PCD research group at ISPM Bern

Baseline data on ear disease from #EPICPCD is out in @JAMAOto. This study involves a huge amount of people working in each centre and so many PCD support groups supporting us. Couldn´t be prouder to see results coming out jamanetwork.com/journals/jamao… @YinTing_Lam @beatpcd

Here is @Leonie_Schreck in her natural environment

Always vibing in green @mgoutaki

Merch from pcd-ks.myspreadshop.de arrived! Great way to spread awareness for #PCD #RareDisease

The German/Swiss PCD support group has a new website and it looks really fantastic! pcd-ks.info Our team loved the new logo so much we had to order ourselves some shirts, mugs and tote bags to spread awareness pcd-ks.myspreadshop.de

The incidence of bronchiolitis among infants dropped dramatically during the first COVID-19 winter, but can we learn from this for preventing bronchiolitis in the future? @EPedersenISPM and @ClaudiaKuehni discuss this in the latest issue of the ERJ erj.ersjournals.com/content/61/2/2…

@JaneSLucas1 @beatpcd @UoS_Medicine @_Claire_Jackson @Jannycoles @BiofilmHorton @ProfJWHolloway @ProfDBaralle @bruna_rubbo Fantastic! We are looking forward to see you all there! Our PCD team at @ISPMBern submitted its abstracts too and we hope for an exciting conference with great PCD representation @YinTing_Lam @EPedersenISPM @Leonie_Schreck @ClaudiaKuehni @mgoutaki

@beatpcd The @UoS_Medicine #PCD group has been preparing its abstracts for #ERSCongress2023. Looking forward to Milan! @_Claire_Jackson @Jannycoles @BiofilmHorton @JelmerLegebeke @ProfJWHolloway @ProfDBaralle @bruna_rubbo Kewei and collaborators

You have an additional week to submit your abstract at the #ERSCongress2023 We are excited in advance to meet in Milan and see many #PCD related presentations

To conclude this morning, prof Jane Lucas @JaneSLucas1 (@UoS_Medicine) is introducing PCD treatments 'outside the norm'.

It includes brillant videos from @PCD_UK @dexter_kt @LucyD28 @A_ihsan99 You can find them on @tiktok_uk @pcdsupportuk" target="_blank" rel="nofollow noopener">tiktok.com/@pcdsupportuk

Mihaela Alexandru from the ENT centre at Bicetre in Paris talked about #EPICPCD at the PCD patient conference today! We hope the study helps understanding better the upper airways disease in people with PCD @beatpcd @mgoutaki @YinTing_Lam

Hope to see you all today! Day too starts in 1hr!

We are really happy to read so many attended and enjoyed Day 1 of conference! Here is yesterday's thread if you would like to catch up! You can find all presentation slides at the @beatpcd website beat-pcd.squarespace.com

We are launching today’s presentations with a welcome address from @beatpcd chair Myrona Goutaki @mgoutaki (@PCD_ispm).

We are co-organising a patient conference together with @EuropeanLung and PCD support groups all over Europe. For more information and to register please go to …pcdpatientconference.eventbrite.co.uk. We are looking forward to seeing you many of you there @beatpcd

We are recruiting! We are looking for a postdoc and a PhD candidate to join our research team and help understand and improve healthcare of children with asthma. More info at ispm.unibe.ch/about_us/job_o… @ISPMBern @ClaudiaKuehni @EPedersenISPM

Come to Hall 7, T-16 at the #ERS where @Leonie_Schreck is presenting results from the #COVID_PCD study

Great #primaryciliarydyskinesia representation in Assembly 7 💪 happy team @beatpcd #epicpcd #covidpcd @EuroRespSoc #ERSCongress #ERS2022

@EPedersenISPM won best abstract in patient-centred research 2022 by the European Lung Foundation @EuropeanLung with data from the #COVID_PCD

Our own @YinTing_Lam and @Leonie_Schreck presented updates of the #epicpcd and #covidpcd studies at the @beatpcd @ErnLung meeting in Barcelona just before the @EuroRespSoc Congress! PhD power 💪💪