teamconnor4cadasilcure

132 posts

teamconnor4cadasilcure banner
teamconnor4cadasilcure

teamconnor4cadasilcure

@teamconnor4cada

The Connor family is dedicated to raising awareness and funds to for CADASIL research. Help us reach goal!

Celebration, FL Katılım Ağustos 2023
102 Takip Edilen30 Takipçiler
teamconnor4cadasilcure retweetledi
NINDS
NINDS@NIH_NINDS·
Exciting news for the Parkinson's community! Researchers funded by NIH are developing a new type of brain pacemaker. This "self-adjusting" device could offer continuous and personalized treatment for Parkinson's symptoms. Read the full story now: go.nih.gov/sWAN8VV
NINDS tweet media
English
0
2
4
439
teamconnor4cadasilcure retweetledi
TeamConnor6
TeamConnor6@TeamConnor6·
World CADASIL Awareness Day ~November 16th~ CBS Albany New York, 6 WRGB, segment on Michael Kennedy. He and his family work tirelessly to raise CADASIL awareness and funds for research. CADASIL is a rare blood disorder that primarily affects the brain. 📷cbs6albany.com/news/local/loc…
English
0
1
1
33
teamconnor4cadasilcure retweetledi
thinkCADASIL
thinkCADASIL@thinkCADASIL·
In the most recent Savvy Safety Sisters PARTNERS IN PREVENTION podcast, Carrie Pasquarello had the privilege of interviewing Angelique, a 25-year-old Project Coordinator from Pretoria, South Africa. Angelique shared her journey of living with CADASIL youtu.be/xyibNA3rtzA?si…
YouTube video
YouTube
English
0
1
1
47
teamconnor4cadasilcure retweetledi
TeamConnor6
TeamConnor6@TeamConnor6·
Carrie Pasquarello talks with Dr Fanny Elahi about CADASIL. CADASIL Unveiled: The Hidden Link to strokes and migraines. Share with friends and family. Thank you! youtube.com/watch?v=h02sdJ…
YouTube video
YouTube
TeamConnor6 tweet media
English
0
2
3
91
teamconnor4cadasilcure retweetledi
Fanny Elahi, MD, PhD
Fanny Elahi, MD, PhD@FannyElahi·
Exciting breakthrough in vascular dementia research! 🧠 Our latest pre-print identifies unique blood proteomic signatures in CADASIL, the most prevalent monogenic form of vascular cognitive impairment and dementia (VCID). biorxiv.org/content/10.110…
Fanny Elahi, MD, PhD tweet media
English
4
12
83
8K
teamconnor4cadasilcure retweetledi
Patient Worthy
Patient Worthy@PatientWorthy·
Another great answer to our question: "How do you think doctors can better hear and validate the #RareDisease patient experience?"
Lelainia Lloyd (She/Her) ♿️🥌🎙✍️🦄@tatterededge

@PatientWorthy THE most important question MDs can ask is “How are you coping with all of this?” In 41 years of living with #NMOSD not a single member of my care team has ever asked me about my mental health. Not one. Mental healthcare is health care. Being rare comes with its own challenges.

English
1
3
9
566
teamconnor4cadasilcure retweetledi
Craig Colligan
Craig Colligan@CraigRGNDem·
DEMENTIA is not something to be ashamed of, but IGNORANCE and STIGMA are. Let's raise awareness, promote understanding, and support those affected. #EndTheStigma #DementiaAwareness
Craig Colligan tweet media
Glasgow, Scotland 🇬🇧 English
0
5
5
275
teamconnor4cadasilcure retweetledi
Life Line Screening
Life Line Screening@Life_Line·
Heart Health Can't Wait: A Simple Screening Can Be Worth A Lifetime. Get Screened For Stroke & Heart Disease Risk.
English
78
157
795
3.7M
teamconnor4cadasilcure retweetledi
Chan Zuckerberg Initiative
Chan Zuckerberg Initiative@ChanZuckerberg·
Mitochondria serve as energy supplies near neuronal synapses. Using their novel spine + mitochondrial ATP reporters, @RangarajuVidhya & team are measuring synaptic mitochondrial function in vivo & in human iPSCs to understand mitochondrial phenotypes in ALS #ALSAwarenessMonth
Chan Zuckerberg Initiative tweet media
English
1
2
16
1.2K
teamconnor4cadasilcure retweetledi
Stroke AHA/ASA
Stroke AHA/ASA@StrokeAHA_ASA·
TOPICAL REVIEW: Role of NOTCH3 Mutations in the Cerebral Small Vessel Disease Cerebral Autosomal Dominant Arteriopathy With Subcortical Infarcts and Leukoencephalopathy #stroke ow.ly/Dduq30lObwY
Stroke AHA/ASA tweet media
English
0
8
25
0
teamconnor4cadasilcure retweetledi
UCLA Neurology
UCLA Neurology@UCLANeurology·
Lecanemab is the only disease-modifying drug currently approved by the FDA for #Alzheimers disease. Dr. Alejandra Sanchez Lopez @UCLAEastonAD explains how #Lecanemab removes toxic proteins from the brain and slows cognitive decline in early stages of AD. youtu.be/BFE8nOyKwhQ?si…
YouTube video
YouTube
English
0
3
10
1.1K
teamconnor4cadasilcure retweetledi
Chan Zuckerberg Initiative
Chan Zuckerberg Initiative@ChanZuckerberg·
What if we could map every connection in the brain? #CZBiohubSF investigators are using optogenetics + holography to uncover the ways our 89 billion neurons interact bit.ly/493i5DO
Chan Zuckerberg Initiative tweet media
English
2
3
12
1.3K
teamconnor4cadasilcure retweetledi
Brain & Life
Brain & Life@BrainandLifeMag·
Caring for someone with a progressive neurologic disease can be financially challenging. These expert tips can protect you and your loved ones: bit.ly/3b2zt3p #Caregiving #Caregiver
Brain & Life tweet media
English
0
1
2
468
teamconnor4cadasilcure
teamconnor4cadasilcure@teamconnor4cada·
@commonlyraredesigns/video/7354453440644255007?is_from_webapp=1&sender_device=pc&web_id=7327324691688834591" target="_blank" rel="nofollow noopener">tiktok.com/@commonlyrared… Check out Christine's latest creations and help support CADASIL awareness & research! Thanks!
English
1
0
0
58
teamconnor4cadasilcure
teamconnor4cadasilcure@teamconnor4cada·
Sharing my husband's story to raise CADASIL awareness. It started with strokes and ended with mixed dementia for Tom. If the collection of symptoms sound familiar in your family, please ask your neurologist to test for CADASIL. Thank you. nshoremag.com/.../fighting-f…
English
0
0
1
138

Keşfet

@RangarajuVidhya @UCLAEastonAD @elonmusk @BarackObama @taylorswift13 @cristiano @BillGates @NASA