Cure SMA Foundation of India 🇮🇳

Heartfelt gratitude 2 Hon'ble PM Shri Narendra Modi Ji @narendramodi 4 sparing time 2day with our #SMArtWarriors Roli n Akshat Rastogi 🙏. V truly believe "मोदी है तो मुमकिन है". With yr blessings ALL #SpinalMuscularAtrophy patients in India will get life saving medicine soon 🙏

Gautami, an #SMA warrior from Kerala, shares her gratitude as @iprdkerala extends SMA medicine support for up to 25 years. A huge moment of hope for families fighting SMA! Thank you @pinarayivijayan @VeenaGeorge03 Officials of @Arogyakeralam @drrahulur 🙏 #RareDisease #Kerala

On #RareDiseasesDay , 20 yr old Nived speaks on behalf of #SMA patients in Kerala thanking the @iprdkerala . Thank you Hon. CM @pinarayivijayan Hon. HM @VeenaGeorge03 and Nodal Officer @drrahulur for extending free SMA medicine access from age 12 to 25 🙏

You haven't just provided medicine ; you have provided a future for those who have waited from long time.....

"Beyond what we thought, towards what we dreamed." @curesmaindia extends its deepest gratitude to the Government of Kerala, and Hon. Health Minister Smt. Veena George @VeenaGeorge03 4 the historic decision to expand the the age limit for risdiplam to 25 years !!!

You haven't just provided medicine ; you have provided a future for those who have waited for long time..... @JPNadda @Roche

As d 1st ever dedicated budget provision 4 SMA, this is a monumental victory 4 our community & a shining example of compassionate governance. Thank u 4 listening, 4 caring & 4 giving our children a brighter future! 💙 #CureSMAIndia #EveryLifePrecious #SMAAwareness #HealthForAll

Heartfelt Gratitude 2 d Govt of Kerala! 🙏 @curesmaindia expresses its deepest thks 2CM @pinarayivijayan FM @knbalagopalcpim &HM @VeenaGeorge03 4 d historic allocation of ₹30 Crore 4 Spinal Muscular Atrophy treatment #KeralaGovernment #SMAAwareness #HistoricBudget" @FinMinIndia

As d 1st ever dedicated budget provision 4 SMA, this is a monumental victory 4 our community & a shining example of compassionate governance. Thank u 4 listening, 4 caring & 4 giving our children a brighter future! 💙 #CureSMAIndia #EveryLifePrecious #SMAAwareness #HealthForAll

2day, as India celebrates its strength n unity, we reaffirm ur belief dat every life deserves opportunity, care, and a future filled with possibilities. Jai Hind! @NITIAayog @PMOIndia @ICMRDELHI @FinMinIndia @MIB_India @narendramodi @MoHFW_INDIA @EduMinOfIndia @RailMinIndia

We hope 4 strong policy dialogue wid inclusion, early diagnosis n intervention wid better access 2 therapies, standard of care, assistive support n a more compassionate, informed n supportive society.

@curesmaindia wishes every1 a happy Republic day 2026 2day!. As v celebrate d values of equality, dignity n hope enshrined in ur Constitution, v stand in solidarity wid children and adults living wid Spinal Muscular Atrophy (SMA) n their families @MoHFW_INDIA @CDSCO_INDIA_INF

@curesmaindia @MIB_India @indSupremeCourt @SupremeCourtIND @MoHFW_INDIA Heartfelt gratitude to the Chief justice and our legal team for supporting our cause !🙏

✨ Honoured on the Patient First stage Alpana Sharma, Co-Founder & Director, @curesmaindia receives the Social Impact in Healthcare Award at the 4th #PatientFirstSummit & Awards 2025. #PatientFirstAwards #SocialImpactInHealthcare #PatientAdvocacy

Congratulations @alpanaS16 of @curesmaindia for deservedly receiving the Social Impact in Healthcare Award 2025 at the Patient First Summit & Awards in Mumbai! This recognition is a testament to the tireless efforts of you all team Cure SMA India team - the Parents and SMA Individuals. 💕🙏🏻🤗. Heartfelt gratitude to @IHWCouncil for this honouring the right person 🙏🏻🙏🏻 @HemoIndia @GoaHemophilia @PremroopAlva @goadisability @GoaAnimalfedn

Cure SMA Foundation of India, a national parent-led nonprofit working for individuals with Spinal Muscular Atrophy (SMA), unveiled the Preview and Soft Launch of e-Swayam Digital Accessibility Map. #curesma #eswayam #amplereach #spinalmuscularatrophy #communitymapping

This platform is born from lived experiences frm #SMAcommunity, collective hope n our shared belief dat accessibility must b real, dignified n measurable. eSwayam -the digital Accessibility map will b powered by community n citizens, scaled by technology n driven by d real users.

On the occasion of International Disability Day @Curesmaindia is super excited to present the preview n soft launch of e-swayam-Digital Accessibility map of India in Hyderabad today. @MSJEGOI @MIB_India @MoHFW_INDIA @NITIAayog @SDGoals @SDG2030 @F_MEITY @DePwDSCTGP @socialpwds

We are delighted to welcome Dr. Alpana Sharma, Co-Founder & Director - Patient Advocacy, @curesmaindia, as a distinguished speaker at the 4th #PatientFirstSummit & Awards 2025. 🗓️ Dec 5, 2025 📍 Holiday Inn, Mumbai 🔗 More: ihwcouncil.org/patientfirstsu… #PatientCentricCare

On behalf of d entire SMA community across India, we offer our sincere thanks to d Hon’ble Supreme Court n our legal team 4 their support, compassion n vision. Together, v move 1 step closer 2 a more inclusive, compassionate n dignified India 4 all 👍💪🙏🏻.

Your dedication, commitment n willingness 2 fully understand SMA – medically, socially, emotionally n financially – ensured dat d voices of our children, adults n caregivers were truly heard.

On behalf of every child n adult living wid SMA, v express our heartfelt gratitude 2 d Hon’ble Chief Justice of India, Hon’ble Justice Surya Kant n Hon’ble Justice Joymalya Bagchi n delivering an order dat upholds d dignity, rights n respect 4 persons wid SMA n other PwDs.