JAFA

Health Report features 8 yo Nylah talking about her Juvenile Arthritis journey along with her dad. Prof Stephen Colagiuri from @JAFAforkids talking with @normanswan about Juvenile Arthritis & gaps in services in Australia. Health Report abc.net.au/listen/program… via @ABCaustralia

Important support from peak bodies & health groups backing our campaign to reduce delays in diagnosing children with juvenile arthritis. Thanks to all who’ve signed our consensus statement including @PharmGuildAus @RACGP @MedicinesAus @PSA_National jafa.org.au

Children living with painful juvenile arthritis will benefit from a NSW gov’t budget investment of a record $6.9m in more specialist paediatric services. Thanks to @RyanPark_Keira for addressing this need and 2GB’s Chris O'Keefe for great support bit.ly/4b2vn4F

Incredible news, finally kids in NSW have access to services to help them through the pain of Juvenile Arthritis. Been a long road to get to this point. Great work @JAFAforkids @RyanPark_Keira and @cokeefe9 🙌🏼🙌🏼

Why Laura burst into tears every time her own mum hugged her honey.nine.com.au/latest/juvenil…

Sincere thanks @Mark_Butler_MP & Dr Mike Freelander MP for announcing the first major federal gov’t investment in a national program to shorten delays in diagnosing juvenile arthritis. It’s vital to intervene early to prevent children from developing disabilities.

Warmest congratulations on your engagement @AlboMP and Jodie Haydon from everyone in the JAFA Community. We enjoyed spending time with you at The Lodge in 2022 and wish you happiness in the years ahead.

@adampeacock3 @RyanPark_Keira Thank you for doing a wonderful job Nylah!

@JAFAforkids @RyanPark_Keira Nylah getting up in front of a packed room shows her progress. Anxiety for most kids with JIA is a huge issue. The Impact Study further emphasises the need for improvement in the chronic shortage of services across Australia for kids affected. Step by step getting there 🙏🏼

WORD Day, a thread Obviously a bit going on in the world in regards to health, but today is WORD Day – World Young Rheumatic Diseases Day. It’s a topic close to my heart but the aim is to help raise awareness about the early diagnoses of rheumatic diseases in young people.

@JAFAforkids Huge day for the @JAFAforkids cause with findings of an Impact Study released at NSW Parliament House. It contextualises the huge burden for families, and the kids themselves, and thanks to MP’s inc. @RyanPark_Keira for their time. Nylah handed a thank you to the minister 1/2

Our national IMPACT report has identified major inequality for children with juvenile arthritis who suffer pain & wait a year for diagnosis. Thanks to @RyanPark_Keira & @DrJoeMcGirrMP for launching the report & working for a better future for @JAFA kids bitly.ws/33Bje

Delays in juvenile arthritis diagnoses causing kids to live in pain abc.net.au/news/2023-11-2…

New AIHW report reveals up to 30k children & young adults in Australia live with juvenile arthritis, with a rise in hospitalisations and workforce shortages. More info: bit.ly/3ChbE26 #JuvenileArthritis #JAFA @aihw @ArthritisAust @flipperm

Met with NSW Health Minister Ryan Park discussing the shortage of paediatric rheumatology professionals. He's looking into the consumer-focused issues & seeking solutions. Encouraged by the positive dialogue More updates soon. Thanks Minister Park! @ryanpark_keira @adampeacock3

#JAFA grateful for $800K federal funds for 2023-24. Focused on boosting awareness and early diagnosis of childhood arthritis & rheumatic diseases. Aiming to lessen pain & disability. bit.ly/3LZAWX0 @gedkearney Dr Mike Freelander @adampeacock3 @DrJaneMunro

📣 In #Tasmania: No paediatric rheumatologist = costly trips to Melbourne. JAFA founders Ruth and Stephen Colagiuri with @polley_helen & @janiefinlay (📷 Apr 28) advocate for better care for kids with arthritis & rheumatic diseases 📷#ArthritisAwareness #JAFA

Kate woke to the sound of her daughter screaming in agony honey.nine.com.au/latest/juvenil…

Great work raising awareness about your daughters' juvenile arthritis @adampeacock3 and @MichaelChammas. And thanks for spreading the word about what JAFA is trying to do for these kids.

Wow!! Big news for kids and families living with juvenile arthritis. Thanks to everyone at @WestsTigers #juvenilearthritis. #jafa #juvenilearthritisweek weststigers.com.au/news/2023/03/2…

@polley_helen @Louise_Pratt @gedkearney @Painaustralia @ArthritisAust Thanks so much for your support Senator Polley.

Juvenile arthritis affects 6,000 Australian kids. I was inspired to talk to these strong 💪🏻 and resilient children this morning who live with pain everyday @Louise_Pratt @gedkearney #auspol #politas @Painaustralia @ArthritisAust

Nylah (middle) couldn’t make it this morning to Canberra but caught up with some friends and their siblings on the weekend. @JAFAforkids helps connect families affected by JA, sharing experiences is vital.