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@NoHealthNoFun

Canary in the coal mine 🐤 rotting with #LongCovid since May 22. Looking for scientific insights and community. #Prevention is the way forward. 😷 Wear a respie

Federal Plague Republic Katılım Ağustos 2016
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Fe.@NoHealthNoFun·
I don’t need commitments to funding badly designed, doomed-to-fail trials w/ fuzzy endpoints to “cure post-viral diseases.” I want a commitment to preventing + containing the spread of airborne viruses. Preventing exposure beats trying to fix a problem once damage is done.
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Smartino 🤔📯
Smartino 🤔📯@ScherhagThomas·
@NoHealthNoFun @DoeSpam sehe ich jedes Mal auf dem Campingplatz. So wenige, die sich nach "dem Geschäft" die Hände waschen. Wen die schon ihre Hände nicht waschen, sieht es in der Körpermitte bestimmt nicht besser aus. 💩😎
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Smartino 🤔📯
Smartino 🤔📯@ScherhagThomas·
Hygiene wird "überschätzt". 🤔😎
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Fe.@NoHealthNoFun·
@RealCheckMarker I‘m aware, but right now people plagued by unresolved viral infections self-experiment with longer courses of whatever antivirals they can get their hands on. It would be so much more beneficial to our inner organs to treat acute infx quick and early with targeted antivirals!
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Reality Check Marker
Reality Check Marker@RealCheckMarker·
@NoHealthNoFun As we suspect you are aware, the greatest challenge of suggesting antivirals is that antivirals are, in fact, toxic to human life.
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Reality Check Marker
Reality Check Marker@RealCheckMarker·
Sometimes we get fierce pushback when we finish our posts with "#LongCOVID is #AirborneAIDS so #WearN95". But, repurposed HIV drugs are antiviral solutions for viruses. So is the pushback against wearing N95?
Becky Ancira Robertson@AnciraBecky

Re: Treating as/with Herpes viruses I was, quite literally, close to death last year. After years of decline, I begged my physician to prescribe Valacyclovir. Within three days, I went from crawling to walking. For the first time in six years, I could think clearly enough to build an Excel budget sheet- something that had been completely out of reach. Even replying to emails had been overwhelming before that point. 1/8

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Fe.@NoHealthNoFun·
@RealCheckMarker I approve of your more direct call for acute treatment. It doesn’t make sense that we routinely deploy antibiotics for bacteria (when needed), but have to „cure“ viral infections with tea and prayers.
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Reality Check Marker
Reality Check Marker@RealCheckMarker·
@NoHealthNoFun You might notice we have made a slight deviation from our typical path not to recommend treatment advice. The intent here is really only to say, "viruses" should be treated with antivirals. There's a huge array of antivirals to deal with a huge array of viruses.
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Jerome Adams
Jerome Adams@JeromeAdamsMD·
🚨 We’re in a teachable moment - and we’re blowing it. The same voices who said “no mandates” and “we will not comply” are suddenly fine with hantavirus quarantines and Ebola travel bans. This proves: people support public health measures… when they feel threatened by someone else’s “freedom.” So let’s have some real, nuanced conversation about the value of public health measures (including “mandates”) vs individual freedom trade offs, instead of mindlessly repeating “we will not comply,” or conversely denying that many covid measures in fact went too far…
Jerome Adams@JeromeAdamsMD

Also, I don’t know who needs to hear this, but a travel ban, compulsory testing in airports, and forced quarantines for those deemed at higher risk… are ALL public health mandates.

