SCDAA

It's been a busy start to the year in the sickle cell advocacy space! Check out our March SCD Advocacy Update to learn more about the 2026 federal funding package passed by Congress in February, what we're focusing on for fiscal year 2027 and more ➡️ buff.ly/JV4SeHy

📣 Today, SCDAA is excited join @fulcrumtx and @medicalert in announcing our three-year collaboration aimed at enhancing a key aspect of sickle cell management: expediting care during a pain crisis. 📰 Read more ➡️buff.ly/nyKPrSZ

The Sickle Cell Disease Association of America, Inc. (SCDAA) mourns the loss of KiKi Shepard, an actress and dedicated sickle cell advocate, who passed away recently at the age of 74. Read more ➡️ buff.ly/ckEG9AG

If you missed our first free P.O.W.E.R. ECHO Community Health Worker (CHW) Training session earlier this month, our next event is just around the corner! 💡 The Difference Between a CHW & Social Worker 📅 April 9 ⏰ 12 p.m. ET 📍 Virtual 🔗 Register: buff.ly/aqUdDKD

Have you explored our new website yet? 💻️ Head over to sicklecelldisease.org to check it out and make sure to take a look at our updated and expanded resources for individuals with SCD and their caregivers. 👀 Explore our resources ➡️ buff.ly/pv0tyPI

Mark your calendar 📅 Next Thursday, SCDAA President and CEO Regina Hartfield will join other expert panelists for a bipartisan briefing on sickle cell disease hosted by Fulcrum Therapeutics. Learn more and register ➡️ buff.ly/JViMJKV

Did you know that March is National Kidney Month? People with sickle cell disease are more likely to develop kidney complications. Learn more about how sickle cell disease impacts the kidneys ➡️ buff.ly/6S5Cpy9 #NationalKidneyMonth #SickleCell

We encourage you to take some time today to explore the important work being done by our friends @SickleRED20. Learn more ➡️ buff.ly/p6DNyZy #SickleCellMatters

Today is #InternationalWomensDay! 🫶 SCDAA honors the courage, resilience, and commitment of women within the sickle cell community. From warriors and caregivers to researchers and health care professionals, your contributions are invaluable.

What does it mean to be a "radical CHW?" 💭 Find out next week during the first event in SCDAA's brand new free 2026 P.O.W.E.R. ECHO Training Series! 🔗 Register ➡️ buff.ly/fC1mc4X

Thank you for supporting us on Rare Disease Day this year. 🫶 Because of you, this campaign helped strengthen the work that supports the sickle cell community all year. If you missed participating in this year's campaign, it's not too late to give ➡️ buff.ly/IyDKVeV

Today is Rare Disease Day! 📣 Thanks to supporters like you, SCDAA continues to advocate for access to care, educate providers and caregivers, and strengthen community-based support across the country for sickle cell warriors. Support our mission ➡️ buff.ly/IyDKVeV

Our final #SCDHistoryHighlight of 2026 explores the life and career of Dr. Charles Drew, a pioneering physician whose work paved the way for our modern-day blood banking system. Read more ➡️ buff.ly/WeakyZu #BlackHistoryMonth

Recent progress in #sicklecell treatment has brought new hope. But progress alone doesn't guarantee access. As #RareDiseaseDay approaches, help us ensure that advances don't leave our communities behind. Support SCDAA’s work ➡️ buff.ly/IIj57Ha

What do sickle cell warriors need to know about vaccines? 💭 SCDAA chief medical officer Dr. Edward Donnell Ivy shares insight from a recent Medical and Research Advisory Committee statement on the topic. 📽️ Watch the video to learn more ➡️ buff.ly/5c6iel4

For this week's #SCDHistoryHighlight, meet Dr. Marilyn Hughes Gaston, whose dedication and passion for health care led her to pave the way for equity. Dr. Gaston’s special focus on SCD helped shape our understanding of the condition and its management ➡️ buff.ly/LIVCDyq

Awareness matters. But so does what happens next. This Rare Disease Month, we’re showing exactly how support turns into action. Support SCDAA ➡️ buff.ly/IIj57Ha

SCDAA is proud to announce that we have earned a 2025 Candid Gold Seal of Transparency! 🏅 We encourage you to view our profile to learn more about our organization ➡️ #SickleCellMatters" target="_blank" rel="nofollow noopener">buff.ly/TMWaY9x#Sickle…

In 1972, Dr. Scott founded the Howard University Center for Sickle Cell Disease, which continues to conduct research & provide care today. Dr. Scott passed in 2002. He changed the SCD landscape, and we owe so much of our capability to treat and understand SCD to his work. (7/7)

Dr. Scott was also a fierce advocate for sickle cell disease. His advocacy played a large role in the federal government’s passing of the Sickle Cell Anemia Control Act of 1971, which ensured nationwide funding for SCD research & treatment. (6/7)

Our next #SCDHistoryHighlight shines a light on the life and legacy of the "father of sickle cell disease" - Dr. Roland B. Scott, whose groundbreaking research and dedication to patients during a time of intense discrimination paved the way for progress in SCD treatment. (1/7)