The PSP Association

Huge THANK YOU to our #TeamPSPA London Marathon runners! 🏃‍♂️🏃‍♀️ You’ve raised £262,082 for PSP & CBD support. Sarah, our #Fundraising Manager, said: “I’m immensely proud of this team.” Congrats to all—your dedication inspires us! 💜 #LondonMarathon

📣 Neuro2026 Call for Abstracts is OPEN! Share your #research on PSP, CBD, or related # tauopathies/proteinopathies. Submit studies, QI projects, or case reports by 30 June. 🔗 More info & submit: pspassociation.org.uk/research/infor… #Neuro2026 #PSP #CBD #MedicalResearch #NeuroScience

Professor Oliver Bandmann of @SheffieldBRC is to lead a new collaboration in Parkinsons disease. The latest Translational Research Collaboration will improve patient access to research and enable more targeted and personalised approaches to disease modification and therapy. The collaboration partners with four charities: @ParkinsonsUK @CureParkinsonsT @PSPAssociation @MSAtrust to improve the quality of life and outcomes for people with PD and related disorders. nihr.pulse.ly/nvqrrzvo6y

New research part-funded by PSPA highlights the importance of spotting early PSP symptoms. Our Eye Red Flags poster helps Opticians identify changes in eye movements, eyelids and fixation. Download & share: ow.ly/Mnwc50YMJXa #PSP #Optometry #EyeHealth #EyeCare

Join us at Neuro2026: The PSP & CBD International #Research Symposium with @CurePSP on 5–6 Nov 2026 at Hilton London Bankside for the latest in PSP & CBD research. Open to all researchers and medical professionals. More info & tickets: ow.ly/fWsP50YMthA #Neuro2026

Read more in @RareRevolutionM about new #research into eye movement, funded by the PSPA 👇 #NeurologicalConditions #ResearchPapers #ResearchNews

Nature Partner Journals are seeking essays from clinicians, researchers & advocates on all forms of Dementia. Help shape “The Human Connection” journal. Find out more & submit your experience: ow.ly/CSNi50YIRfx #NeuroScience #BrainHealth #MedicalJournals

Missed our Research Strategy launch? 🎉 Hear from David Carter, Prof. Michele Hu & Prof. Karen Morrison on how we’re driving better diagnosis, treatment & care for PSP & CBD. 🎥 Watch: ow.ly/eOHP50YIQT2 🔗 More: ow.ly/Ox8H50YIQT1 #PSP #CBD

Find out more about what research studies our Understood Fund is financing in the video here: ow.ly/mbJJ50YIPRP and on our webpage: ow.ly/tkC150YIPRQ #UnderstoodFund #ResearchFunding #FundedResearch #ResearchProjects #NeurologicalResearch

We’re exploring a new PSPA online support group for families in Northern Ireland. Please encourage anyone you support living in #NorthernIreland to join our intro Zoom meeting on Tues 14 April, 11am–12:30pm. Interested? Email carol.amirghiasvand@pspassociation.org.uk.

Primary #healthcare professionals: After our #cognition masterclass, download our #guide on Cognition in PSP & CBD. It covers condition presentation, cognitive impact, and assessment tips. Share with colleagues to help raise awareness! Download: ow.ly/EaP550YBHzK

🎟️ Tickets are now available for Neuro2026! Join us and @CurePSP for the PSP & CBD International Research Symposium, 5–6 Nov 2026 at Hilton Bankside, London. Hear from global experts and discover the latest in PSP & CBD research. Book now: ow.ly/MnON50YAviF #Neuro2026

Supporting families affected by PSP & CBD in Northern Ireland? We’re considering a new online support group and want their input! Please share this meeting and encourage them to attend on Tue 14 April, 11am–12:30pm. To attend, email carol.amirghiasvand@pspassociation.org.uk

We have a range of resources to help you support your patients living with PSP or CBD. From publications, to support groups, support grants to our Helpline, find out more about how you can best support your patients: ow.ly/oObr50YxZgn #HealthProfessionals #PatientSupport

The new edition of PSPA Matters is here! 🎉 Featuring: 🔬 Our Research Strategy 🗣️ Partnership with ElevenLabs for Voice Banking 🧠 PSP & CBD research updates Download now: ow.ly/4FJ950YxYWj #Magazine #Research #Updates

Missed our online #masterclasses? Catch up on #YouTube! 🎥 Last year, Dominic Burdon (Consultant Orthoptist) shared insights on Neuro-Orthoptics in PSP—covering key ocular features, early #diagnosis, and more. Watch now: ow.ly/xrhF50YxGRZ #PSP #Orthopists #OpticalHealth

Watch our video with Professor Huw Morris on diagnosing Corticobasal Degeneration (CBD). It includes: 🔍 Key symptoms 💊 Treatment options 🤝 How to support patients. Watch here: ow.ly/nPRv50Yxvou #CBD #Neurology #MovementDisorders #PatientCare #BrainHealth

Thank you @AyoubKhanMP for bringing a Westminster Hall debate on Continuing Healthcare. CHC funding should be a lifeline for people with PSP & CBD, but our State of CHC report shows the system is broken - fewer than 1/4 applications are successful. Report: tinyurl.com/3abzdyhy

Thank you to all the health and social care professionals who joined us at our Regional Awareness event in Lincolnshire! Together, we’re raising awareness and improving support for those affected by PSP & CBD. 💜🧠 #TeamPSPA #HealthCareProfessionals #LincolnshireEvents

David Smith, Parkinson’s Advanced Clinical Practitioner, is sharing what services people living with Progressive Supranuclear Palsy and Corticobasal Degeneration can access in the #Lincolnshire area #MovementDisorders #PatientSupport #Resources #Healthcare