SiCAWRE

Understanding 504 and IEP Plans Event Details: ➡️ Date: August 7, 2024 ➡️Time: 4:00 PM PST ➡️Register Here: bit.ly/scd504andiep24… Join us, @CayenneWellness, @thebstronggroup , Vanessa Rhodes, @SiCAWRE, and @CleverlyChangin

SickleInAfrica invites you to a webinar series in commemoration of World Sickle Cell Day 2024. Theme: Strategies to Improve Outcomes & Quality of Life for SCD in Africa: Success Stories, Embracing Opportunities & Synergistic Collaborations. Register: zoom.us/meeting/regist….

#sicklecell #equitablechange #scdadvocacy

📢Parents and guardians of children with Sickle Cell Disease! King's College is researching experiences and challenges in school settings. Your insights will help schools support families like yours. If you have a child with Sickle Cell, please share your experiences. #SickleCell

@MedStarGUH Please be sure that this will be escalated to the highest level of the hospital administration.

@MedStarGUH When I’ve also been hung up on several times. The patient has been denied a blood transfusion of which his lab indicates he should and can get. And has also been denied the right to have his hematologist, who works @MedStarGUH consulted.

The nurses & Hospitalist @MedStarGUH 4E is once again jeopardizing the care and wellbeing of a #SickleCell patient by refusing to provide appropriate treatment making false accusations and flat out lying to patients and their family. Whatever happened to first do no harm?😡😤

This is not okay. There are real people, black & white, living with the debilitating pain associated with #SickleCellDisease & those who have died from this disease. Please stop making #SCD the punchline in some insensitive, racist joke.

that’s just yankee swap

@zorapanina @nbcsnl Some things are not up for comic relief. The pain and suffering of others is one. Especially in the context health disparities and access to care.

@SiCAWRE @nbcsnl Because it’s SNL, a skit comedy show.

👋🏼 Having a #sicklecell can weigh heavily on a person's #mentalhealth. This is a friendly reminder about our upcoming virtual educational session on Mental Health & #SuicidePrevention on Wed, Dec 20, 2023, from 4:00 - 5:30 PM PST. 🔗 linktr.ee/cwellnessc #EducationForAll

Today fells like a gut punch kinda day 🥺. #LookingForAmiracle🙏🏽

@DocTeeLee I love this.

I’m reminded of butterflies this #ASH23 “We delight in the beauty of the butterfly, but rarely admit the changes it has gone through to achieve that beauty.” ~Maya Angelou

Learn more about @editasmed #SickleCell clinical trials at #ASH23 ir.editasmedicine.com/events/event-d…

@jkw4444 Dr. Julie, I know it’s not easy doing what you do. Know that your patients & #SickleCell community appreciate you, & all that you do. I for one thank you 🙏🏽

My resilience is fading…..

It’s happening! The 3rd Annual Sickle Cell Caregiver Summit is back!!! Be sure to register at scdcaregivers.org/register to hear from Keynote speaker @TheSickleDoc Dr. Shark Azar and more outstanding presenters including the fabulous Elle Cole @Cleverlychangin. #CaregiverSummit

The 3rd Annual #SickleCell Caregiver Summit is back! Join us virtually Nov. 16-19 as we focus on building connections & increasing access to education/resources. FMI & to register visit scdcaregivers.org/register. Scholarships available. #SCDcaregiverSummit23 #SickleCellAdvocacy