SCTPN

Call to Action: Become a Champion for Those Whose Blood Carries the Stars bit.ly/43CfKPt. #SickleCellDisease #globalcommunity #BecomeaSCDChampion

Happy Black History Month Queens! Honored to work alongside you all and continue to encourage and inspire our next generations of leaders. We are our ancestors wildest dreams and their hopes and aspirations! We are #BlackGirlMagic. A blessing and honor to serve with my Sisters in Government. #SheReady #BHM ❤️💚🖤

BREAKING: Watch the exact moment Fox News reveals to their audience that Vice President Kamala Harris has completely eliminated Donald Trump’s lead in the polls. This has the Trump campaign in pure panic. Retweet so all Americans see this.

@RaisingHopeInt2 #Congratulations @RaisingHopeInt2 & Isaac Okello for another successful conference. RHIF does such amazing work educating and advocating for #SCD.

Kudos to the fantastic team at RHIF for putting together an amazing 3rd Annual Uganda Sickle Cell Convention! Your efforts are paving the way toward a sickle cell-free generation. Great teamwork, significant milestones, and a lasting impact! #ASCC24 #RHIF #FutureWithoutSickleCell

Day 2 of the @SCTPN 2024 World Sickle Cell Day Therapeutics Conference is under way. Join us on Whova.com for evocative conversations on all things #SCD and #raredisease. - via #Whova Event Platform

To Register for the New York blood drive go to nybc.org/sctpn  Group #71574 #sicklecell #HealthAwareness #BloodMatters

On this week’s episode, Dr. Z and Dr. C sit down with Dr. Alex Glaros, a rising star in sickle cell disease, who shares his story about his journey to become a pediatric hematologist. Listen here: bloodstreammedia.com/cheat-codes-ep…

Young adults with #SickleCell with a delay of over six months, were twice as likely to be hospitalized than those who switched in under two months. sicklecellanemianews.com/news/gap-switc…

To Register for the New York blood drive go to nybc.org/sctpn  Group #71574 For information on how to support efforts against Sickle Cell Disease sctpn.net #sicklecell #information #SickleCellAwareness #HealthyLiving

@statnews reveals a disturbing trend of #SickleCell patients pressured into sterilization. These women deserve bodily autonomy and informed choices about their #reproductivehealth. #HealthcareEquity #coercivecare #coercivesterilization #STATnews Series: statnews.com/2024/05/21/sic…

Everyone in the sickle cell community we want to offer you a chance to participate in our World Sickle Cell Day Talent Show. Please submit a 4 minute video. Our extended deadline is 6/12 @ 11:59 pm ET. Any talent is welcome! docs.google.com/forms/d/e/1FAI… #sicklecell #sicklecellevent

@DocTeeLee Thanks @DocTeeLee for sharing this moment in history. #CTAW

#DYK International #ClinicalTrialsDay commemorates the day when James Lind started his famous #clinicaltrial on scurvy on May 20th, 1747. This clinical trial laid the foundation for modern clinical research. #ClinicalTrialsAwarenessWeek #CTAW #CTD2024

See the Volunteer Application here bit.ly/sctpn_volunteer.  The application has a list of committees to choose from. #sicklecell #WellnessJourney #HealthyLifestyle #WellnessTips. #VolunteerWork #volunteering #MedicalScience #CollegeStudents

JCRC quick facts you need to know about Sickle Cell Disease (SCD). #ACentreOfExcellence

On this #NationalDNADay, we celebrate the advancements in #geneticresearch that shape our understanding of inherited conditions like #SickleCellDisease (SCD). We also honor the resilience of those living with SCD & the incredible strides made in education and awareness of #SCD.

Scholarship assistance is available for students living with sickle cell. Visit TogetherForRare.com/scholarships to learn more and apply. Application period closes May 31, 2024 #sicklecell #pfizer #WellnessJourney #HealthyLifestyle #SelfCareSunday #HolisticHealth #college

Spread the word if you know someone affected by Sickle Cell Disease! Don't miss today's webinar with Ginger Davis, President of SCTPN and Farah Gaillard, NP from Vertex Pharmaceuticals, discussing the patient perspective on gene therapy for #SCD. bit.ly/3vH4p3O

@SCDFoundation The responsibility lies with #healthsystem administrators in providing funding and other resources to establish adult comprehensive programs to complement pediatric programs - for continuity of care. #healthequity #qualityofcare

Young adults living with #SCD face challenges transitioning to adult care, leading to higher morbidity & nonadherence risks. Research highlights patients’ need for improved care coordination and understanding of their evolving needs. Read more here. bit.ly/3UgHcOn

@ScthalN has postponed #CommunityConnections until Sat, April 20, at 11:30 am. We invite you to attend #SickleCellAdvocatesofRochester (SCAR), Sickle Cell Workshop tomorrow Sat, April 13, from 10:30 am to 2:30 pm. Join: us02web.zoom.us/j/84533206170?…

Join us for an informative webinar bit.ly/49ptFcJ featuring Ginger Davis from SCTPN and Farah Gaillard, NP from Vertex Pharmaceuticals delving into the patient experience of gene therapy for Sickle Cell Disease. #sicklecell #Health #HealthTech