SCETIDE

373 posts

SCETIDE

@SCETIDE

Registry of Stem Cell Transplantation for Primary immune deficiencies in Europe

Necker Hospital, Paris Katılım Ocak 2014

30 Takip Edilen163 Takipçiler

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IPOPI@ipopi_info·11 Tem

Last chance to register! 👇 We are starting this afternoon at 15h CEST.

IPOPI@ipopi_info

Ready for a challenge? Let’s explore the complexities of the PID field! 🔍 Join tomorrow's #IPOPIHardTalks webinar with Dr Leif Hanitsch 🇩🇪 & Dr Joshua Milner 🇺🇸 to discuss the link between primary #immunodeficiencies and #allergies. Register now: bit.ly/3Px5T88

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Nizar Mahlaoui M.D., M.P.H., Ph.D.@MahlaouiNizar·16 Haz

New @CEREDIH article! Impact of graft function on #healthstatus & #HealthQualityOfLife in 112 very long-term #survivors who received an #HSCT for #PID #IEI pubmed.ncbi.nlm.nih.gov/37321401/ #PrimaryImmunoDeficiency #RareDiseases @SCETIDE @ESIDsociety @Filiere_MaRIH @APHP @hopital_necker

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SCETIDE@SCETIDE·5 Eki

@ecmorris @_IEWP @ESIDsociety @theukpin @TheEBMT @CEREDIH as well ;-) #ePIDemiology

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Prof Emma Morris 💙@ecmorris·5 Eki

@_IEWP @ESIDsociety @theukpin @SCETIDE @TheEBMT

Prof Emma Morris 💙@ecmorris

Allogeneic stem cell transplantation compared to conservative management in adults with inborn errors of immunity ashpublications.org/blood/article-… Fab 🙌🇬🇧 🇫🇷 collab - case matched retrospective study - HSCT significantly reduces PID related events. Longer FU required to show OS benefit.

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Prof Emma Morris 💙@ecmorris·5 Eki

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IPOPI@ipopi_info·5 Eki

Immunoglobulins are #EssentialMedicines for patients with primary immunodeficiencies recognised by the @WHO. Collecting plasma is more important than ever to make sure plasma-derived medicines are available for patients in need. #Plasmasaveslives #IPAW2022

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Association des Internes en Hématologie@AIHemato·31 Ağu

Journée DÉFICITS IMMUNITAIRES PRIMITIFS et HÉMOPATHIES INDUITES PAR LES INFECTIONS VIRALES CHRONIQUES de la Société Médicale des Hôpitaux de Paris #SMHP - Gratuite pour les internes - Vendredi 23 septembre 2022

Association des Internes en Hématologie tweet media

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Nizar Mahlaoui M.D., M.P.H., Ph.D.@MahlaouiNizar·24 Ağu

New article😃in #BMT @NaturePortfolio on Curative allogeneic #HSCT following #ReducedToxicityConditioning in #YoungAdults with #PrimaryImmunodeficiency #PID #IEI reporting our experience of @hopital_necker @APHP @InstitutImagine @CEREDIH @SCETIDE @TheEBMT @ESIDsociety #Frontiers

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Institut Imagine@InstitutImagine·20 Eki

Le projet « Imagine La Suite » a pour but de faciliter l’#insertion socio-professionnelle des jeunes adultes touchés par une #maladie #génétique rare et vivant avec un #handicap. Un grand merci à la Fondation Sycomore pour son implication dans ce projet ! bit.ly/3BUepEO

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IPOPI@ipopi_info·8 Haz

Looking forward to this discussion on 'Transition Care-Exploring the Journey' starting in 2h! You can still register: ipopi.org/webinar-reg/ @MahlaouiNizar from @lasuite and Dr Dalm from @ErasmusMC will take on this journey and share best practices #PID #AdultCare #AYA

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Nizar Mahlaoui M.D., M.P.H., Ph.D.@MahlaouiNizar·11 Haz

This is a great meeting to attend to if you are interested in #PrimaryImmunoDeficiencies #PID #InbornErrorsImmunity #IEI

IPOPI@ipopi_info

Great news from #IPIC5 - Registration *and* Abstract submission now open! Secure your place & send your contribution to the field of #clinicalcare of #primaryimmunodeficiencies #InbornErrorsofImmunity #IPIC5 will be in Portugal, April 27-29, 2022 ipic2021.com/reg-and-abs-no…

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IPOPI@ipopi_info·25 Ağu

IPOPI's next Clinical Care Webinar is in 2 weeks and will explore a hot topic - PID and Vaccines. The guest speaker is Prof Cunningham-Rundles from @MountSinaiNYC Register now to guarantee your attendance ipopi.org/ipopi-clinical… See you on Sep 9th at 15:00h UK time!

