Project CADASIL

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Project CADASIL

Project CADASIL

@ProjectCADASIL

Working to increase awareness of #CADASIL, share resources and news, and secure funding for the advancement of therapies, treatments, and ultimately a cure.

Katılım Ağustos 2023
213 Takip Edilen179 Takipçiler
Project CADASIL retweetledi
Fanny Elahi, MD, PhD
Fanny Elahi, MD, PhD@FannyElahi·
Thank you @cziscience for bringing patients and researchers together to make discoveries that will help rare disease and beyond. Together we’ll end CADASIL 🙏 @SinaiBrain @ProjectCADASIL @cureCADASIL
biohub@biohub

Patients 🤝 Partners CADASIL patient + advocate Ki Coale & clinician scientist Fanny Elahi spoke about their work decoding the rare vascular neurodegenerative condition. Learn more about their partnership + others czi.co/4bCG5ij

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Project CADASIL retweetledi
cureCADASIL
cureCADASIL@cureCADASIL·
Our Patient-Investigator Meeting is on June 29! Join us for updates on #CADASIL research from experts from around the world 🌎 Register for in-person or virtual here: curecadasil.org/2024-curecadas…
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cureCADASIL
cureCADASIL@cureCADASIL·
📣 Save the date 🗓️ This year’s Patient-Investigator Meeting is 6/29! Join us in-person at the Eaglewood Resort in Itasca, IL, or tune in to our live stream 🖥️, for talks by leading #CADASIL researchers & conversations with community members. Register: conta.cc/3wvnB51
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Project CADASIL retweetledi
Fanny Elahi, MD, PhD
Fanny Elahi, MD, PhD@FannyElahi·
Exciting breakthrough in vascular dementia research! 🧠 Our latest pre-print identifies unique blood proteomic signatures in CADASIL, the most prevalent monogenic form of vascular cognitive impairment and dementia (VCID). biorxiv.org/content/10.110…
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Project CADASIL
Project CADASIL@ProjectCADASIL·
Team CADASIL has been invited back to The Million Dollar Bike Ride for Orphan Disease Research @MDBRide4Rare for 2024 and registration is now open! In the past five years, Team CADASIL has raised over half a million dollars through MDBR which has supported CADASIL researchers in the form of grants. Please consider registering to participate (in-person or virtually) on June 8, 2024. Learn more about The Million Dollar Bike Ride and register here: milliondollarbikeride.org/mdbr-about
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Project CADASIL
Project CADASIL@ProjectCADASIL·
Michael was diagnosed with #CADASIL after a stroke in 2015. Since then, he and his family have focused on raising money to combat CADASIL. Michael and his family’s work raising funds and increasing awareness includes proceeds from four children’s books he’s written, bike rides, local sporting events, book fairs, and much more. Visit kenbrightkreations.com to learn more about the work Michael and his family are doing and to get involved. If you have been affected by this disease, whether through a personal diagnosis or that of a friend or family member, and you'd like to share your story, reach out to us via email at projectcadasil@gmail.com
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Project CADASIL retweetledi
Fanny Elahi, MD, PhD
Fanny Elahi, MD, PhD@FannyElahi·
It’s an honor to be a part of the CADASIL community and to care for those affected. Grateful to the patients & families who participate in research and to the scientists and research coordinators in my lab who have joined our shared mission to develop treatments for CADASIL.
Project CADASIL@ProjectCADASIL

To celebrate the new year, today Humans of #CADASIL features @FannyElahi, a physician and behavioral neurologist-neuroscientist at @IcahnMountSinai. Dr. Fanny Elahi is a CADASIL expert and is leading the charge to develop treatments and eventually a cure for CADASIL. In addition to leading a research program, Fanny is available to speak with patients affected by CADASIL and their family members, and cares for many in her clinic. If you have or are at risk for CADASIL, please consider signing up to be a part of Dr. Elahi's study. If you would like to learn more or are interested in participating, email CADASIL@mssm.edu or visit The Elahi Lab at ElahiLab.com. #HumansofCADASIL

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Project CADASIL
Project CADASIL@ProjectCADASIL·
To celebrate the new year, today Humans of #CADASIL features @FannyElahi, a physician and behavioral neurologist-neuroscientist at @IcahnMountSinai. Dr. Fanny Elahi is a CADASIL expert and is leading the charge to develop treatments and eventually a cure for CADASIL. In addition to leading a research program, Fanny is available to speak with patients affected by CADASIL and their family members, and cares for many in her clinic. If you have or are at risk for CADASIL, please consider signing up to be a part of Dr. Elahi's study. If you would like to learn more or are interested in participating, email CADASIL@mssm.edu or visit The Elahi Lab at ElahiLab.com. #HumansofCADASIL
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Project CADASIL retweetledi
Fanny Elahi, MD, PhD
Fanny Elahi, MD, PhD@FannyElahi·
I’m honored to have been selected as a Top 10 Conversation of 2023 at Aspen Ideas. Such a wonderful meeting of creative minds across societal sectors.
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Aspen Ideas@aspenideas

As #AspenIdeasHealth wraps its 10th anniversary year, we're excited to share the 10 most-watched sessions of 2023, which sparked our community's curiosity on topics ranging from women's health to biomedical breakthroughs. Explore ⬇️ aspenideas.org/collections/he…

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Project CADASIL retweetledi
Fanny Elahi, MD, PhD
Fanny Elahi, MD, PhD@FannyElahi·
I’m so grateful to research participants who join our study. Their contributions drive the science that gives me hope! Please consider joining a study and helping us find a cure for #CADASIL — email our research coordinator ruth.axton@mssm.edu for info. elahilab.com/studies
Project CADASIL@ProjectCADASIL

Today our Humans of #CADASIL series is featuring Barney. This is Barney and his sister, Marilyn. Barney was diagnosed with CADASIL in 2010. His doctor says he’s a bit of an outlier; as he is doing pretty well at age 72. Barney is participating in both the CADASIL Consortium and Dr. Elahi’s study. He is hopeful that treatments will be found for future generations. If you have been affected by CADASIL, whether through a personal diagnosis or that of a friend or family member, and you'd like to share your story, please reach out to us via email at projectcadasil@gmail.com.

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Project CADASIL
Project CADASIL@ProjectCADASIL·
Today our Humans of #CADASIL series is featuring Barney. This is Barney and his sister, Marilyn. Barney was diagnosed with CADASIL in 2010. His doctor says he’s a bit of an outlier; as he is doing pretty well at age 72. Barney is participating in both the CADASIL Consortium and Dr. Elahi’s study. He is hopeful that treatments will be found for future generations. If you have been affected by CADASIL, whether through a personal diagnosis or that of a friend or family member, and you'd like to share your story, please reach out to us via email at projectcadasil@gmail.com.
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Keşfet

@cziscience @SinaiBrain @cureCADASIL @FannyElahi @ChanZuckerberg @northshoremag @BrainComms @MDBRide4Rare