Seth D. Ginsberg

Follow me on BlueSky where we can live safer, more meaningful social media lives: bsky.app/profile/seth-d…

🚨 Do you live with severe asthma, chronic rhinosinusitis, and nasal polyps (CRSwNP)? We want to hear what it’s actually like—beyond the surface. If this is your experience, your voice matters. Sharing your perspective can help improve awareness and support for others navigating these conditions. No experience needed—just your honest story. 🔗 research.net/r/AsthmaCRSwNP

Last Month, Something Meaningful Happened in Tokyo - Seth D. Ginsberg (@SethSaidSo) hemostasistoday.com/voices/seth-d-… #BleedingDisorders #GHLF #Health #Hematology #Hemophilia #Hemostasis #HemostasisNews #HemostasisToday #JForum #Japan #Medicine #RareDisease #Tokyo #MedEd #MedX

Black history is not seasonal. Neither is health equity. The voices in this series remind us that Black patients living with chronic illness continue to face: • Medical dismissal • Underrepresentation in research • Communication gaps in care • Isolation in advocacy spaces Equity requires more than awareness. It requires structural change — better communication, peer support, representation, and systems that listen. At GHLF and CreakyJoints, advancing equity is not confined to February. It is woven into our advocacy, education, and community work year-round. Swipe through to hear directly from Black patient advocates shaping this conversation. 🖤 Read the full piece: ghlf.org/advocacy/black… #BlackHistoryMonth #HealthEquity #ChronicIllness #PatientAdvocacy #BIPOCHealth #HealthcareEquity

“I was told, ‘It’s just arthritis. You’ll be fine.’” Rheumatoid arthritis is an autoimmune disease — not “just” joint pain. Beyond inflammation and flares, RA affects mood, mental health, fatigue, and daily function. Here are the 11 moods of RA — and how to cope: creakyjoints.org/living-with-ar… #RheumatoidArthritis #AutoimmuneDisease #ChronicIllness

Today is World Day of the Sick. For millions living with chronic illness, “sick” isn’t a day — it’s daily life. Rheumatoid arthritis. Lupus. Migraine. Psoriasis. IBD. Rare diseases. This day is about dignity, access to care, and listening to patients. Chronic illness deserves: • Timely diagnosis • Evidence-based treatment • Mental health support • Medical validation We see you. We advocate for you. We stand with you. #WorldDayOfTheSick #ChronicIllness #HealthEquity

FOR the sake of YOUR child and the children around them VACCINATE .. Measles does not have to be

@FoxNews This is spin so hard, now I’m dizzy.

RECORD BREAKER: “Melania,” a documentary following the first lady in the 20 days before President Trump’s second inauguration, earns $8 million opening weekend — reportedly making it the biggest documentary debut in more than a decade.

Hidradenitis Suppurativa? Learn more: ghlf.org/hscheck/?utm_s…

Could Your Symptoms Be Hidradenitis Suppurativa? A thread. Learn more: ghlf.org/hscheck/?utm_s… #HidradenitisSuppurativa #hidradenitissuppurativaawareness #skinhealth

Hidradenitis Suppurativa? Learn more: ghlf.org/hscheck/?utm_s…

Happy 2026! 🎉 While some do Dry January, I’m abstaining from “X”. Like alcohol, this place can be toxic in excess, and a break feels like the right way to jump start my mental health for the year. Wishing you success with your resolutions, and I’ll see you (maybe) in February!

“Our voice matters as much as our lab results.” The revised lupus treatment guidelines fully recognize lived experience as essential to care decisions — not secondary to numbers on a page. These guidelines weren’t written about patients. They were written with them. Listen to the full conversation in Remission Possible. Tune in via link in bio or go to: #LupusGuidelines" target="_blank" rel="nofollow noopener">ghlf.org/remission-poss… @JuanaMataa @Looms4Lupus

The lupus guidelines have changed — and that matters for your care. For the first time in over 20 years, the ACR has updated lupus treatment guidance. These updates help open the door to better options when a treatment isn’t working. Hear what this means for patients in our new Remission Possible episode. Tune in: #LupusGuidelines" target="_blank" rel="nofollow noopener">ghlf.org/remission-poss… @ashira_md @Looms4Lupus #Lupus #PatientAdvocacy

@GHLForg is featured in @RepAuchincloss bipartisan press release announcing the Pharmacists Fight Back Act — legislation to rein in PBM practices that raise drug costs and limit patient choice. The release includes comments from @PopovianPharmD of GHLF, on how PBM tactics drive up out-of-pocket costs for patients. Read more: auchincloss.house.gov/media/press-re… #PBMReform #HealthPolicy #PatientAccess

For the first time since 1999, the ACR has updated its lupus treatment guidelines—reflecting new science and lived experience from patients. Learn what’s changed and why it matters in our new episode of Remission Possible. #LupusGuidelines" target="_blank" rel="nofollow noopener">ghlf.org/remission-poss… #lupus

Lupus isn’t one-size-fits-all — and neither is treatment. The 2025 ACR lupus guidelines reinforce something patients have long known: care works best when decisions are shared and tailored to the individual. Your concerns, experiences, and goals belong in the conversation. Learn how patient voices shaped these guidelines in our new episode of Remission Possible. Tune in: #LupusGuidelines" target="_blank" rel="nofollow noopener">ghlf.org/remission-poss… @estelamata @Looms4Lupus #Lupus #PatientAdvocacy

Starting the conversation about inflammation can be hard, but you don’t have to go in unprepared. We created a checklist to help guide your next appointment for your axSpA or PsA so you can keep track of the questions you want to ask your doctor. It is free, confidential, and fillable or printable! Download your checklist and start preparing for your next visit: creakyjoints.org/myquestionguid… #axSpA #PsoriaticArthritis

13 years ago, 20 children and 6 educators never came home from Sandy Hook Elementary School. They were killed in their classrooms in a shooting that changed our nation forever. Since then, the Sandy Hook families have been forced to carry a pain that no one should ever experience. Today and always, my heart is with them.

On this first night of Hanukkah, Michelle and I are praying for the families mourning a loved one after the horrific terrorist attack against Jewish people in Australia. For everyone lighting a candle tonight, may the glow of the menorah brighten your darkest moments. Chag Sameach from our family to yours.

How Do Asthma Biologics Work? In moderate to severe asthma, inflammation in the lungs can be harder to manage. Biologic therapies are thought to help by targeting parts of the immune system that drive that inflammation. This video breaks down what biologics are, who they may help, and how they differ from medications like inhalers. Watch now to understand the science behind asthma biologics and what to expect if you're considering one. Learn more: ghlf.org/asthma/ #AsthmaTreatment #Biologics #RespiratoryHealth