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IPOPI@ipopi_info·21 Ağu

IPOPI is excited to anounce that the 3rd Asian PID Meeting is taking place online on September 18-19! We will have a medical education day and a patients meeting day to address the region's #PID priorities. If you'd like to register give us a shout!

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MaRIH@Filiere_MaRIH·16 Mar

Pour les patients atteints de déficits immunitaires, lettre d’information du @CEREDIH et @AssociationIris : ceredih.fr/uploads/COVID1… Pour tout autre information : • Ministère de la Santé et des Solidarités solidarites-sante.gouv.fr/soins-et-malad…

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Nizar Mahlaoui M.D., M.P.H., Ph.D.@MahlaouiNizar·3 Mar

🚩#URGENT #Coronavirus : Mise à jour de la note d' #Informations + #recommandations à destination des #soignants @CEREDIH + patients #DIP #DéficitsImmunitairesPrimitifs @AssociationIris 👉frama.link/AJgCqkdf @hopital_necker @APHP @Univ_Paris @InstitutImagine @Filiere_MaRIH

Nizar Mahlaoui M.D., M.P.H., Ph.D. tweet media

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Nizar Mahlaoui M.D., M.P.H., Ph.D.@MahlaouiNizar·19 Şub

Thank you ⁦@petitsprinces⁩ for their article on our #Transition #Care #program for #AYA #RareDiseases #ChronicDiseases from #Pediatrics to #AdultCare @LaSuiteNecker ⁦@hopital_necker⁩ ⁦@APHP⁩ ⁦@piecesjaunes⁩ ⁦@FondationHPHF⁩ ⁦@InstitutImagine⁩

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Association IRIS@AssociationIris·12 Şub

La greffe de moelle osseuse peut être un #traitement curatif pour certains patients atteints de #DIP. Plus y aura d'inscrits sur la liste, plus ils ont de chance de trouver un #donneur compatible ! #Don #déficitimmunitaireprimitif #maladiesrares

Agence de la biomédecine@ag_biomedecine

#dondemoelleosseuse L'un est donneur, l'autre receveur : découvrez les #témoignages touchants de Jean-Charles et Laure. L’occasion de rappeler que seuls 35% des donneurs sont des hommes et de lever les freins sur ce #don 💪 allodocteurs.fr/se-soigner/gre…

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IPOPI@ipopi_info·19 Şub

Transition from paediatric to adult medical care is a special period of adjustment. Thank you all that help #PID patients and #RareDiseases patients through this fase. @LaSuiteNecker @symesandrew @MahlaouiNizar

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IPOPI@ipopi_info·11 Şub

IPOPI has issued a statement on the current epidemic of the new #Coronavirus. #primaryimmunodeficiency patients should be cautious by keeping track of developments in their region and reduce exposure and transmission. bit.ly/PID_Coronavirus

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IPOPI@ipopi_info·18 Ara

IPOPI's 13th IPOPI EU PID Forum was a success and the report is now online! Full details on the Winter e-News article e-news.ipopi.org/ipopi-13th-pid…

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Nizar Mahlaoui M.D., M.P.H., Ph.D.@MahlaouiNizar·18 Ara

⁦@hopital_necker⁩ #LaSuite programme gets #PrixGalien2019. Thank you ⁦@ipopi_info⁩ #eNEWS for your support. Proud to be #Chairperson of your Medical Advisory Panel. Congratulations on your hard work + dedication for #PID patients around the 🌍 e-news.ipopi.org/hospital-necke…

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Keşfet

@CEREDIH @ESIDsociety @Filiere_MaRIH @APHP @hopital_necker @ecmorris @TheEBMT @WHO