Team Rowan

💥💥💥we have a post available for a personal assistant for caoilte. 💥💥💥 37.5hrs a week durning school term time & 20hrs during school hoildays dutys include taking caoilte to and from school suctioning trachy... facebook.com/21191018564529…

We have received an updated map from Biogen which shows the latest status of global access to nusinersen.  You can view the document on our website at  bit.ly/2z84e3o

Take a look at our updated 'Support in Employment' factsheet! Thanks to @HoganLovells this factsheet now includes information on your rights as an employee living with a neuromuscular condition as well as detailing available support and how to access it: qoo.ly/qnh4j

Exciting news as the USA adds SMA to its nationwide newborn screening program: curesma.org/news/nbs-updat… Now that just needs to be implemented by the individual states. @smatrust @SMAEurope

We’re delighted that on 12 July, our group of Young Disabled Campaigners @MD_Trailblazers will be hosting an evening reception at the @HouseofCommons to mark their 10 yr anniversary, seeing 100 attendees join forces to hear about their work. Find out more: qoo.ly/qkezu

We are pleased to be involved with a new project to estimate the costs and benefits of providing young disabled children under 5 years with powered mobility aids. The project is being led by Bangor University and you can find out more at bit.ly/2IVLJ1F

Supporting all the fantastic runners 1km from the end of the @LondonMarathon especially @smatrust runners ❤️

Who’s ready for my second Schools Fitness Week 😊🙌🏻 Everyday next week at 10am (UK time) I’ll be doing a live workout for kids on my @YouTube channel 😊💪🏼 Please share and help spread the word thebodycoach.com/blog/body-coac…

Our Scientific Research Correspondent @J_N_Slayer has written a report about SMA Support UK at the International Scientific Congress on SMA 2018. More than 100 laboratory & clinical SMA studies were presented by researchers from across the world: bit.ly/2EZByMw

This awesome fella ran 34.4 ultra Trail miles yesterday fundraising4sma for the @smatrust he’s raised just under £800! Thanks so much Steve!!! justgiving.com/fundraising/st…

💚💚Steve 💚💚 twitter.com/smatrust/statu…

Fantastic effort for #TeamRowan 💚 thanks @WakeyTriClub and juniors x twitter.com/smatrust/statu…

It's @TheXFactor final time on #ITV. This year’s winner will be raising vital funds for @tog4shortlives and @SSChospices with their Winner’s Duet 💜

PhD project available in my lab in Aberdeen (UK), aiming to work out the link between: ubiquitination, VEGF, hypoxia and defective angiogenesis in Spinal Muscular Atrophy: edinburghneuroscience.ed.ac.uk/project/2018-S… @SMAEurope @CureSMA @SMAresearch

Whoop! Go @SrinMadipalli fantastic news #Congratulations twitter.com/bnsjanecampbel…

Great news 🎉👏🏻 twitter.com/socialmedwork/…

New wristband challenge to get Leeds primary school children active. Read the blog & get involved! childfriendlyleeds.wordpress.com/2017/11/09/new… … via @Child_Leeds @3030wc @EducationLBU

Please support our campaign to #FastTrack access to treatments by writing to your parliamentarian. We have template letters on our website: qoo.ly/j66u6

Huge thanks to all who got involved during #BabyLoss Awareness Week 2017. Read about stats/info from the week: bit.ly/2ykWIkP