Sarah Barker

4.5K posts

Sarah Barker

Sarah Barker

@SarahBarx035

#SevereME #ME ,wildlife, soil,fauna,flora,

Katılım Nisan 2024
1.5K Takip Edilen702 Takipçiler
Sarah Barker
Sarah Barker@SarahBarx035·
I took the gamble & bought a 6 wk old Labrador pup . She was an impulse buy & i knew i would struggle looking after her . She has been an absolute angel . She understands im ill & is unbelievably intuitive & caring . Ive been so lucky & has made my life my home & aided my health.
Babs@halfateaspn

Being so severely ill that you can’t take care of yourself, let alone a pet, is heartbreaking, because I think my quality of life would be greatly improved if I had a little cat to cuddle with.

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kirbs 🦋
kirbs 🦋@kirstymecfslife·
My parents aren’t my care givers I live with them but they don’t do more for me than my healthy sibling. Immediately says “it must be hard also for your parents still Living at home” 🤡 parents who slam doors put tv really loud mock noise sensitivity crashes , taunt me. Do nothing to help me get better just keep me from being homeless that’s fucking it. Which I know some have it worse but the bar is low. So fucking hard for my dad that I lie in my room and he never sees me then gets mad me if I ask if they can be slightly less loud. 🖕🏻
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Sarah Barker
Sarah Barker@SarahBarx035·
@kirstymecfslife I almost bedbound with severe ME ,only got up / sat up for 4 hrs a day & I noticed that when the cleaner vacuumed landing upstairs every Monday it took me until Thursday to recover .So I asked my mother to stop her because it wasn’t necessary , but no she ignored me as usual
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Sarah Barker
Sarah Barker@SarahBarx035·
@TanteRos I thought it was talking is exercise until I had HELP Aphaeresis & my blood was thicker whenever I heard quiet chattering . So I presume we might be reacting just to sound from our own voices & the sound people we talk to also ,so thinking ,seeing listening & sound sensitivity ?!
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xxx ROSE xxx
xxx ROSE xxx@TanteRos·
Y'day I talked to my gardener for 25mins, which is over my 15min can-do limit. Now I am aching all over. My hands hurt from opening a bottle of mineral water,all the other hurting is just from talking / cognitive exercise. It's ridiculous to have to suffer from just talking #pwME
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Paul Gads
Paul Gads@PaulGadsden82·
Here's Teddy exhausted after playing with a dead spider. I wanted to ask does anyone have a cat that doesn't meow? Rarely ill hear a little merp out of him but that's it. 10 years and he's virtually silent.
Paul Gads tweet media
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Sarah Barker retweetledi
zedsrigil
zedsrigil@sunsweptforest·
Save the starlight pollinators! 🌌 Turn off outdoor lights you don't need after dark 💡Put lights on motion sensors 💡 Switch to warm-toned, less-bright bulbs 🌌 Shield fixtures so light points down, not out
Give A Shit About Nature@giveashitnature

After the bees go to sleep, the night shift pollinators emerge. You may be accidentally killing them. Nocturnal pollinators pollinate hundreds of plant species that bees never touch: night-blooming flowers that evolved specifically for them, with pale petals visible in moonlight and scents that intensify after dark. Then we turn the lights on. A 2017 study by ecologist Eva Knop found that meadows illuminated by artificial light at night had 62% fewer nocturnal pollinator visits than dark meadows, and as a result, produced 13% less fruit. A separate study found moth abundance was halved at lit sites, species richness was more than 25% lower, and 70% of moths near streetlamps flew toward the light instead of the flowers. The problem isn't just that moths die at lights. It's that they get stuck orbiting them, burning energy, never reaching the plants that need them. Your porch light is doing this. So is your floodlight, your landscape lighting, and your neighbor's security lamp. What actually helps: 💡 Turn off outdoor lights you don't need after dark 💡 Put lights on motion sensors 💡 Switch to warm-toned bulbs 💡 Shield fixtures so light points down, not out We already know to plant for pollinators. Now let it go dark enough for them to do their job.

