
Ron Flewett
160 posts



Pulmonary Fibrosis Transplant Patients Support Group. Next meeting on 8 October 1600-1730. Contact: steve@actionpf.org [Photo shows group members @ActionPFsteve (5 years post-transplant) and @TriathARon (on active list) out for e-bike ride] @ActionPFcharity





When #PulmonaryFibrosis develops, it's probably not sudden changes you instantly notice - and that's part of the problem. Learn more about recognizing the signs on a new episode of the Journeys through Pulmonary Fibrosis podcast.












Watch our video interview with #IPF patient activist Ron Flewett @TriathARon exploring the impact of the pandemic on #IdiopathicPulmonaryFibrosis patients and how home monitoring of FVC & FEV1 was a “huge reassurance during COVID-19” #virtualcare hubs.la/H0V8m5T0


Kicking off our 7th @EU_IPFF General Assembly, reporting to our members, advisers and supporters what the European Pulmonary Fibrosis Federation has done in the past year, what we will work on in 2021 and 2022 in patient advocacy and research. We'll also elect new board members!





PF Trust Trustee, Ron Flewett, will be on ITV Calendar around 6pm this evening discussing missed appointments during the pandemic and #IPF Let's support Ron and tune in this evening! 💙💜📺 #raisingawareness #pulmonaryfibrosis #ITV #patientsupport #IPF #COVID19




#PFSUMMIT21 Closing remarks by Steve Jones, President of the EU-IPFF - Thanks a lot to all attendees and sponsors - help us spread the news about this event and make sure to visit eu-ipff.org where we in the next couple of days will post recordings of all the sessions