBiliaryCholangitis, a rare liver disease.
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NGO SLAP Macedonia retweetledi
🚨 IT'S RARE DISEASE DAY GLOBALLY! 🚨 Join us marking #RareDiseaseDay 2024! Spread awareness, share stories, and support those living with rare diseases. Together, we make a lasting impact! #ShareYourColours
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NGO SLAP Macedonia retweetledi
I absolutely LOVE these. Here's a great one to start the New Year- just one action, just one day at a time...
Action for Happiness@actionhappiness
Start where you are and do what you can. Your actions matter 💖✅🌤️ Join us for #HappierJanuary and get the new year off to a calmer and happier start actionforhappiness.org/happier-january
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NGO SLAP Macedonia retweetledi
It’s International PBC Day!
Please share, along with your PBC stories, to show your support and help raise awareness.
#PBCDay2023 #PBCDay #AskMeAboutPBC #AwarenessDay #PBCCommunity #PBCPeople
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NGO SLAP Macedonia retweetledi
Tomorrow is the big day, PBC Day 2023!
To help raise awareness, we’re asking you, the PBC community, to share your stories and give others a chance to ASK YOU about PBC. For more information on PBC, please visit pbcfoundation.org.uk/what-is-pbc/
#PBCDay2023 #PBCDay #AskMeAboutPBC
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NGO SLAP Macedonia retweetledi
If there are local free screening facilities available, do something good for yourself today - check your HBV and HVC status. #WorldHepаtitisDay
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NGO SLAP Macedonia retweetledi
With one-in-three adults in the Western World affected by Fatty Liver Disease, many people with PBC may be living with Fatty Liver Disease also. Today we work with our partners at LPI and GLI to spread awareness on IND. #NASHDay
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Are you passionate about #patientinvolved healthcare? Want to learn how to involve #patients in the development of #informed #consentforms?
Here is your chance ➡️#register for our new joint course with @ECCRT
📆 12 September
✏️ lnkd.in/eXVvzriS
#PatientsInvolved #Register
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NGO SLAP Macedonia retweetledi
The Foundation is entirely patient-driven- for patients, by patients, with patients. The Summit is designed to bring together the entire patient advocacy community. We look forward to welcoming our advocacy friends to share, learn from and support each other’s work. #PBCSummit
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NGO SLAP Macedonia retweetledi
The countdown continues.
You, the patient, have the answers.
We have a new survey on our #App. We desperately need your voice to guide us. Click here for more information and have your say: ow.ly/qp3550OjzHb
#PBC #YourVoiceMatters #PatientsFirst
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NGO SLAP Macedonia retweetledi
23-29 April is European Immunization Week!
▶️ Why is vaccination so important?
▶️ What diseases can we effectively prevent with vaccination?
▶️ How are we tracking vaccine-preventable diseases?
Follow us through the week.
#EveryDoseCounts #VaccinesWork
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Our final video from walking in wood for #NASHDay #StopNASHNow Big thanks to @GlobalLiver for their support @BibaSlap @LiverPatients @ERN_RARE_LIVER
youtube.com/watch?v=uRCPjJ…
YouTube
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National media are talking about #NASHday so let our activities contiue till development of National register in #Macedonia for #NASH #StopNASHNow @BibaSlap @GlobalLiver @intNASHday
novamakedonija.com.mk/makedonija/mak…
Former Yugoslav Republic of Macedonia 🇲🇰 English
Local government (mayor) was included in our celebration of #NASHday with promises to help us with future activities about #NASH #StopNASHNow @BibaSlap @GlobalLiver @PBCFoundation @ERN_RARE_LIVER
Former Yugoslav Republic of Macedonia 🇲🇰 English
Happy #NASHday 2022, raising awareness for healthy life style #StopNASHNow @BibaSlap @GlobalLiver @ERN_RARE_LIVER
Former Yugoslav Republic of Macedonia 🇲🇰 English