PSC Partners Canada

Support & Community available for those affected by #PSC in two @PSCPartners Facebook Groups! Find out more at bit.ly/OpenSupportGro… bit.ly/ClosedSupportG… Join the conversation and welcome to the best family we wish you didn't need.

20 Years International Research Experience in PSC: What Have We Learn? 👉International Collaborations matters & make the difference @ipscsg @CcaEns 👉Patient Associations play a central role @PSCPartners @PSCSupportUK @tomhemmingk at the stage, who better than him! 👏

Community-driven research is critical to advance scientific discovery Science in Society meeting attendees share posters on their work to push for treatments or cures in their rare disease areas, emphasizing the critical role that patients & communities play in driving discovery

Last call to register: Sat Paeds PSC Day webinar for patients & families w amazing expert speakers Gideon Hirschfield, @amandaricciuto, @MacparlandSonya, @garybader1, Sarah Kohut, Amrita Mundh, & Albert Fung fr @UHN @UofTGastroH @SickKidsNews @TVASurg bit.ly/PSCPC24

People with #PSC can experience an infection of the bile ducts (called “PSC flare” or “cholangitis attack”). If you're a PSC patient who's had an attack or flare consider filling in this survey, helping us improve care and develop treatments. buff.ly/3Ut2DeQ @PSCPartners

@tomhemmingk @PSCPartners Thank you all!!!

Annual research retreat of the Norwegian PSC research center. Such a great team on a dedicated mission to resolve a remaining mystery of hepatology. @PSCPartners

Help us reach paediatric PSC families w news of Canadian Paediatric PSC Day on June 1 @ Toronto. Full day educational programming & peer support. Register @ bit.ly/regPSC @CASLupdates @amandaricciuto @MacparlandSonya @BinitaKamath @DrSimonLing @AASLDtweets @NASPGHAN

Patients & families: Today & Tomorrow: Event for paeds autoimmune liver @ Center for Autoimmune Liver Disease at Cincinnati Children's Hospital & ALiNK. Reg open through noon tomorrow for online attendance. 1.Register: web.cvent.com/.../abe1bfce-6…... 2: instructions to join online

Tonight, the @TourCNTower will be lit green to kick off National Organ and Tissue Donation Awareness Week (#NOTDAW). Remember to check that you’re a registered organ and tissue donor at BeADonor.ca

Stephanie Azzarello is 39, she lives in Toronto and works at the University of Toronto in the art history department as a researcher and lecturer. She also has PSC and is on the transplant wait list hoping to find a living donor. Read her full story here: theglobeandmail.com/amp/life/first…

2024 Canadian Paediatric PSC Day for patient families! Registration is open for this June 1 event to be held in Toronto, Ontario. Full information at conta.cc/3TAZFEH @PSCPartners #PSCAware

PSC Partners Canada is happy to announce that registration is NOW OPEN for the first Canadian Paediatric PSC Day happening June 1 at the Arts and Letters Club in Toronto. Register here 👇 eventbrite.ca/e/canadian-pae… @PSCPartners #PaediatricPSCday #pscaware

Save the date for the first ever Canadian Paediatric #PSC Day on June 1st at the Arts & Letters club in Toronto, Ontario, Canada! Registration will open in March and travelships will be available on a first come first serve basis. Stay tuned for updates! #pscaware @pscpartners

Calling all Canadian #PSCers and family members of a #PSCer who transitioned to adult care during the past few years. Please join this virtual town hall on Feb 8! #PSCAware

This cost-free research program is open to #PSC'ers in Canada and US! Check it out!

Rare liver disease research made possible through teamwork, collaboration, open science with the patient experience and voice at the heart of the whole process. uhn.ca/corporate/news…

Teamwork Science! New publication with insights on what is going on at a cellular level in #PSC. So grateful for this team and the CIHR funding making this type of discovery possible! @PSCPartners

Patients, families, clinicians, & scientists gathered for #PSC @PSCPartners What the Cell?! Toronto event. Videos at bit.ly/YouTubePSCPC News release at go.pspcartners.org/WhatTheCellPre… @MbD_UofT @UHNTransplant @MacparlandSonya @amandaricciuto @DianaNakib @garybader1 @AutoImmuneLiver

The Quality of Life in PSC conversation w liver experts from Australia, Belgium, and UK for this global #pscaware day.

Primary Sclerosing Cholangitis (PSC): A #RareLiverDisease That Needs Our Attention! Do you know what PSC is? It's a rare condition that affects the bile ducts, causing scarring and narrowing. This can lead to liver damage and impact digestion. #LiverCancerAwarenessMonth #PSCDay

@sjhatch_joanne @amandaricciuto @AutoImmuneLiver @PSCPartners @PSCSupportUK @pscsupportau @EuropeLiver @AASLDtweets Yes! The videos will be posted as soon as possible. Please stay tuned! Thank you to all of the amazing speakers providing much needed #hope based on science & #support based on human connection and access to information. #grateful #PSCAware

For those with #PSC, will the @PSCPartnersCa PSC Conference video be available soon? Loved the talks by @amandaricciuto & @AutoImmuneLiver & many others! @PSCPartners @PSCSupportUK @pscsupportau @EuropeLiver @AASLDtweets