Raremark Foundation
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@RaremarkFdn
A safe space platform creating awareness, educating, and breaking boundaries for #sicklecellwarriors and their loved ones.
How many young people in Uganda are living with the sickle cell trait and don’t even know it? This weekend at Kyengera SDA Church, we screened hundreds individuals, some of whose results were routine and others, life-changing.
Hon. Victor Nekesa (UPDF Rep.) calls for the adoption of modern technology like the In Vitro Fertilisation (IVF) to assist sickle cell couples to produce children without passing on the genetic disorder. #PlenaryUg
House is debating a motion urging government to recognise the sickle cell disease as a major public health concern that requires immediate budgetary attention. The mover of the motion, Hon. Asuman Basalirwa, said Uganda was reported to have a significant burden of sickle cell disease, with a national trait prevalence of 13.3%, indicating that about one in seven people is a carrier. He said about 20,000 babies are born with sickle cell disease annually, and approximately 6,000-9,000 children die before their fifth birthday, largely due to lack of early diagnosis and inadequate access to comprehensive care. #PlenaryUg
House has adopted the motion urging government to recognise the sickle cell disease as a major public health concern that requires immediate budgetary attention. Government Chief Whip, hon. @ObuaHamson said the issue of sickle cell disease is being integrated within the national health system by @MinofHealthUG. “We are trying our best to ensure the availability of essential medicine. We are also encouraging public-private partnerships to complement efforts of government in sensitising communities about this monster,” he said. #PlenaryUg
