SamebutDifferent

Today is the day – we are so excited to share that #RarityLife issue 14 is now LIVE online. What better way to celebrate #RareDiseaseDay then with a bumper issue of Rarity Life magazine: rarity-life.com #ShareYourColours #shareyourstory #raredisease #inclusionmatters

We're proud of our online magazine #RarityLife & so we decided to launch our very own #RarityLifeinFOCUS page to enable us to bring you our communities' stories sooner. It won’t be much longer now… #ComingSoon #blogposts #shareyourstory #raredisease #cancer #disabledvoices

"It means so much to have a voice, don't underestimate how important these articles are" This feedback is exactly why we do what we do. We're proud of #RarityLife, our online magazine, so-much so that we're launching #RarityFocus, keep an eye on our socials to find out more!

I Chaired yesterday's CPG on Hospice & Palliative Care meeting & was pleased to welcome Ceridwen Hughes from Mold-based @SBDRareProject who spoke about their Dying to be Heard Exhibition focused on capturing end-of-life care experiences & promoting honest & open conversations.

In recognition of #RememberenceSunday we're revisiting an exhibition that is especially close to our hearts, #NationalServiceRemembered this #ThrowbackThursday Find out more about National Service veterans here: national-service.co.uk #TBT #NationalServiceRemembered

“It can be difficult for people to understand how severely Aidan’s condition affects him because outwardly he looks so well” For our #ThrowbackThursday post we are sharing Aidan’s story from our #RareBeauty project. Read more here: samebutdifferentcic.org.uk/rarebeauty

Read ‘Lung Cancer can Affect Anyone’ by Rachel Avery from #RoyCastleLungCancerFoundation to find out more about their mission to raise vital awareness of this disease. You can find it here: rarity-life.com #LungCancer #ScreeningSavesLives #NationalLottery

For #MotivationMonday we're highlighting the incredible work @ToriaUnhidden has done with her groundbreaking company @UnhiddenFashion, we were so excited to feature her in our launch issue of #RarityLife: rarity-life.com Go give them a follow if you don't already!

#ThrowbackThursday spotlight on our 'Rare Aware' project in which we captured the stories of some truly remarkable people living with rare diseases. Read more about Hannah and all our other wonderful contributors here: samebutdifferentcic.org.uk/rare-project #RareAware

This #MotivationMonday we are highlighting the great work @CatrinPugh does! We loved working with her on the ‘We will not hide' campaign in partnership with @FaceEqualityInt, to see more visit: samebutdifferentcic.org.uk/we-will-not-hi… You can follow Catrin on Insta here: @catrinpugh

We were honoured to meet Sue for #WhatMattersMost, she has since passed away so we are sharing her story this #ThrowbackThursday because we have not forgotten her. Find out more: samebutdifferentcic.org.uk/whatmattersmost With heartfelt thanks to @mariecurieuk & @hospiceuk & all our contributors

“I messaged Guinness World Records shortly before I left" You can read more about the story behind Renee’s incredible world record in #RarityLife magazine here: rarity-life.com #wheelstravel #visiteverycountry #wheelchairtravel #AccessibleTravel #NationalLottery

We've met some incredible people through our work so for #MotivationMonday we're sharing their profiles for you to follow! Meet Clara, an incredible young artist, you can read all about her in #RarityLife magazine: rarity-life.com Follow Clara here: @woods_clara_

“Thank you for the voice you have given me" Please help - we'd love Megan to see the impact of her participation in this project, so please share the article below & Megan’s message across your organisations & networks boredpanda.com/dying-to-be-he…

#ThrowbackThursday & we're sharing a #RarityLife article in Issue 4 featuring Kerry Evans, Disability Liaison officer at @Wrexham_AFC: samebutdifferentcic.org.uk/raritylife Kerry's autobiography, Stronger than you Think, is out now! Congrats @OfficialDLOWAFC @VancityReynolds @RMcElhenney

We loved chatting to sisters & co-CEOs Liz and Sue, you can read ‘The Transformative Possibilities of Gene-silencing medications’ in #RarityLife magazine here: rarity-life.com #Porphyria #CareForRare #MyPorphyria #PurpleForPorphyria #NationalLottery @BPA_Porphyria

We loved working with Liz for our feature in Rarity Life Magazine & are delighted to reshare her story with you for #MotivationMonday: samebutdifferentcic.org.uk/raritylife Follow Liz on Instagram here: @oriordanliz #RarityLife #shareyourstory #breastcancer #nationallottery

For our #ThrowbackThursdaypost we are so pleased to share You’re not Alone.' You can read more about Sharon, whose daughter Sophie had Trisomy 18 and lived for 13 weeks, here: samebutdifferentcic.org.uk/gonetoosoon With thanks to @soft_uk @illumina

In ‘Follow your Dreams: An introduction to the Artist Charlie French’ in #RarityLife magazine we meet him & chat about the motivation behind his beautiful artwork: rarity-life.com #abstractart #disabledartist #downsyndromeawareness #diversityandinclusion

We've met some truly incredible people so we want to highlight & celebrate their contributions with you each week for #MotivationMonday We loved chatting to @lukeadamhawker for #RarityLife magazine: samebutdifferentcic.org.uk/raritylife Follow Luke on Instagram here: @lukeadamhawker