Pranjali Udanshiv

If Kerala Government can do this then why Maharashtra Government can't do so..?? @CMOMaharashtra @mieknathshinde @MeDeshmukh @MoHFW_INDIA

"Beyond what we thought, towards what we dreamed." @curesmaindia extends its deepest gratitude to the Government of Kerala, and Hon. Health Minister Smt. Veena George @VeenaGeorge03 4 the historic decision to expand the the age limit for risdiplam to 25 years !!!

✨ Closing SMA Awareness Month with hope! Mr Sreejith's son's progress with #SMA drug #Risdiplam shows that with timely access & care, milestones are possible. Holding onto hope for a brighter future 🌈 #SMAAwareness #HopeForSMA #CureSMAIndia

Meet Diya,a 4-yr-old SMA warrior thriving thanks to breakthrough treatments & daily physiotherapy!Physiotherapy builds strength, improves movement & gains independence. Let's celebrate Diya's progress & raise awareness! 🌈💕 #SMAWarrior #PhysiotherapyMatters #CureSMA #SMAwareness

SMArt Warrior Ruvanthika's inspiring speech at SMArt Con 2025 highlights the importance of treatment, therapy & support in managing #SMA. Her positivity & prayer for others' well-being touched everyone's heart 💜✨ #SMAWarrior #SMArtCon2025 #HopeForSMA

✨ Meet Javeria, a 10-yr-old SMArt warrior with big dreams! 💜 Cure SMA India thanks Syniti for empowering SMA warriors with essential medical equipment, symbolizing freedom & dignity. 🙏 #SMABravery #CureSMAIndia #SMArtWarriors #SMABeingLimitless

🌟 Rajasekhar's inspiring journey from a small village to the stage, overcoming challenges & shining with confidence!His story highlights the importance of awareness support & guidance in unlocking opportunities for those with SMA. #SMARTCON2025 #SMAAwareness #DisabilityInclusion

🌸 Meet Devansh, a 21-month-old SMA warrior! 💜 With therapy, treatment & love, he's becoming stronger each day. Let's raise awareness & work towards a future where no child's potential is limited by SMA! 🌍💜 #SMAAwarenessMonth #CureSMAIndia #StrongerWithSMA

✨ Dylan's Story ✨ 9-yr-old Dylan's treatment halted due to funding issues. SMA meds are life-changing but unaffordable. No child should lose strength due to cost. Sustainable access is key! 🌸💜 #CureSMAIndia #SMAAwareness #AccessToMedicines #HopeForSMA

✨ Irfan's scoliosis surgery journey is a testament to courage & resilience! 💙 From struggling with simple tasks to enjoying everyday moments, his story inspires hope & reminds us that every experience matters. 🙌 #SMAAwareness #LifeWithSMA #HopeStrengthLove

🌸 Meet Pradeep Kumar, a father of 2 brave boys with #SMA! 💜 Ayansh's progress after gene therapy is inspiring, but Hemanth's journey highlights the need for accessible treatments. Together, we can make a difference! ✨ #SMAAwareness #CureSMAIndia #StrongerThanSMA (part 2)

🌸 Meet Pradeep Kumar, a father of 2 brave boys with #SMA! 💜 Ayansh's progress after gene therapy is inspiring, but Hemanth's journey highlights the need for accessible treatments. Together, we can make a difference! ✨ #SMAAwareness #CureSMAIndia #StrongerThanSMA (part 1)

Meet Deeksha, a SMArt warrior who inspires with her journey of hope & determination! 💪🌟 "Your spirit should never let you down. With willpower, you can always move forward." #SMArtCon2025 #SMAAwareness #NeverGiveUp #CureSMAIndia

✨ Meet Revati, a brave SMA warrior from Pune! 💜 She's sharing her journey to raise awareness about SMA & inspire hope. Her story shows that access to treatment & research can change lives! 🌸 #SMAAwareness #CureSMA #SMAWarrior #HopeForSMA

💜 Meet Layam, a brave little boy living with #SMA Type 2. His story reminds us that life with SMA is about resilience, love, and hope. Let's spread knowledge, compassion, and strength together! #SMAAwareness #CureSMA #HopeForSMA

Heartfelt thanks to @ficci_india @NITIAayog & @CDSCO_INDIA_INF for including Ms Alpana Sharma, Co-Founder of Cure SMA Foundation of India. Grateful for the opportunity to share patient voices & work towards a better future for SMA families 🙏 #SMAIndia #PatientCentricity

Meet 8-month-old Yuvaann 💙 fighting #SMA Type 1 with courage. SMA is a genetic disorder affecting muscle movement—early diagnosis & genetic testing can change lives. Watch his inspiring journey & spread awareness 🌸 #SMAawareness #SMAwarriors

Meet Rudraunsh, a cheerful SMA warrior! 🌟 His parents are crowdfunding for Zolgensma, a life-changing treatment. Let's spread awareness & support this amazing family! 💕 #SMAAwareness #CrowdfundingForLife #SMAWarrior

Welcoming Our Esteemed Panelists ✨ The National Conference on Making Rare Care Possible, by FICCI with NITI Aayog and IMPF, is honored to host our Esteemed Panelists whose valuable insights will play a pivotal role in shaping impactful discussions on rare care in India.

SMA awareness saves lives! 💜 3 life-changing treatments exist: Zolgensma, Risdiplam & Spinraza. Crowdfunding spreads awareness, builds solidarity & gives SMA kids hope. 🌸 Together, let's turn awareness into action! ✨ #SMAAwareness #CureSMA #HopeForSMA

Meet Amanya, 10, who is thriving with #SMA thanks to patient support & #Spinraza treatment! 💜 Her story shows how community & guidance can turn fear into hope. ✨ #SMAAwareness #PatientSupport #SMAWarrior #CureSMAIndia @Maharashtr67917