SEND Community Alliance

SEND Community Alliance calls for urgent action on COVID SEND failures, following research from SCA co-founders Special Needs Jungle. ow.ly/QfQo50ALrNd

“Chris Packham has pledged to “fight for hell” while threatening the government with legal action if they cut extra support in schools from children with special needs.” express.co.uk/news/politics/…

School census data for SEND out today. First time Down’s syndrome is listed as a primary need. I previously wrote this for @SpcialNdsJungle specialneedsjungle.com/separate-down-… I didn’t anticipate quite how woeful the data relating to Down’s syndrome would be 🤦🏻‍♀️😆

Headline should read that schools are in fact getting better at identifying & recording when children have SEN - exactly what should happen under the law Now we need schools/LAs to have the resources and strong accountability so children's needs are met bbc.co.uk/news/articles/…

@soulcherry64 Credit goes to @CutScenesUK of @SpcialNdsJungle who started it and their team who breathed life into it

Top work everyone who made this happen X

We’ve passed 60,000 —we need 100,000 people to sign to get a parliamentary debate—If you haven’t already, please SIGN and SHARE this post and petition! specialneedsjungle.com/act-now-sign-s… Please Share!

The Down's Syndrome Association is aware that the Government is currently exploring the benefits and challenges relating to Resourced Provisions, units and bases that are attached to mainstream schools, as part of their ideas relating to the reform of the SEND system. We would be keen to understand the experiences of children and young people who have Down's syndrome who have been in these settings. We are keen to develop some short anonymised case studies to support our policy engagement in this area. If your child/young person has been educated in a Resourced Provision, unit or base attached to a mainstream school in the last five years, and you would like to send a short paragraph of text outlining their experiences - both good and bad - please email us at policy@downs-syndrome.org.uk.

Almost 64,000 signatures. Don’t forget that under 18s are eligible to sign too as long as they are a British citizen or UK resident. #ProtectSENDRights

In Amy’s memory: smile, pop a couple of extra swear words into your day, and do not suffer fools

NEW POST: What happened when parents took their councils to court over SEND Safety Valve agreements? Jen Smith, a Bristol parent carer has filed a report to SNJ on proceedings specialneedsjungle.com/parents-took-c…

Shut away & ignored: thousands of disabled adults are at the frontier of the human rights struggle @johnharris1969 "The fundamental issue is not just that we have not acted on this seemingly constant crisis. It's that most of us are not even aware of it" theguardian.com/commentisfree/…

We will ALL fight together to protect the rights of disabled children and young people. They are not up for grabs.

This is beyond ridiculous. Local authorities are failing to comply with legal duties, abusing and overloading the tribunal process (wasting public money) while using this information to lobby for the removal of disabled children’s rights.

In our support group of 67000 members who share 100 posts a day detailing their thoughts & actions we see no evidence of this supposed change in attitude to schooling, we see parents who are desperate to access the support & understanding their children need to be able to attend

Post 16 Transport. The exploited loophole affecting our children’s preparation for adulthood and therefore life chances. #SENDNationalScandal specialneedsjungle.com/true-cost-cuts…

Our attention at IPSEA has been caught by two things recently: a succession of “innovations” by individual LAs, and an inadequate level of scrutiny in Parliament regarding the experiences of children & young people who depend on the SEND system. So, what’s been happening?🧵[1/10]

Excellent article: “Lack of stigma” blamed for rising SEND? We will NEVER be ashamed of our disabled children specialneedsjungle.com/lack-stigma-bl… via @spcialndsjungle

Did you know you can follow SNJ on #WhatsApp? Find ad follow our channel here so you never miss a new post: bit.ly/SNJWhatsApp

Parent carers' mental health is at breaking point. I hear from families DAILY who have disabled children out of school, refused EHCP assessments so can't even apply to a schools. Children not accessing healthcare they need. Disabled children have rights. @UKLabour please see us.

I remain concerned that aspects of Bexley’s Safety Valve agreement conflicts with OFSTED’s SEND inspection findings & hear these concerns from fellow SEN parents. I recently joined other MPs to meet @bphillipsonMP & @CMcKinnellMP to raise these issues & will continue to do so