Cure SMA Foundation of India 🇮🇳

4.5K posts

Cure SMA Foundation of India 🇮🇳

Cure SMA Foundation of India 🇮🇳

@curesmaindia

Making Spinal Muscular Atrophy treatment and cure accessible and affordable to Indians.

India Katılım Aralık 2016
616 Takip Edilen2.3K Takipçiler
Cure SMA Foundation of India 🇮🇳
"Beyond what we thought, towards what we dreamed." @curesmaindia extends its deepest gratitude to the Government of Kerala, and Hon. Health Minister Smt. Veena George @VeenaGeorge03 4 the historic decision to expand the the age limit for risdiplam to 25 years !!!
Cure SMA Foundation of India 🇮🇳 tweet media
English
11
24
34
190
Cure SMA Foundation of India 🇮🇳
We hope 4 strong policy dialogue wid inclusion, early diagnosis n intervention wid better access 2 therapies, standard of care, assistive support n a more compassionate, informed n supportive society.
English
2
3
4
71
Cure SMA Foundation of India 🇮🇳 retweetledi
Prakash W. Kamat
Prakash W. Kamat@PrakashWKamatPK·
Congratulations @alpanaS16 of @curesmaindia for deservedly receiving the Social Impact in Healthcare Award 2025 at the Patient First Summit & Awards in Mumbai! This recognition is a testament to the tireless efforts of you all team Cure SMA India team - the Parents and SMA Individuals. 💕🙏🏻🤗. Heartfelt gratitude to @IHWCouncil for this honouring the right person 🙏🏻🙏🏻 @HemoIndia @GoaHemophilia @PremroopAlva @goadisability @GoaAnimalfedn
Prakash W. Kamat tweet media
English
1
3
4
126
Cure SMA Foundation of India 🇮🇳
This platform is born from lived experiences frm #SMAcommunity, collective hope n our shared belief dat accessibility must b real, dignified n measurable. eSwayam -the digital Accessibility map will b powered by community n citizens, scaled by technology n driven by d real users.
English
0
2
3
55
Cure SMA Foundation of India 🇮🇳
On behalf of d entire SMA community across India, we offer our sincere thanks to d Hon’ble Supreme Court n our legal team 4 their support, compassion n vision. Together, v move 1 step closer 2 a more inclusive, compassionate n dignified India 4 all 👍💪🙏🏻.
English
0
5
13
120
Cure SMA Foundation of India 🇮🇳
Your dedication, commitment n willingness 2 fully understand SMA – medically, socially, emotionally n financially – ensured dat d voices of our children, adults n caregivers were truly heard.
English
1
4
11
116
Cure SMA Foundation of India 🇮🇳
On behalf of every child n adult living wid SMA, v express our heartfelt gratitude 2 d Hon’ble Chief Justice of India, Hon’ble Justice Surya Kant n Hon’ble Justice Joymalya Bagchi n delivering an order dat upholds d dignity, rights n respect 4 persons wid SMA n other PwDs.
Cure SMA Foundation of India 🇮🇳 tweet media
English
8
42
46
458