PKD International

🥗 This month, in our #PKD & Food series, we are featuring Quinoa Tabule — a fresh and flavourful recipe, perfect for the spring season. 📘 This recipe was created by the Riñón Poliquístico de México A.C. and authored by Ana Sofia López and L.N. Ari Cisneros.

March is Kidney Health Month | Last days to take action In these final weeks of #KidneyMonth, let’s keep raising awareness about kidney health and PKD. Check out “31 days of pkd” by PKD Canada: daily content to inform and support the community 👉 bit.ly/41fnnuq

💙 @worldkidneyday | Kidney Health for All 👉 On this World Kidney Day, voices from the global PKD community come together to share a clear message: Kidney Health for All means equal access to care for everyone affected by PKD. #PKDInternational #WorldKidneyDay

AIRG-E. Asociación Información Enfermedades Renales Genéticas hosted its 21st Conference on Genetic Kidney Disease, bringing together healthcare professionals, patients, and families to share knowledge, scientific advances, and lived experiences. 👉 youtube.com/watch?v=Jv9xCS…

💙 In one week, on March 12, 2026, we mark @worldkidneyday, the global campaign dedicated to raising awareness of kidney health and the importance of prevention, early diagnosis, and equitable access to care. #PKDInternational #WorldKidneyDay #WorldKidneyDay2026 #ARPKD #ADPKD

📣SGLT2 inhibition for patients with ADPKD – closing the evidence gap 👉 an @erakidney e-seminar of the ERA Journal Club Speaker: @MuellerRom Moderator: @willkidney , Parminder Judge Panelist: Roslyn Simms

💛 Today, February 28, is @rarediseaseday. 🧬 It is a global moment to shine a light on rare diseases — and on the urgent need for earlier diagnoses, appropriate care pathways, continued research, and sustained support for patients and families. #PKDInternational

Ahead of @rarediseaseday, we are honoured to share Andrea’s story, a father of three children — two of whom live with #ARPKD. 🔗 Read the full article on the PKD International website: pkdinternational.org/news/79-strong… #PKInternational @AIRPonlus

As @rarediseaseday approaches, we share Uwe Korst’s story — a powerful account of living with ADPKD. Selected by JARDIN as a representative ERKNet patient story. Full story: jardin-ern.eu/patient-story/…

🥗 Meal planning with #PKD can be challenging. That’s why we are highlighting Love Your Kidneys II: A Week of PKD-Friendly Meals, a guide from the PKD Foundation of Canada designed to turn nutrition guidance into a practical, everyday plan 👉 endpkd.ca/love_your_kidn…

PKD International warmly congratulates Roman-Ulrich Müller on this important new step. We are deeply grateful for his unwavering commitment to patient advocacy and for his continuous efforts to advance the interests of the PKD community.

🌍 PKD International joins @rarediseaseday to amplify the voices of people living with ARPKD around the world and to reaffirm a clear message: awareness is the first step toward change — in research, in care, and in quality of life. rarediseaseday.org #PKDInternational

In this webinar, organized by the PKD Foundation of Canada, CKD-associated pruritus (CKD-aP) and the available treatment options are explored in depth. ▶️ Watch the webinar on YouTube: youtube.com/watch?v=isnJ8e… #PKDInternational #CKD #PKDFoudationofCanada

Medical appointments can become challenging for people living with a chronic condition. In this article by @PKDAustralia , Nicki Scholes-Robertson shares practical advice on how to improve communication with healthcare teams: bit.ly/4rH5sIq

A healthy and balanced diet plays an important role in the day-to-day management of #PKD. The recipe we’re sharing today, created by Riñón Poliquístico de México A.C., is oatmeal pancakes. They’re made by blending oats, an egg, milk, baking powder, and a touch of vanilla.

🎥 Confidently Navigating #ADPKD: Women & Children – Special Considerations In this webinar, organized by the @PKDFoundation, key aspects related to women’s health, family planning, and the management of ADPKD in pediatric care are explored. ▶️ youtube.com/watch?v=Z7YcKh…

🧠 Living with a chronic condition such as #PKD can have a significant impact on mental health. In this webinar, organized by the PKD Foundation of Canada, the focus is on managing depression and anxiety. ▶️ Watch the webinar on YouTube: youtube.com/watch?v=b7EvbI…

We are immensely pleased to share that @PKDCharity has established the Tess Harris Fellowship Fund, created to support researchers and accelerate meaningful progress in the treatment of PKD. 🔗 To support the fellowship, you can donate here: cafdonate.cafonline.org/29607#!/Donati…

Autosomal Dominant Polycystic Kidney Disease affects more than just the kidneys. In this webinar, organized by the @PKDFoundation , the systemic impact of the disease is explored, including its effects on the heart, liver, bones, and metabolic health 📹 youtube.com/watch?v=biwCsX…

January is UK Liver Awareness Month. In PKD polycystic liver disease (#PLD) is common and often silent. Regular check-ups + healthy daily choices matter. We join @PKDCharity to shine a light on liver health. 💚 #LoveYourLiver👇 pkdcharity.org.uk/news-events/bl… #ADPKD #ARPKD