Rowena Harris

I am creating an audio artwork trail at Elan Valley for folk with #fatigue (for myself too) - #LongCovid @LongCovidWales @long_covid #MECFS please can I have your insights, on my wee 5min survey? Thank you! bit.ly/402thwz

@MathersRosie Ah, thanks @MathersRosie it is so good to hear it is reaching people who get this....when will the #cultureofdisbelief be over!? xxxxxx

"a film can look like this and still be sick" rowenaharris.com/portfolio/long… - recently alerted to this fabbo piece by @Rowena_Harris on the medical #cultureofdisbelief #whywontyoubelieveme

I am running a work-in-progress Audio Artwork Trail for Fatigue, Elan Valley, 14 April @LongCovidWales #midwales, #powys, #elanvalley #Rhayader, I would love you to join me + listen to the artwork as a short, slow, restful trail. More + register here: bit.ly/3Z2MTiW

Hello @visitrhayader I am working on a new audio trail for fatigue #LongCovid at #ElanValley, open to all 🙂 #Rhayader #powys #midwales folk I'd love you to join the opening walk in around April 14 & your views on fatigue - register interest, views here bit.ly/402thwz

I am creating an audio trail #elanvalley #powys for folk with #fatigue #LongCovid What does fatigue mean to you? Much love for a wee 5 mins survey here surveymonkey.co.uk/r/2BY8ZNZ will be a slow, restful #crip artwork trail, open to all @LongCovidWales @long_covid @LongCovidNews

Hello @LongCovidWales experts on fatigue! I would love your insights for a new audio trail at Elan Valley for folk with Fatigue! surveymonkey.co.uk/r/2BY8ZNZ a 5min survey - will be a beautiful, restful, slow audio artwork you can come and visit, much thanks if you can 💓

@ahandvanish It would be interesting to also see in relation to the clotting described with AZ vaccine, think similarly cavernous sinus....it would describe what I felt with AZ, making my long-covid and ME before that (with those headaches for 10+years) much worse

The brain's drainage system has been theorized to be dysfunctional in ME/CFS. In fact, the first time Dr. Fauci mentioned #LongCovid in July 2020, he said that it looked like ME/CFS & that there might be cribriform drainage issues. 1/

@EfCovid19 ...and re:stiff neck...ergononmise EVERYTHING. Computer desk, executive chair, adjust car seat/steering wheel, couch cushions behind head...and a flight neck pillow is helpful for finding ways to sit with neck support. feel your pain 💕

@EfCovid19 tell me about your neck? I had ME and major neck problems before long-covid, now worse...not know why. are you busy on this long-covid neck research too? I am looking in to CCI (craniocervical instability) > jenbrea.medium.com/how-infection-…

@ales_frost not related to exercise...but any doc who has not heard of ME should start with a paper on epistemic injustice and ME (or why they didn't hear about ME till now) link.springer.com/article/10.100…

An MD I know is looking for a new job. I told her she should specialize in ME/CFS & Long Covid, & that I could teach her more in 1 hr than 95% of drs know. 😆 She said that she has never heard of ME/CFS. 🤯 Now she asked me for papers related to Long Covid & exercise. Input?

Oooh oohh I have found Leslie Feinberg's research notes on the medical politics driving the Lyme Wars, how did this escape me so for long? transgenderwarrior.org/casualty/ #LeslieFeinberg #transicon #chronicillness #chroniclyme

@RuhoyMD Please can you share research on CCI & covid? Struggling to convince doctors…this made me sit up as I didn’t know the link and thought I was unlucky. I have had to figure out the CCI myself I had very bad long covid from the beginning. Legs lack control

reading #saraahmed Complaint with #susanwendell The Rejected Body this week…thinking about medical gaslighting per #mecfs #longcovid as experience bringing particular situatedness, knowledge, research praxis, not sure yet…other #feministdisabilitystudies on this plz 🙏🏼

@parcelforce Why is my global express shipment still in the UK after 7 days? Your 'fastest' delivery should be 2 days to EU destination....btw royal mail has already beaten you with another package to same place sent on the same day with a less speedy service #shippingdelay

My university plans to lose 500 casual staff disproportionately affecting black & staff of colour, in my precarious job too – so I'm refusing to hand in marks. Share & #saveourjobs theguardian.com/commentisfree/…

This is abhorrent @GoldsmithsUoL and I am not surprised by the institutional racism that has long existed under a PR veil. Strength and support to you @evan_ife in taking this stand. ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️

@sainsburys you left my 87 yr old Gran off the vulnerable person online delivery. I called & followed your advice & you didn't do it. 50-60 yrs a loyal customer now she needs online. She's going without! I know it's tough right now, but please follow through with offered support

@HMRCcustomers ok. It's good to know that it is a delay, rather then anything more swindely

@HMRCcustomers Yesterday I beleive

@HMRCcustomers My accountant has submitted my return, but on my account it still says it is due. Is this an error - or is there a processing time this year?