Project Endo

Living with endometriosis sometimes feels like being personally selected for a very specific and deeply unnecessary character-building experience. Repost from @endometriosisandyap

The medical pain scale was never designed to measure what it means to live with extraordinary pain every day. Sometimes the hardest part is not answering “how bad is the pain?” It’s explaining how much of your life has been built around surviving it. Repost from @endo_heal

Anyone living with a dynamic disability knows how quickly needs can change. Symptoms fluctuate, and support needs shift. Adapting to that reality is not “faking it.” It’s responding to a body that doesn’t function the same way every day. 💛 Repost from @endometriosisem

Sometimes we all need a reminder that we matter, that our pain is valid, that we can still build a life that's ours despite the pain. Grateful to @oliviabrierley for sharing these words of encouragement. 💛

Endometriosis and cancer share real biological similarities, including invasive growth, inflammation, and the ability to spread beyond their original site. The signs are there. The attention isn’t. Repost from @the.endometriosis.coach

“Women end up getting a PhD in their own condition.” When answers aren’t clear or don’t come quickly, women often find themselves researching, tracking patterns, asking difficult questions, and trying to make sense of it all on their own. Repost from @drjolenebrighton

A study from Oxford University is pointing toward earlier, less invasive diagnosis for endometriosis. Using a SPECT-CT scan, researchers detected most cases later confirmed by surgery. Read more: bbc.com/news/articles/…

May is Women’s Health Month, but for too many women, being heard is still part of the fight. Women’s health is not niche. It is not secondary. It is not optional. This month is not just about awareness; It is about accountability & better outcomes. Repost from @whoop

"Repeated endometriosis surgeries are not something we should normalize. Every surgery matters. Every surgery carries risk. And when surgery is done without a clear goal, or the right skill set, patients can be left with even more pain." Thank you @drpelvicpaindo

We miss you every single day. Your words live on, continuing to educate and reach those who need to hear them most. 💛 @lifebefore_illness Thank you for sharing @thewomenontoppodcast

"We all have men in our lives who we love and want support from, and who want to support us. And it’s not always their fault if they don’t know how." Learn more about Abbey Lee's @menforendo initiative here- womenshealth.com.au/abbey-lee-endo…

“Anything but endo” is not random. It's a pattern. A recent article in Sociology of Health & Illness breaks down how misdirection, minimization, and delay shape diagnosis. Full link here- #shil70142-sec-0100" target="_blank" rel="nofollow noopener">pmc.ncbi.nlm.nih.gov/articles/PMC12… #listentous #thinkendo

Imagine if this was the story we grew up with. Imagine if someone had said “endometriosis” out loud. Imagine if we were taught what to look for instead of what to ignore. How many years we could have gotten back. Visit Thinkendo.org to learn more

It’s not just the diagnosis. It’s the silence around it. Being handed a prescription without real conversation isn’t the same as care or a solution. Listen to us. #thinkendo Repost from @iamroxytg

A recent Pelvic Pain Symposium emphasized how frequently GI symptoms are present in patients with endometriosis, reinforcing the importance of considering overlapping symptoms when evaluating presentation. A multidisciplinary lens is necessary. Thank you @jjfitzgeraldmd

Spotter? Check. Plan? Kinda. Just figuring it out together? Always. 💛 Repost from @endometriosisandyap

"Not all endometriosis surgeries are the same. Your first surgery for endometriosis matters. A lot. Because every incomplete surgery can leave disease behind and make the next surgery harder. " Thank you for everything you do. 💛 @alyssasmalllayne.md

You sit there trying to explain what it feels like, how much it’s affecting your day to day…and somehow the whole thing gets reduced to a quick decision and a prescription in your hand. That disconnect is what stays with you. We hear you. 💛 @iamroxytg

Rutgers University is conducting an IRB-approved study for U.S. adults diagnosed with endometriosis. Help with this research by taking a 15–20 min anonymous survey and enter to win a $25 Amazon gift card. Help improve endometriosis care! 💛 Access here- tinyurl.com/Rutgers-endo-s…

Women are living longer, but not necessarily healthier. That gap isn’t random. It’s built into a system that has historically overlooked, dismissed, and under-researched women’s health. The pattern is clear and the impact is real. This has to change. Repost from @prenuvo