SCDAA

🗣️ May is #MentalHealthAwarenessMonth. SCD has obvious impacts on your physical health, but it's important to remember that it can impact your mental health as well. Explore the "I Believe in Therapy Toolkit" to learn more ➡️ buff.ly/nR0o1qg

Want to learn more about clinical trials? Visit the SCDAA Clinical Trial Finder to find research opportunities near you ➡️ buff.ly/ZvxfZdp

Today is #ClinicalTrialsDay 🔬 Elisha is a sickle cell trailblazer who successfully completed a gene therapy trial. Hear her story and learn what the journey through a clinical trial looks like – and why it matters ➡️ buff.ly/jS9qGRc #SickleCellMatters

You're invited! The SCDAA Sickletini Happy Hour is back again this year - and we're excited to return to a virtual format! 🍸️ Learn more ➡️ buff.ly/zbTypWk #SickleCellMatters

⚠️ Last chance to register! SCDAA Summer CHW Training starts on Monday. Learn more and register ➡️ buff.ly/hph23gQ #CommunityHealthWorker #SickleCellMatters

ASH looks forward to tuning in to hear @DrAlexisThompsn, Chair of ASH's Sickle Cell Disease (SCD) Task Force, Dr. Edward Donnell Ivy, Chief Medical Officer of @SCDAAorg , and colleagues from @MinorityHealth discuss the importance of comprehensive care for sickle cell disease.

34 meetings on Capitol Hill. 13 SCDAA member organizations in D.C. Two days of incredible impact 🫶 Thank you to everyone who joined us last week for our 2026 Advocacy Days! #BeASickleCellAdvocate #SickleCellMatters

Save the date to help SCDAA drive change and enjoy a day out on the green! ⛳️ 2nd Annual SCDAA Golf Classic 📅 September 11, 2026 📍 Douglasville, GA 🕗️ Check in at 8 a.m. 🏌️ Shotgun start at 9 a.m. 🔗 buff.ly/WfUaszh #SickleCellMatters

📰 SCDAA Chief Medical Officer Dr. Edward Donnell Ivy recently spoke with The Baltimore Banner about the promise of gene therapy and the many barriers to accessing treatment. Read now ➡️ buff.ly/WpbTOO3 #SickleCellMatters

📅 P.O.W.E.R. ECHO Training date change‼️Please note that the P.O.W.E.R. ECHO Training session that was previously scheduled for May 14 will now be held on May 28 at 12 p.m. ET. 🔗 to register ➡️ buff.ly/Eyra8Ew #SickleCellMatters

Register today! The NHLBI and SCDAA are excited to partner and host a free community forum open to the public. “Research That Heals: Partnering with Patients to Transform SCD Care” will be held June 25-26, 2026. Learn more ➡️ buff.ly/LfrkBU0

The 2026 SCDAA National Abstract Competition is open! 🙌 Calling all researchers, community-based organizations, physicians, nurses, social workers & beyond! Your sickle cell research could be presented at the SCDAA Annual National Convention in October ➡️ buff.ly/hXEqIZQ

Are you an individual with sickle cell planning the next step in your education? Check out Pfizer's Sickle Cell Scholarship Program! 📖 🎓️ Learn more and apply ➡️ buff.ly/kCtovdT

SCDAA is pleased to hear this news. We will continue to monitor these developments and look forward to learning more about the results of this study. (2/2)

📰 Breaking News! Novo Nordisk announced that Etavopivat is the first in a new class of drugs to meet both co-primary endpoints in the phase 3 HIBISCUS trial, substantially reducing vaso-occlusive crisis events & improving hemoglobin response in SCD. (1/2) buff.ly/gqTERps

Our final 2025 SCDAA Masterclass (hosted by agios Cheat Codes) is now live! 🎉 Recorded live at the 2025 SCDAA Convention, this Masterclass dives into how sickle cell disease is portrayed in film, TV & beyond. Watch ➡️ buff.ly/LxaLYJa @BloodStrmMedia

What is does it mean to have "radical hope?" Find out from Jolene Swain, MSW, during the next session in our "Being a Radical Community Health Worker (CHW)" webinar series. 📅 May 14 ⏰ 12 p.m. ET 📍 Virtual 🔗 buff.ly/Z4VXJRH #SickleCellMatters

📅 Mark your calendar: The SCDAA 2026 National Abstract Competition opens on May 1! Do you want a chance to present your work at the SCDAA Annual National Convention in October? Gather your research together for the 2026 abstract competition! Stay tuned for more details.

P.S. - have you checked out our redesigned Member Finder on the new website yet? This updated layout makes it easier than ever to find your local SCDAA member organization. Try it out today ➡️ buff.ly/y1PuPqh

We are excited to share that three community-based organizations have recently joined SCDAA! Please help us welcome the Louvenia D. Barksdale Sickle Cell Anemia Foundation, The Riley Foundation for Sickle Cell Disease and the Sickle Cell Association of Kentuckiana to our team!