Cure TBM Foundation (Tracheobronchomalacia)

Imagine feeling like you’re suffocating — but no one can see it.
That’s what it’s like to live with Tracheobronchomalacia (TBM).
It’s misunderstood.
And it’s real. At Cure TBM, we fight 🦋 Learn more or share your story at CureTBM.org
#CureTBM #EveryBreathMatter

@MaritKolby @GeorgierespPT @DoctorChrisVT I agree with this 100 percent.

The acknowlegdement that ultra-processed diets is the problem could be the first important step towards change in the UK and elsewhere. Listen to these podcasts on the evidence, gathered for the House of Lords inquiry. @DoctorChrisVT parliament.uk/business/lords…

Well done! Thank you for your incredible efforts!

We are shouting a HUGE congratulations to Dr. Richard Lazzaro. Thank you for your tireless commitment to our #TBM community. Congratulations! youtu.be/XHEiRADY-Fs?si…

#ACSCC2023 @ShawnIzadi @BCHPedSurg @TbmCure great talk on our new tapering tracheoplasty for tracheomalacia with wide posterior membrane

@BIDMCSurgery @BIDMChealth @bethisraellahey @SidhuGang @harvardmed Well deserved! Congratulations!

Giving a big congratulations to Dr. Sidhu Gangadharan on his appointment to Professor of Surgery at HMS! 🎊 #BIDMC #BILH #HMS #harvardmed #surgery #professor

Incredibly grateful @eugene_shostak and @oliverchowMD @WeillCornell for their knowledge and skill they poured out to our#TBM pts tonight at a virtual education night. Our patients are so desperate to be understood. Thank you for being a wonderful center of excellence in TBM!

With a grateful heart, we sincerely Thank our Volunteers who serve endlessly in our support groups. They are the reason out patients feel so welcome. So nice to celebrate tonight and honor them.

@CNN Survived flesh eating bacteria once. Forever altered my life Horrid disease and if you’re lucky enough to survive your blessed with the non stop PTSD from it

The CDC has issued a national health alert to warn clinicians to be on the lookout for infections with the flesh-eating bacteria Vibrio vulnificus cnn.it/3r5Fe8F

We are so proud of CURE TBMs very own Isabella Valentini. Isabella graduated from The University of Georgia with a bachelors of science in Nutritional Sciences. She is taking a gap year while applying to medical school and working in a Pediatrician’s office.

@SidhuGang @BIDMChealth He for sure had a massive team of the most compassionate and skilled people that exist. We’re forever grateful for @BIDMChealth

@TbmCure 🥹 Seeing this transformation is so inspirational. What a privilege to have been part of the massive team @BIDMChealth that helped with this. I literally just was speaking to some ICU folks today about seeing awesome pics like this of him now and then.

This is Mike in these current pictures. He was living on ECMO for months due to #TBM Everyone lost hope but @SidhuGang He stayed the course. Mike’s now all over the country w/ other TBM patients who his wife bonded w/ during those months of hell. Cheers to you Dr.Gangadharan !

We are beyond thrilled to support this very important research. Thank you for working so hard to improve the lives of those suffering from#TBM

Such excitement to see progress for such a debilitating disease.

Meeting of the greatest minds in the #TBM world. So thankful.

#tracheobronchomalacia #TBM #airwaycollapse #EDAC #tracheomalacia #bronchomalacia

Next month I have a speaking engagement with a new TBM center on what my why is behind CureTBM. This story came out on this day 7 years ago. Much has changed with my health since then but this remains my why. To prevent others from enduring this. wcvb.com/article/woman-…

Congratulations Britney. We are so proud of you and appreciate you so much. #TBM #TBMCollaboration #CureTBM