Project Endo

The shift to P.M.O.S. (polyendocrine metabolic ovarian syndrome) is more than a name change. It’s an acknowledgment that this condition impacts the entire body and patients deserve a diagnosis that reflects what they’re experiencing. Full article here- tinyurl.com/2bwaw57s

For 17 years, Monica Thomas was accused of faking her pain. Today, she’s finally been diagnosed with thoracic endometriosis. This is what medical misogyny looks like IRL. Delayed care, delayed treatment, and years taken from people who knew something was wrong all along. @gmb

Could it be endometriosis? In this clip, Dr. Iris Orbuch breaks down some of the most common symptoms she sees every day in endometriosis patients. 💛 Repost from @eggwhisperer #thinkendo #listentous

Father-daughter rivalry, but make it endometriosis trivia. 😍 Who knows more? Who folds under pressure? And who’s about to get fact checked at the family dinner table? 👀 Thanks so much for sharing! @drliu_endometriosis_surgeon

Making its international debut at this year's Edinburgh Festival Fringe is the award-winning musical - Endometriosis: The Musical! Venue: Gilded Balloon Patter House, Downstairs Dates: 5–31 Aug 2026 (not 17, 24) Tickets: £10 - £13.50 Website: endomusical.com

There is something incredibly powerful about choosing to be seen in moments we’re often taught to hide. Sharing those vulnerable realities can be uncomfortable, but it's within this discomfort that we find connection and support. 💛 Thank you for sharing @growwithendo

Living with endometriosis sometimes feels like being personally selected for a very specific and deeply unnecessary character-building experience. Repost from @endometriosisandyap

The medical pain scale was never designed to measure what it means to live with extraordinary pain every day. Sometimes the hardest part is not answering “how bad is the pain?” It’s explaining how much of your life has been built around surviving it. Repost from @endo_heal

Anyone living with a dynamic disability knows how quickly needs can change. Symptoms fluctuate, and support needs shift. Adapting to that reality is not “faking it.” It’s responding to a body that doesn’t function the same way every day. 💛 Repost from @endometriosisem

Sometimes we all need a reminder that we matter, that our pain is valid, that we can still build a life that's ours despite the pain. Grateful to @oliviabrierley for sharing these words of encouragement. 💛

Endometriosis and cancer share real biological similarities, including invasive growth, inflammation, and the ability to spread beyond their original site. The signs are there. The attention isn’t. Repost from @the.endometriosis.coach

“Women end up getting a PhD in their own condition.” When answers aren’t clear or don’t come quickly, women often find themselves researching, tracking patterns, asking difficult questions, and trying to make sense of it all on their own. Repost from @drjolenebrighton

A study from Oxford University is pointing toward earlier, less invasive diagnosis for endometriosis. Using a SPECT-CT scan, researchers detected most cases later confirmed by surgery. Read more: bbc.com/news/articles/…

May is Women’s Health Month, but for too many women, being heard is still part of the fight. Women’s health is not niche. It is not secondary. It is not optional. This month is not just about awareness; It is about accountability & better outcomes. Repost from @whoop

"Repeated endometriosis surgeries are not something we should normalize. Every surgery matters. Every surgery carries risk. And when surgery is done without a clear goal, or the right skill set, patients can be left with even more pain." Thank you @drpelvicpaindo

We miss you every single day. Your words live on, continuing to educate and reach those who need to hear them most. 💛 @lifebefore_illness Thank you for sharing @thewomenontoppodcast

"We all have men in our lives who we love and want support from, and who want to support us. And it’s not always their fault if they don’t know how." Learn more about Abbey Lee's @menforendo initiative here- womenshealth.com.au/abbey-lee-endo…

“Anything but endo” is not random. It's a pattern. A recent article in Sociology of Health & Illness breaks down how misdirection, minimization, and delay shape diagnosis. Full link here- #shil70142-sec-0100" target="_blank" rel="nofollow noopener">pmc.ncbi.nlm.nih.gov/articles/PMC12… #listentous #thinkendo

Imagine if this was the story we grew up with. Imagine if someone had said “endometriosis” out loud. Imagine if we were taught what to look for instead of what to ignore. How many years we could have gotten back. Visit Thinkendo.org to learn more

It’s not just the diagnosis. It’s the silence around it. Being handed a prescription without real conversation isn’t the same as care or a solution. Listen to us. #thinkendo Repost from @iamroxytg