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U.K. Biopsychosicial Papers #MEcfs #MyalgicE #ME #MyalgicEncephalomyelitis . #MEAwarenessMonth
#meded #medtwitter #hcsm #GPNews #foamed #hcsm #healthcare
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All of them snollygosters...
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All of them snollygosters...
@OnlyEnnui
Ex philosopher, Ex Singer Song Writer Ex Friend & lover. #MEcfs activist #hEDS benzo withdrawal = hell. Expect swearing & sarcasm
Katılım Ağustos 2011
2.3K Takip Edilen2.9K Takipçiler
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In response to a question from @ZackPolanski on #LongCovid, @DrAmirKhanGP says “I feel really helpless when I see them.”
People who were healthy just a few years ago, a lot of them have lost their independence and ability to earn and there’s nothing in place to look after them.
Adam@ABrokenBattery
People with #LongCovid, #MECFS and similar conditions don’t get the recognition and funding they deserve — @DrAmirKhanGP Unless decision makers have been personally affected, it’s almost as if they think ‘it won’t happen to me’ — @ZackPolanski
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So glad you got mentioned @DarrenBar88 . Now we need to make sure that @ZackPolanski and @TheGreenParty are aware of the terrible, inhumane and economically ignorant treatment #ME patients have suffered for decades. Ultimately a politically driven decision. I’ve been in bed 33yrs
Darren Parkinson 🌍💚💙@DarrenBar88
Huge thank you to @ZackPolanski and @DrAmirKhanGP for talking about long covid on @_BoldPolitics. Thank you for using your platforms to discuss this under-researched, super-debilitating condition when gov't have forgotten all about us. And thanks for the shout out, Zack! 💚
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@ZackPolanski @Agitate4Change Why is t the U.K. focusing on Tidal Turbines? The Japanese are starting to use them.
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An illegal war waged by two countries the UK arms & supports
B52s launched from British soil. Israeli jets built with British parts
A UK economy still hooked on fossil fuels.
We must end support for the war, cut fossil fuel addiction & support families facing this price shock
BBC Breaking News@BBCBreaking
UK gas prices soar more than 20% after strikes hit Qatar's main gas facility bbc.in/4sVs9cp
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Meningitis IS contagious
Yours sincerely
An Infectious Diseases specialist
Jacqui Deevoy@JacquiDeevoy1
Meningitis is NOT contagious, so what’s with all the nonsense? As my friend Kat Watkins says on FB today: “Meningitis is an infection in the brain caused by toxins passing the blood brain barrier. You cannot 'catch' it, it's not contagious 🙄🙄 So all this closing of schools is just theatre. It's to scare you into making sure you jab yourselves and your kids up. How many of those who have presented with meningitis, had the covid vax? Since its a side effect? As well as a side effect of many other jabs 🤷🤷”
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@DarrenBar88 @ZackPolanski @DrAmirKhanGP @_BoldPolitics @GrnsAgnstCvd Around half of ppl with LC have developed #MEcfs. I’ve been ill with ME for 30 years.
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Huge thank you to @ZackPolanski and @DrAmirKhanGP for talking about long covid on @_BoldPolitics.
Thank you for using your platforms to discuss this under-researched, super-debilitating condition when gov't have forgotten all about us.
And thanks for the shout out, Zack! 💚
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From Germany
Dysregulated NK-cell gene expression defines the enduring symptoms of long COVID-19
frontiersin.org/journals/immun…
Screenshot from latest Science for ME weekly update
#LongCovid #PASC
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‘Judeo-Christian values’ is such a tell. Who, in Britain, has ever casually dropped ‘Judeo-Christian values’ into any conversation *ever*?
