SNAC

A glimpse of SNAC and what it means to have JIA -SNAC Family Educational Weekend: youtu.be/4bIQfaKK3YA via @YouTube

Please share with young people in Scotland who are seen by rheumatology! 🦴The more we know the better we can make the transition experience! #Rheumatology #Arthritis #JIA #Scotland @ScotVArthritis @SNAC_JIA

🔎We are looking for children/young people with diagnosed chronic musculoskeletal conditions to participate in a study exploring lived experiences of #ChronicPain 📱Interested? More info can be found here tinyurl.com/RIPPLE-PIS ✉️Or email Danielle.mountain@manchester.ac.uk

@ripple_study This study may be of interest to some of our SNAC families. See link for more information

We have been overwhelmed by the interest in the #TeapotTrustElsewhereGarden. @ProjGivingBack & the RHS #ChelseaFlowerShow have enabled us to raise awareness of the transformative benefits of #arttherapy for children living with chronic conditions on a national scale.

Join in this research to help build awareness of how we can support young people with juvenile idiopathic arthritis. #JuvenileArthritis

Still time to register for the-#WORDDay2023 webinars! 👇first one is tonight 17th March at 19.00 CET, then also tomorrow 18th which is WORD Day @19.00 CET. Great line up of speakers and look forward to seeing you there!!

#WORDDay2023 .@aplar is hosting an informative webinar for difficult to treat JIA on 18 March Registration is free! For registration, scan the QR code below #WORDDay #paedsrheum

Our #ArtWriteUs exhibition welcomed #Edinburgh MSP @SueJWebber to explore the thought-provoking #JointCreativity work created by young people living with #arthritis. Sue tested our Giant Self-Care Decision Maker with the help of @versusarthritis Head of Scotland @Lauren_BennieUK.

“My classmates say I’m faking it”. This is one of the most heart-breaking things we hear from those with #JIA, caused by a lack of awareness and understanding. Please be aware that conditions like JIA can be invisible & variable. Above all, be kind always. #ThinkJIA #WordDay2023

Talking to children about the artwork they make in #ArtTherapy session gives art therapists the opening they need to get to the heart of a young person's issues. This in turn, can make it easier for a child with a #ChronicCondition to discuss it with their parents and carers.

Eve will close the session sharing her perspective as a doctor and also telling us all about @WORDDay_org

Pam Duncan-Glancy MSP, Convener of @ScotParl #Arthritis and Musculoskeletal Conditions CPG stopped in at our #ArtWriteUs exhibition today in #Edinburgh. Thank you for supporting our work @GlasgowPam and advocating for children, young people & adults with #arthritis in #Scotland.

Our Joint Creativity #ArtWriteUs Exhibition is now open at the Out of the Blue Drill Hall in Edinburgh. Come along and see the artwork and creative writing by our young artists with arthritis and related conditions. The exhibition is open from 10am- 5pm until Saturday

Come and see our TWO #exhibitions, #UnProcessed by @ootblueprint artist-in-residence Celeste John-Wood, and #ArtWriteUs, part of the @ScotVArthritis #JointCreativity programme. Free entry. Open daily 10am-5pm until Sat 18th March. bit.ly/3asgiQk

Our Young People and Families Service are hosting an exhibition called Art Write Us as part of their Joint Creativity Programme. The exhibition is open to the public from Tuesday 14 until Saturday 18 March from 10am – 5pm daily at the Out of the Blue Drill Hall in Edinburgh.

Looking forward to this stellar line up of parents and genetics clinical researcher talking about genetics and childhood rheumatic disease! @CAFsociety

Join us Feb 28 to explore the role of genetics in childhood rheumatic diseases with @DrAshM2, Clinical Medical Geneticist at #AlbertaChildrensHospital with a special interest in pediatric rheumatology. Register: bit.ly/3I7ANQD #Genetics #RareDiseaseDay #JA #RareDisease

Date for the diary - This should be a fab exhibition for local SNAC families to visit

Merry Christmas and best wishes for a happy & healthy New Year!

@DrJMcD A fabulous clinician. Thank you. All best wishes @DrJMcD 💜