The PSP Association

We’re exploring a new PSPA online support group for families in Northern Ireland. Please encourage anyone you support living in #NorthernIreland to join our intro Zoom meeting on Tues 14 April, 11am–12:30pm. Interested? Email carol.amirghiasvand@pspassociation.org.uk.

Primary #healthcare professionals: After our #cognition masterclass, download our #guide on Cognition in PSP & CBD. It covers condition presentation, cognitive impact, and assessment tips. Share with colleagues to help raise awareness! Download: ow.ly/EaP550YBHzK

🎟️ Tickets are now available for Neuro2026! Join us and @CurePSP for the PSP & CBD International Research Symposium, 5–6 Nov 2026 at Hilton Bankside, London. Hear from global experts and discover the latest in PSP & CBD research. Book now: ow.ly/MnON50YAviF #Neuro2026

Supporting families affected by PSP & CBD in Northern Ireland? We’re considering a new online support group and want their input! Please share this meeting and encourage them to attend on Tue 14 April, 11am–12:30pm. To attend, email carol.amirghiasvand@pspassociation.org.uk

We have a range of resources to help you support your patients living with PSP or CBD. From publications, to support groups, support grants to our Helpline, find out more about how you can best support your patients: ow.ly/oObr50YxZgn #HealthProfessionals #PatientSupport

The new edition of PSPA Matters is here! 🎉 Featuring: 🔬 Our Research Strategy 🗣️ Partnership with ElevenLabs for Voice Banking 🧠 PSP & CBD research updates Download now: ow.ly/4FJ950YxYWj #Magazine #Research #Updates

Missed our online #masterclasses? Catch up on #YouTube! 🎥 Last year, Dominic Burdon (Consultant Orthoptist) shared insights on Neuro-Orthoptics in PSP—covering key ocular features, early #diagnosis, and more. Watch now: ow.ly/xrhF50YxGRZ #PSP #Orthopists #OpticalHealth

Watch our video with Professor Huw Morris on diagnosing Corticobasal Degeneration (CBD). It includes: 🔍 Key symptoms 💊 Treatment options 🤝 How to support patients. Watch here: ow.ly/nPRv50Yxvou #CBD #Neurology #MovementDisorders #PatientCare #BrainHealth

Thank you @AyoubKhanMP for bringing a Westminster Hall debate on Continuing Healthcare. CHC funding should be a lifeline for people with PSP & CBD, but our State of CHC report shows the system is broken - fewer than 1/4 applications are successful. Report: tinyurl.com/3abzdyhy

Thank you to all the health and social care professionals who joined us at our Regional Awareness event in Lincolnshire! Together, we’re raising awareness and improving support for those affected by PSP & CBD. 💜🧠 #TeamPSPA #HealthCareProfessionals #LincolnshireEvents

David Smith, Parkinson’s Advanced Clinical Practitioner, is sharing what services people living with Progressive Supranuclear Palsy and Corticobasal Degeneration can access in the #Lincolnshire area #MovementDisorders #PatientSupport #Resources #Healthcare

Hear from Neurologist, Dr Tim Rittman, who's speaking at our Regional Awareness Event for health and social care professionals today in Lincolnshire and will be sharing some exciting research updates. #Neurology #Lincolnshire #Neurologist #MedicalResearch #RegionalEvent #Research

We’re in Lincolnshire today for our Regional Awareness event, supporting families living with PSP & CBD. Hear from our Helpline & Support Services Manager, Peggy, about what the day will include! #Events #FreeEvents #Lincolnshire #HealthcareProfressionals #Research

Diagnosing PSP & CBD can be tough. Our posters highlight key red flags to help professionals during consultations. Find them and more resources here: ow.ly/Znjw50YxuMH #PSP #CBD #Diagnosis

Mental health is just as important as physical health when helping people to live well. Neurological conditions can co-occur with anxiety, depression, behavioural change and more. It can be hard for young people to voice their feelings, especially if they use alternative communication methods. Do you work with children and young people? Don’t assume they’re ok, they may be coping with more than you know. It’s everyone’s responsibility to make sure children and young people are supported. Not sure how? Download this toolkit on how to support children and young people impacted by neurological conditions ➡️ bit.ly/4qCMCkL #BrainAwarenessWeek #NeurologicalConditions #BrainHealth #RareDiseases #MentalHealth #MentalHealthSupport

Professor Johannes Attems, Professor of Neuropathology and member of the PSPA Research Committee chaired a session and presented at #ADPD2026 yesterday. His session was called ‘Linking Pathology and Biomarkers across Neurodegenerative #Disorders’ which looked at PSP & CBD.

Our Helpline Care Navigator's Cathy and Kaysha had a great day presenting about PSP & CBD and meeting healthcare professionals at the #Neurodegenerative Conditions Awareness event with @inspireneuroc in Farnborough today! #Healthcare #Awareness #neurology

NEW REPORT: Alliance urges action to ensure the NHS can deliver a rapidly expanding pipeline of neurological treatments. Learn more bit.ly/4slEarR

🌍 Register for #Neuro2026! Join us & @CurePSP for the PSP & CBD International Research Symposium, 5–6 Nov 2026 in London. Hear the latest breakthroughs & connect with experts. Abstracts open Spring 2026—follow us for updates! Tickets: ow.ly/V7Nu50YvfpY #Research

Watch Megan share more about PSPA's poster from the #ADPD2026 Conference 👇#research #researchposter #conference @adpdnet