Spinal CSF Leak Canada Charitable Organization

🚨We are pleased to share that 𝐚𝐥𝐥 𝐫𝐞𝐜𝐨𝐫𝐝𝐞𝐝 𝐩𝐫𝐞𝐬𝐞𝐧𝐭𝐚𝐭𝐢𝐨𝐧𝐬 𝐟𝐫𝐨𝐦 𝐭𝐡𝐞 𝟐𝐧𝐝 𝐂𝐚𝐧𝐚𝐝𝐢𝐚𝐧 𝐒𝐩𝐨𝐧𝐭𝐚𝐧𝐞𝐨𝐮𝐬 𝐈𝐧𝐭𝐫𝐚𝐜𝐫𝐚𝐧𝐢𝐚𝐥 𝐇𝐲𝐩𝐨𝐭𝐞𝐧𝐬𝐢𝐨𝐧 (𝐒𝐈𝐇) 𝐂𝐨𝐧𝐟𝐞𝐫𝐞𝐧𝐜𝐞 are now available to watch.🚨 🔗  spinalcsfleakcanada.ca/recorded-video…

@AndrewCallenMD Thank you Dr. Callen for this innovation and for everything you do to support patients and advance the field of spinal CSF leaks.

Upright is now live! All data stays on your device and can be shared with your doctor at your discretion. Grateful to the patients who shared feedback during development. apps.apple.com/us/app/upright…

One thing I’ve learned from caring for patients with #spinalCSFleaks is that many already track their symptoms, upright time, treatments, and medications in notebooks or spreadsheets. After seeing this repeatedly (and learning a lot from patients who have been doing this thoughtfully for years), I have built a simple app to help organize that information and generate a clear recovery timeline that can be shared with their doctors. My hope is that making this information easier to track and export may help facilitate better care, and eventually research. Hoping to release #Upright soon and will keep the community posted.

Sacral dural tears in #SIH are probably under-recognized. Why? Because the sacrum often isn’t scrutinized, or sometimes even included in the field of view on routine spine imaging. In a new multicenter @AJNR study we found: • Sacral leaks often produce isolated sacral CSF collections • Image-guided patching can lead to meaningful clinical & imaging improvement • Longitudinal imaging suggests some lesions mimicking “Tarlov cysts” may actually represent chronic or partially healed leaks Encouraging to see multicenter collaboration continue to emerge in SIH imaging/treatment research. ajnr.org/content/early/…

Save the date! Inaugural meeting of the International Society for Spinal CSF leak in New York City, New York, October 17&18, 2026. ⁦@spinalCSFleak⁩ ⁦@csfleakuk⁩ ⁦@SpinalCSFLeakAu⁩ ⁦@SpinalCSFCanada⁩ ⁦@issclsociety⁩ ⁦@PeterGKranz⁩

At Spinal CSF Leak Canada, we are deeply grateful for the many outstanding women physicians advancing research, improving diagnosis and treatment, and caring for patients suffering from spinal CSF leak, including the exceptional physicians on our Medical Advisory Board.

"The Importance of Small Lateral Dural CSF Collections in Spontaneous Intracranial Hypotension: A Radiologic-Anatomic Study" @WouterSchievink @marcelmaya doi.org/10.3174/ajnr.A…

On #InternationalWomenDay, we celebrate the strength, resilience, and contributions of women. To every woman living with #spinalCSFleak, your courage inspires us every day. We see you, we value you, and we remain committed to improving awareness, diagnosis, and care.💜

One of the most common excuses for not using atraumatic needles for LPs: “They cost more” New study shows the opposite is true when you look downstream: • 19 fewer PDPH per 100 LPs • Fewer hospitalizations & blood patches • Net cost savings The cheapest needle is the one that doesn’t cause a leak. link.springer.com/article/10.118…

I am pleased to share that the UCSF CSF Leak Symposium held on 3/20/26 will now be open to patients at a discounted rate. @spinalCSFleak If you’re from the SF Bay area & interested (no virtual option), register: radiology.ucsf.edu/cme/ucsf-csf-l… And for the MDs, don’t forget to register!

Clarity Brain & Spine is officially open in Cedar Park. Now seeing patients in person. More locations in development. Advanced neurovascular and CSF care — delivered with precision and partnership. This is just the beginning. 🧠 #Neurointervention #ComplexCare #PhysicianLed

💓Happy Valentine’s Day from all of us at Spinal CSF Leak Canada.💓 Today, we are sending love and appreciation to our entire community. You are seen. You are valued. You are loved. 💜

📣 Mark your calendar! Interested in how our understanding of spinal CSF leaks has evolved over time? Join Dr. @AndrewCallenMD, Director of the CSF Leak Program, @CUneurorad, as he shares insights. Free to attend via Zoom: ucdenver.zoom.us/j/98542489491

🔗rdcu.be/e3iNE

🚨🆕 🇨🇦 PaperAlert CSF-venous fistula diagnosis and combined image-guided rescue approach: when imaging saves a life. Kinsara, R., Kapadia, A. & Meng, H. Intensive Care Med (2026). doi.org/10.1007/s00134…

A recent patient story from @Sunnybrook Health Sciences Center highlights how serious #spinalCSFleak can be and shows the importance of a multidisciplinary approach in the treatment of this condition. Read Frank story: shorturl.at/MFnav

"Multiple Synchronous CSF-Venous Fistulas in Spontaneous Intracranial Hypotension: A Multi-Institutional Case Series" doi.org/10.3174/ajnr.A… @AjayMadhavanMD

Some patients suspected of spontaneous intracranial hypotension have small innocuous looking dural outpouchings on myelography. This study shows that such outpouchings invariably represent a CSF leak, offering new treatment options ⁦@spinalCSFleak⁩ pubmed.ncbi.nlm.nih.gov/41539719/

I’m honored to be co-chairing the UCSF CSF Leak Symposium with @vinil_shah on March 20, 2026 in San Francisco. A full-day CME course on spinal CSF leaks—advanced imaging, targeted therapies, expert panels. Register 👉 radiology.ucsf.edu/cme/ucsf-csf-l… @UCSFimaging #CSFLeak

I am super excited to speak next week at the 8th annual @The_ASPNR (#ASPNR26) meeting on pediatric CSF leaks. There are unique differences of CSF leaks in the peds population compared to adults, with specific nuances for myelography & treatment. Here’s just a sneak preview!