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FN@NeuesFuechsle·
@NoHealthNoFun @frahmeworks Weil es dauert bis die Wirkung auf PEM+ Entzündung einsetzt und weil ich nicht mehr wirklich was als Alternative zum Testen habe.
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Magister Eulenspiegel
Magister Eulenspiegel@frahmeworks·
Wie sind hier die Erfahrungen bei GLP-1-Agonisten für Long COVID und ME CFS ? Probieren oder lassen? Danke
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Fe.@NoHealthNoFun·
@CarnivoraCC I said it before: you’re a celebrity 😁
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Carnivora @CarnivoraCC·
Whole Berlin is viewing my stuff 🔥🔥🔥
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FN@NeuesFuechsle·
@frahmeworks Nebenwirkungen die ersten Monate waren allerdings heftig. Das muss ich erwähnen. Hatte starke Fatigue und Bell Verlust, was sich aber nach ca 4 Monaten gegeben hat
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Fe.@NoHealthNoFun·
@CarnivoraCC And too fierce to leave this space to the trolls.
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Carnivora 
Carnivora @CarnivoraCC·
Too lazy for IG, too cool for LinkedIn, too old for TikTok, too excited for Bsky, too busy for Threads... ...Twitter it is then.
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Roy Doorenspleet
Roy Doorenspleet@DoorenspleetR·
@ladyspinedoc People have been told sarscov2 is mild. It kills 120-200.000 people annually in the US alone now, and is causing a spectrum of health damage such as longcovid. Normalized mass infection should not be normal.
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Fe.@NoHealthNoFun·
@Ninawildflower I ran into one of them after a concert and thanked him for the music - this was one of my most special fan moments!
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Fe.@NoHealthNoFun·
@PacoOnPause @TMaritanoAquino The ups and downs are defeating. When one of my ups last long enough, I always cultivate the illusion that „it will slowly go back to normal now“, just to be disappointed by another humbling down-phase. Sending love and solidarity 🫂
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PACO@PacoOnPause·
I had my worst 6 week stretch since 2022. I don't talk about my health a lot but this illness is traumatic and I don't know how to convey it, in a way that someone who hasn't experienced this can understand. I wish people understood but I understand why they don't.
PACO@PacoOnPause

Every improvement I've had has been preceded by a backslide and every setback has also been preceded by a backslide. My body has been doing weird things for over a month and I feel like I'm either going to get better or worse. 50/50 ¯\_(ツ)_/¯

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Fe.@NoHealthNoFun·
Spot on! You can’t force people to protect their health, but you can enforce policies like smoke bans that protect those who do from the reckless ones. A “you-do-you” policy in infection prevention doesn’t please both; it just leaves everyone less protected.
Nina Wildflower@Ninawildflower

Another fun idea was that somehow smokers and non-smokers could be meaningfully kept separate, with smoking rooms at work and smoking sections on trains and in bars. An “it's possible to please everyone” approach. No need to ban smoking! x.com/i/status/20556…

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Picapi
Picapi@picapiruli·
@TripWorryf503 @NoHealthNoFun @HalfThePerson I will share the results, yes. I just hope hes fine and doesnt end up like his brother. We are looking for the same biomarkers we did search for our youngest. Thats when we discovered his sugar levels were really low, then he developed diabetes and they are low now. A nightmare😫
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Worryfree Trip
Worryfree Trip@TripWorryf503·
@picapiruli @NoHealthNoFun @HalfThePerson My kids have also gotten 4 each, Pfizer and Moderna but, not too keen on those for kids. I give them benadryl before and then ibuprofen a few times in the weeks after to try and avoid myocarditis. 🤞🙏
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Fe.@NoHealthNoFun·
@drseanmullen I worked in open-plan offices for years. My colleagues and supervisors were always against airing the rooms regularly because “some people are sensitive to the cold.” They would all have preferred to suffocate rather than to deal with the complaints of the cold-sensitives.
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Dr. Sean Mullen
Dr. Sean Mullen@drseanmullen·
Cognitive fatigue is real. We mock it because admitting it would force us to redesign everything: schools, workplaces, classrooms, hospitals, parenting. Mocking is cheaper.
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Dr. Sean Mullen
Dr. Sean Mullen@drseanmullen·
A virus that damages every organ system is not “endemic.” It is unaddressed. There is a difference. Words matter when they’re being used to lie to you.
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James Throt MBBS, MD, PhD, FRCPath
James Throt MBBS, MD, PhD, FRCPath@JamesThrot·
Rising chronic illness. Rising disability. Rising sickness absence. Worsening mental health. Declining educational outcomes. Increasing cognitive complaints. Yet suggesting an ongoing pandemic may be contributing remains strangely controversial.
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Fe.@NoHealthNoFun·
@DoorenspleetR I wish you a bright new start. Sea and dunes in walking distance sounds like the perfect recipe to clear the mind.
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Roy Doorenspleet
Roy Doorenspleet@DoorenspleetR·
One where my son and I can walk to the sea and the dunes. A new city with less memories and more space for new.
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Roy Doorenspleet
Roy Doorenspleet@DoorenspleetR·
Strange to packup and empty out a home that I once shared with someone I shared life and love with, someone who will move in after I leave. Like becoming a ghost in my own lifetime. Thankful to be able to move on and stop being haunted having been able to get a new home.
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Keşfet

@ScherhagThomas @DoeSpam @RealCheckMarker @NeuesFuechsle @frahmeworks @CarnivoraCC @ladyspinedoc @Ninawildflower