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Ospite di Tg1 Dialogo, il nostro presidente per ricordare l'appello lanciato ai leader politici affinché inseriscano nell'agenda di governo la lotta alla SLA.
@GiorgiaMeloni
@MinisteroSalute
@Aifa_ufficiale
Italiano
Post Fata Resurgo ETS
363 posts
Post Fata Resurgo ETS
@Resurgo_MNDALS
https://t.co/YfgqbnXICd
Catania Katılım Haziran 2020
333 Takip Edilen139 Takipçiler
Post Fata Resurgo ETS retweetledi
In Italia circa 6000 persone convivono con la #SLA, malattia rara ancora senza cura. La diagnosi stravolge il quotidiano di pazienti e famiglie. L’unica speranza resta la ricerca scientifica.
@Resurgo_MNDALS
#VaticanNewsIT
Leggi e ascolta qui⬇️
shorturl.at/WOYrK
Italiano
🪪 𝗧𝗘𝗦𝗦𝗘𝗥𝗔𝗠𝗘𝗡𝗧𝗢 𝟮𝟬𝟮𝟲 🪪
🫂 Unisciti a 𝗡𝗢𝗜 diventando 𝘀𝗼𝗰𝗶𝗼‼️
Segui le istruzioni che trovi a questa pagina 👉🏻postfataresurgo.org/associazione/t…
C'è molto da fare‼️
Grazie 🧡
#PostFataResurgo
#United2EndALS
#Time2EndALS
#SLA
Italiano
Post Fata Resurgo ETS retweetledi
🌎❤️Read the latest work from the
@ALSMNDAlliance community in the Oct 2025 newsletter, incl. news from the #Italian #ALS #Coalition 🇮🇹!
🔗tinyurl.com/4mk6un6k
#ALSMNDWithoutBorders
English
Post Fata Resurgo ETS retweetledi
✅🇮🇹 The #Italian #ALS #Coalition Roundtable paper presentation on the identification of triggers for #palliativecare involvement in #neurological #ALS #MND conditions held by @sinneurologia
& SICP - Società Italiana di Cure Palliative in Torino, 21 March. tinyurl.com/bde44xjs
English
@Brain1878 ema.europa.eu/en/documents/o…
Opportunity to provide guidance
English
Many ALS therapies with successful Phase 2 trials fail to show meaningful benefits in Phase 3. Benatar et al. argue that to profit from advances in our understanding of ALS neurobiology, we must rethink our approach to Phase 2 trials. tinyurl.com/4ye92mxc
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@AmmarAlChalabi @mndassoc @MNDoddie5 @MNDScotland @IanByrneMP What do your words mean? It will take ages to have a treatment for ALS? What is needed to fill the gap in knowledge?
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Testing a drug takes a lot of time, a lot of commitment from people living with #ALS #MND, and a lot of money. We must be sure that we put our efforts in the right place to find new and effective treatments as quickly as possible. @mndassoc @MNDoddie5 @MNDScotland @IanByrneMP
UK MND Research Institute@UKMNDRI
Many people with #MND are asking about ellorarxine. How are new drugs approved, and what does the evidence say about this research and drug? 🔬 We break down the drug development process and how we’re working to speed it up. ukmndri.org/2025/02/07/an-…
English
Dear @EU_Commission and President @vonderleyen, when will #ALS become a point on your agenda?
ALS Community is in desperate need for a solution.
Thanks.
ALS = Amyotrophic Lateral Sclerosis
youtu.be/cQ9TkSxg1ME?si…
YouTube
English
Please support this GoFundMe by donating or sharing—every bit of help makes a difference. gofund.me/2f47fb5c
English
@KadimastemLTD @NLSPharma Great news! When do you plan to kick off the clinical trial? Thanks for your effort!
English
🌟 Kadimastem is making strides in #ALS treatment! #FDA IND approval to start a multi-site Phase IIa clinical trial using AstroRx our unique #celltherapy! 🚀
As we merge with @NLSPharma, we’re eager to raise funds and recruit ALS patients for this groundbreaking trial!
English
Post Fata Resurgo ETS retweetledi
✅#conSLAncio was included in the publication #La #Neurologia #Italiana - 54th Congress Special Edition of the Italian Society of Neurology, last weekend in #Rome 🇮🇹
📰➡️tinyurl.com/2s3jrewd
We thank our entire team & partners worldwide.
Grazie! 👏❤️
#ALSMNDWithoutBorders
English
Post Fata Resurgo ETS retweetledi
🇮🇹🇮🇹🤝🤝💚YOU'RE INVITED (for FREE!)!
✅The new #Italian #ALS #MND #Coalition will present a poster at the @ALSMNDAlliance APF Virtual Poster Hall, 29 Oct-5 Dec.
The Italian Coalition was established this year.
📰➡️tinyurl.com/88rmacyf
#United2EndMND #ALSMNDWithoutBorders
English
Post Fata Resurgo ETS retweetledi
🌎🧪🔬
Dona per #STEMALS - Sperimentazione di Fase 2 per la #SLA #MND
➡️gofund.me/13479962
Per @revertonlus in collaborazione con #conSLAncio,
@Resurgo_MNDALS, @VivalaVitaODV, Assoc. ISAV e Assoc. ASLA. Grazie a tutti!
Italiano
Post Fata Resurgo ETS retweetledi
🌎🧪🔬
Dona per #STEMALS - Sperimentazione di Fase 2 per la #SLA
➡️gofund.me/13479962
Per @revertonlus in collaborazione con #conSLAncio, @Resurgo_MNDALS, @VivalaVitaODV, Assoc. ISAV e Assoc. ASLA. Grazie a tutti!
Italiano
Post Fata Resurgo ETS retweetledi
ICYMI I wanted to share the amazing @TODAYshow interview of me and @sabrevaya and all of the things that we have been up to. Thank you @jacobsoboroff and @mollymhunter for the chance to share our story with the world!
TODAY@TODAYshow
Brian Wallach @bsw5020 and Sandra Abrevaya @sabrevaya sat down with @jacobsoboroff to talk about their @PrimeVideo documentary called “For Love & Life: No Ordinary Campaign,” executive produced by @katiecouric, their journey with ALS, @iamalsorg and more.
English
Post Fata Resurgo ETS retweetledi
🌎🧪🔬
Dona per #STEMALS - Sperimentazione di Fase 2 per la #SLA
➡️gofund.me/13479962
Per @revertonlus in collaborazione con #conSLAncio, @Resurgo_MNDALS, @VivalaVitaODV, Assoc. ISAV e Assoc. ASLA. Grazie a tutti!
Italiano
Dona per STEMALS - Sperimentazione di Fase 2 per la SLA gofund.me/13479962
@revertonlus
Italiano