SOFT UK

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SOFT UK

SOFT UK

@soft_uk

SOFT UK provides information and support for those affected by Trisomy 13, Trisomy 18 (Patau's and Edwards' syndrome) and related disorders

United Kingdom Katılım Ocak 2011
223 Takip Edilen590 Takipçiler
SOFT UK
SOFT UK@soft_uk·
We are excited to announce that SOFT UK will be working with Making Families Count on a webinar titled: Hearing the Parent Voice – Caring for a Child with Complex Needs For more details: shorturl.at/qLPQS To book: shorturl.at/yGKUW
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SOFT UK
SOFT UK@soft_uk·
As February draws to a close, we usher in a month of advocacy, education, and unity in support of Trisomy Awareness Month. To find our what activities we will be hosting during TAM 2024, and how you can get involved, follow the link here: soft.org.uk/news/trisomy-a…
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SOFT UK
SOFT UK@soft_uk·
@MicrosoftHelps Hi Ron, I've done that and it seems to have put me into a chat with a chat bot that now seems stuck.
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Microsoft Support
Microsoft Support@MicrosoftHelps·
@soft_uk Hi, there. We received your message regarding locked out of your administrator account. We would like to converse with you for any assistance. It would be best to send us a Direct Message to maximize the character usage in assisting you. Your response is highly appreciated. - Ron twitter.com/messages/compo…
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SOFT UK
SOFT UK@soft_uk·
@Office365 We are locked out of our administrator account, called support but it tells me to visit a link and login, no way to contact anyone for help. Can someone look help us please?
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SOFT UK
SOFT UK@soft_uk·
We will be hosting our Coffee With SOFT Zoom call tonight at 19:30. If you'd like to come along and chat with other members of the community and some of the team at SOFT UK, get in touch. For an invite, email shaun.dowdall@soft.org.uk
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SOFT UK
SOFT UK@soft_uk·
Last call for your SING for SOFT submissions. If you've got a song in you and you'd like to submit a video for our show on Friday, please email it to shaun.dowdall@soft.org.uk #christmassong #music #charity
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SOFT UK
SOFT UK@soft_uk·
A new study at the University of Oxford is trying to understand whether health-related quality-of-life measures capture the lived experience of people with rare genetic conditions and their families. Apply to take part. shorturl.at/zCMS8 #research #trisomy13 #trisomy18
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SOFT UK
SOFT UK@soft_uk·
We'd like to invite you to our Living With Trisomy family call on Tuesday 14th at 19:00 The call is for families living with Trisomy 13 or Trisomy 18. For a call invite, please email sarah.bowell@soft.org.uk #familycall #trisomy13 #trisomy18
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SOFT UK
SOFT UK@soft_uk·
Happy Halloween! We hope you're doing something exciting and would love to hear what you and your family are dressing up as this Halloween. #halloween #family #festivity
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SOFT UK retweetledi
Baby Loss Awareness Week
Baby Loss Awareness Week@BLA_Campaign·
Today marks the first day of #BabyLossAwarenessWeek. This is the 21st Baby Loss Awareness Week in the UK, and whilst it has grown over time, the aims of the week remain the same. This week we join together to remember our babies, raise awareness, and drive change 💖💙
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SOFT UK
SOFT UK@soft_uk·
Our Baby Loss Awareness Week 2023 page is now live. To share a photo in one of our remembrance frames, or share a quote, saying, poem, or anything else that has helped you, please email sonia.sankoli@soft.org.uk The page can be found here: soft.org.uk/baby-loss-awar… #blaw2023
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SOFT UK
SOFT UK@soft_uk·
We will be hosting a call on Friday 13th at 19:30 during Baby Loss Awareness Week. Please get in contact if you'd like to join and speak with families and members from SOFT UK. Email sonia.sankoli@soft.org.uk for an invite. #babylosswareness #blaw2023
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