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Adam
Adam@ABrokenBattery·
Professor Chris Ponting on the 116 blood molecule differences his team found in people with #MECFS “This is not a psychological disease” people did not alter their blood molecules just to “spook the psychiatrists”. Clip from @hope4mefibroni 2026
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Adam
Adam@ABrokenBattery·
Dr William Weir on how the influence of Simon Wessely and his colleagues created an overriding tendency among doctors to insist that #MECFS is a psychological disorder. Clip from @hope4mefibroni Collaboration for Change 2026
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Sarah Barker
Sarah Barker@SarahBarx035·
@subversivepsych Who is speaking please ? I’ve mostly blocked this out all my life because I knew it was baloney , but I didn’t think after teaching myself to walk, talk & drive I’d be routinely sent for banned graded exercise therapy Jan2026 no questions asked by NHS GP after decades of neglect
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Dr LG
Dr LG@subversivepsych·
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elle carnitine 🍉
elle carnitine 🍉@elle_carnitine·
The stigma around ME produces an inability in some long COVID researchers to say that some people with LC have ME and that that’s what they’re researching. Instead, they say they’re researching long COVID in general, when their entire cohort has ME
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Sarah Barker
Sarah Barker@SarahBarx035·
@Ramyisback @dario_MEfighter I had severe ME & could only lift half a cup of tea not a full cup bizarrely . My youngest teenage brother noticed I was getting a bit better so gave me an empty bag to lift so I sort of lifted nothing for months first to ease out train /reteach my brain to lift & started lifting
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Ramy2.0
Ramy2.0@Ramyisback·
Solid build dude! You will get back to it. In the meantime focus on pacing, or if you can, gently use elastic bands. I am too weak to work out anymore. I am a shadow of what I used to be. But elastic bands are still doable sometimes. Helps you keep volume, tone with minimal exertion
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Arsen Balls
Arsen Balls@ArsenBalls·
Fucking rain in the Outback, now I have caterpillars bigger than anacondas roaming my yard. Anyone have a spare saddle?
Arsen Balls tweet mediaArsen Balls tweet mediaArsen Balls tweet mediaArsen Balls tweet media
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Sarah Barker
Sarah Barker@SarahBarx035·
@ArsenBalls Booms of moth & kaleidoscope of butterflies 🦋flutter- swarm-rainbow & funniest description rabble of butterflies is a disorderly crowd
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Sarah Barker
Sarah Barker@SarahBarx035·
Is FND being desperately rapidly being brought in / flooded in by NHS & associates to cover up neglect of life threatening illness such as post viral fatigue & ME ? I am diagnosed with irlen syndrome thanks to adult education recognising visual processing disability in ME ! ?
Dan Wyke 🦠➡️🧠🔥@Dan_Wyke

"Over-diagnosis" is a fiction designed to cast doubt on historically under-researched diseases which disproportionately affect women. Patients either meet diagnostic criteria or they don't.

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Sarah Barker
Sarah Barker@SarahBarx035·
@iatrogenicse What a shame , I had a brilliant immunologist back in 1989 who tried to list every food , chemical , disease , zoonosis I’d been in contact with or exposed to & even did food intolerance blood test way back then which now has gone by the wayside .He diagnosed my ME , NHS ignored.
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Alex
Alex@iatrogenicse·
Immunologist says most of my symptoms are from my anxiety, lol yeh mate when I eat I feel like I’m dying but it’s my anxiety all good.
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Sarah Barker
Sarah Barker@SarahBarx035·
@subversivepsych Really noticing the lack of respect from friends & family because I don’t have children or grandchildren . My brother especially does not connect this to having life long ME - he sees it as a personal failure .
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Dr LG
Dr LG@subversivepsych·
Every now and then my mind wanders to everything I’ve lost since 2020. Then I pull it back before I get too upset. The intangible costs are huge. For many of us this has effectively stopped us from being parents. That’s a lot of grieving in itself.
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Sarah Barker
Sarah Barker@SarahBarx035·
Sand Martins arrived last week ,now waiting for family of barn swallows to return to corrugated barn on a hillside .They usually arrive about 24th all the way from Africa . Last year the breeding pair arrived separately , 9 days apart .
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Sarah Barker
Sarah Barker@SarahBarx035·
@amiautoimmunex Wishing you a great ‘ smaller way ‘ 21st Birthday 🎂🍔🍟🍕🧇🍭🥧🧁🍬🍫🍰🍧🍷🥂🧋🥤🥃🍹🍸
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Ami
Ami@amiautoimmunex·
21 today and definitely DID NOT expect my life to look like this. Going to try and enjoy my day in a smaller way, yet I still face constant horrific symptoms with no cure. But I will keep on fighting, we truly deserve better. 🌸 #LongCovid #MCAS #chronicillness
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