This is Farage channeling Bannon. It’s MAGA. Dressing it up as English nationalism is pure pantomime. They’ll have Mother Goose next
Nigel Farage MP@Nigel_Farage
What we witnessed in London at the historic Trafalgar Square, in a country built on Judeo-Christian values, was a group of people attempting dominance over our capital city and our culture. We are not going to surrender everything that was built over centuries and defended at great cost in two world wars for us to be a free, independent nation. The British people will not put up with this any longer — simple as.
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Polanski's call for a wealth tax would be immensely damaging to ordinary working people. Especially ordinary working people with £10m or more in the bank.
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The reality of extremely severe ME should move every human being into action. We desperately need research to find effective treatments and to provide safe care for ME sufferers in this situation.
Praying for you Adam 💔
Adam 🇬🇧 ME/LC@AdamB92_
Thanks for anyone who sent DM asking how things are. Sadly still spiralling & bleak, and my situation has turned into the dreaded life threatening situation. Since June 2025 stomach is barely emptying, any fats or protein are intolerable, so been surviving on just the same basic five food everyday. Due to malnutrition & extremely low ATP energy, my body is eating my muscles & tissue for energy at an alarming rate so I have the skeleton boney look. As my Ischial tuberosities ‘sit bones’ have no fat/muscle padding left, its constant intense pressure pain, and trying to stop pressure sores. However lying on my sides isn’t possible as I start to crash after just two minutes as it’s too much exertion. Im already on the best alternating air mattress that exists. My breathing muscles are also struggling. So truly trapped in severe unsustainable torture. Hospital feeding tube isn’t an option. I got taken in December, and despite being in side room, after 9 hours was close to collapse due to the exertion/stimulation, so ambulance had to get me home ASAP (photo below, even this is a mission) as hospitals can’t treat ATP failure. I am too unwell for hospital. #pwME #MECFS #LongCovid
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This is what Smallpox looked like in a world without vaccines.
You've never seen such a thing.
Know why?
Because vaccines work...
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@DrMichaelScoma I have ME but my mast cell reactions also cause his ‘lead body’ sensation.
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Why PEM Feels Like Being Weighted Down
Post-exertional malaise is a systems level physiological crash. Following physical or cognitive exertion, multiple systems - autonomic, metabolic, neurological, immune - become dysregulated, producing that "lead body" sensation.
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Farage hates this video of him revealing his plans to sell off the NHS.
It would be a shame if it went viral again... 🫢
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@EvanHD
Why doesn’t the U.K. focus on Tidal Turbines?
We are surrounded by sea.
The Japanese are doing it.
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Covid-19 Found in People’s Blood Months After Infection
A quarter of people had Covid-19 viral proteins in their blood up to 14 months after infection.
These proteins in the blood indicate that SARS-CoV-2 keeps living in tissue reservoirs. psychologytoday.com/us/blog/should…
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Why is the methodologically and ethically challenged Esther Crawley still listed as a member of COFFI's steering committee? Given her retirement, why hasn't COFFI bothered to update its site? Can an organization so lax on detail even be taken seriously? virology.ws/2026/03/12/tri…
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What a F****** joke @KemiBadenoch is.
Giving her speech on @SkyNews she says Straight faced
"Britain only has Gas Storage for two weeks. Big shock is coming"
Who sold off our Storage facilities, putting our risk of Market volatility to the front
F***** Tories Did !!!!
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🧬 Scientists Found Something Unexpected in the Blood of Long COVID Patients
For years, people suffering from long COVID have reported fatigue, brain fog, and breathing problems yet doctors had no clear test to confirm what was happening inside the body. Now researchers may have discovered an important clue.
In a study published in Infection, scientists analyzed blood samples from long COVID patients and found fragments of the virus SARS-CoV-2 hidden inside tiny particles called extracellular vesicles.
These microscopic “packages” move through the bloodstream carrying molecules between cells. But in this case, scientists found dozens of pieces of viral proteins inside them including fragments from a protein the virus uses to replicate.
Because this protein does not exist in human cells, researchers say it strongly suggests that traces of the virus may still remain in the body long after infection
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