@TheChronicCollaboration

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@TheChronicCollaboration

@TheChronicCollaboration

@TheChronicColab

A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.

Katılım Ağustos 2021
1.7K Takip Edilen3.8K Takipçiler
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@TheChronicCollaboration
@TheChronicCollaboration@TheChronicColab·
We've decided that it's time to properly call it a day. We've tried our best with the Collaboration and wish all future campaigns the best. Please continue to support @TheCanaryUK where there will be coverage of #ChronicIllness & updates. Our accounts will close on Sunday 👇
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@TheChronicCollaboration
@TheChronicCollaboration@TheChronicColab·
For the record, we offered Sarah the chance to watch the interview before it was published, and spoke with her on the phone before publication as well.
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@TheChronicCollaboration
@TheChronicCollaboration@TheChronicColab·
Re. our interview with Dr William Weir, as people are asking: After a comment from Maeve's mother, Sarah, we decided to take the video down as per her request (see image) below. We don't want to cause anyone any distress, hence its removal. Sorry that people are disappointed.
@TheChronicCollaboration tweet media
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@TheChronicCollaboration
@TheChronicCollaboration@TheChronicColab·
An update from Pierre #SaveCarlasLife - the same nurse he was discussing yesterday effectively doubled down on her behaviour last night and refused to follow NICE guidelines on very severe #MEcfs 👇
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@TheChronicCollaboration retweetledi
Marit Skotheim
Marit Skotheim@MaritSkotheim·
This happens on your watch, @wesstreeting! Are you just going to look away and let this young lady die of malpractice and torture? She is called Carla. Carla Naoum. She’s 23. #SaveCarlasLife @SKinnock @karinsmyth @GwynneMP @DisRightsUK @AmnestyUK @CommissionerHR @hrw
@TheChronicCollaboration@TheChronicColab

Don't. Look. Away. #SaveCarlasLife CW: distressing Videos from last night. Carla is worse today. We are watching the NHS kill an #MEcfs patient in real time. We're struggling to get anyone to help. So, we want everyone here at 8pm for #MEAwarenessHour. We need to act.

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@TheChronicCollaboration retweetledi
Jess Sylvie
Jess Sylvie@scotjess3·
@actionforme @MEAssociation as the 2 biggest #MEcfs charities in the UK, it would be great to see you lift Dr Weir's voice. His depth of knowledge, experience & compassion are not to be missed, yet too often ignored. He's a true champion for #pwme. #MaeveInquest #SaveCarlasLife
@TheChronicCollaboration@TheChronicColab

INTERVIEW: Our co-founder @MrTopple spoke with Dr William Weir about the inquest into the death of Maeve Boothby O'Neill: his thoughts on it, her case, the similarities with #SaveCarlasLife, & what the future holds for #MEcfs. Please do watch & comment: youtube.com/watch?v=JME4ir…

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Jess Sylvie
Jess Sylvie@scotjess3·
@GwynneMP the delivery plan for #MEcfs would benefit greatly from the input of Dr Weir. He has been helping #SevereME patients for decades, has great knowledge, yet is often ignored. Time for this to change. #MaeveInquest #SaveCarlasLife #SaveKaren #MyalgicEncephalomyelitis
@TheChronicCollaboration@TheChronicColab

INTERVIEW: Our co-founder @MrTopple spoke with Dr William Weir about the inquest into the death of Maeve Boothby O'Neill: his thoughts on it, her case, the similarities with #SaveCarlasLife, & what the future holds for #MEcfs. Please do watch & comment: youtube.com/watch?v=JME4ir…

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Katiana.
Katiana.@katiamek·
Does anyone want to cover my story before I get killed by medical practice and my family? @TheChronicColab @eleanorhayward @TimesONeill @Kathimerini_gr @thesicktimes please also tag below any Greek journalists you know. Urgent need. I’m in Greece #severeme #pwme #mecfs
Katiana.@katiamek

Please share!! ME/CFS kills lives. I'm dying and everyone watches. The photo is edited to have more exposure for you to see. I once 3d scanned buildings as an arch student. Now I guided a nurse (only for 3hrs/day) to scan my room. My prison. #pwme #mecfs #longcovid

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@TheChronicCollaboration retweetledi
Rachel
Rachel@rachelleese84·
This is a brilliant interview with a wonderful doctor who, @ 75yrs old, is trying (almost single-handedly) to save the lives of severe ME patients in the UK. What are @MEAssociation and @actionforme doing to amplify Dr Weir’s voice? #myalgicencephalomyelitis #thereforME
@TheChronicCollaboration@TheChronicColab

INTERVIEW: Our co-founder @MrTopple spoke with Dr William Weir about the inquest into the death of Maeve Boothby O'Neill: his thoughts on it, her case, the similarities with #SaveCarlasLife, & what the future holds for #MEcfs. Please do watch & comment: youtube.com/watch?v=JME4ir…

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@TheChronicCollaboration
@TheChronicCollaboration@TheChronicColab·
We have an update on #SaveCarlasLife from Pierre, her father. Photos from the incident in question are in this thread. He is making a formal complaint to the hospital #MEcfs
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Canary
Canary@TheCanaryUK·
Grieving for loss of life: the untold #MEcfs - from silent, darkened rooms. As part of the Canary and @TheChronicColab Amplify media training programme, @AertbyLisa wrote this moving piece on living with ME & the side the media isn't showing. Please read: #Echobox=1723746435" target="_blank" rel="nofollow noopener">thecanary.co/opinion/2024/0…
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Canary
Canary@TheCanaryUK·
It's Gastroparesis Awareness Month - yet we need to talk about EDS and #MEcfs. August is #GastroparesisAwarenessMonth #GPImpact - however two conditions often overlooked in the discourse are the #EhlersDanlos syndromes and myalgic encephalomyelitis 👇 #Echobox=1723577556" target="_blank" rel="nofollow noopener">thecanary.co/uk/news/2024/0…
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Nicola Jeffery
Nicola Jeffery@NicolaCJeffery·
This is the first article of a three part series I will be doing this week discussing activism, the accessibility for #chronicallyill and #disabled people within it, abusive behaviour and the rule book you need to know...👇
Canary@TheCanaryUK

On Saturday the country stood up to racism - but was it right & is it enough? @NicolaCJeffery went to @AntiRacismDay #StandUpToRacism Brixton & London demos. She reflects on the day, but also began to wonder a few things about left-wing protesting... 👇 #Echobox=1723488480" target="_blank" rel="nofollow noopener">thecanary.co/opinion/2024/0…

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Keşfet

@TheCanaryUK @LCMEBillboards @MrTopple @wesstreeting @SKinnock @karinsmyth @DisRightsUK @AmnestyUK