Trisha

We’re back! New work from our Chair Dr. Roberto Caricchio: SLE leaves a molecular imprint in neutrophils—but CAR T-cell therapy can reset it toward healthy states. By E. Dehdashtian and colleagues. 📄 Ann Rheum Dis (2026) @eular_ARD #SLE #UMassLupus pubmed.ncbi.nlm.nih.gov/41850942/

💫 When we think about lupus, heart health may not always be top of mind — but it's critical. Join the first in our webinar series, Lupus & Life: Science, Support, and Self-Care to take a closer look at lupus and heart health — including the emergence of GLP-1 medications, sustainable weight management, and importance of a mindful diet and lifestyle routine. Live Webinar: March 27 
12:00 – 1:00 pm ET Highlights: * Real stories and insights from individuals living with lupus * Expert-led discussion on cardiovascular health, holistic approaches to weight management, and GLP-1s * Tips for maintaining cardiovascular health related to lupus Whether you're living with lupus or care for someone who is, this webinar is a chance to learn and feel empowered to take control of your heart health. Register now! bit.ly/webinar_lupusa… #Lupus #LupusResearch #hearthealth

#News: Join us at the American Academy of Dermatology (AAD) Annual Meeting to learn about our late-breaking research for a potential cutaneous lupus erythematosus (CLE) treatment. Read more about the data we’re sharing at #AAD2026: ow.ly/bxpm50YwfPz

#WORDDay #lupus Dr. David Gronych & team from the Department of Paediatrics at University Hospital Olomouc 🇨🇿 created an inspiring video together with amazing young patients and parents as part of WORD Day 2026. Thank you for helping raise awareness! 💙🩷 youtu.be/utM8Whxk2S4?si…

"Cigna has acquired CarepathRx, a large pharmacy backed by private equity that dispenses prescription drugs to nearly 10% of U.S. hospitals." Vertical integration allows #PBMs to profit off of medications: statnews.com/2026/02/26/cig…

I applaud @SenTomCotton for standing up for uniformed service members, retirees, and their families by ensuring that they have access to prescription drugs at pharmacies of their choice. The Rx ACCESS Act, which Senator Cotton has co-sponsored, would require pharmacy benefit managers (PBMs) to reimburse pharmacies participating in the TRICARE program either the actual cost of a drug or the national average drug acquisition cost, thus shielding independent pharmacies from unfair reimbursement practices and empowering military members and their families to use the pharmacy they choose—not the one chosen for them by the PBMs. As an almost 30-year Army officer, my family and I have seen firsthand the anti-competitive ways PBMs manipulate the market and burden servicemembers. For far too long, PBMs have abused their power to the detriment of consumers and independent pharmacies to benefit themselves. We are addressing this at the state level, and I am pleased to see legislation introduced in Congress to address it nationally. tinyurl.com/mwdkk84f #arnews

Tonight’s the night – join us at 7 PM ET for our free #Lupus & You event: Protecting Your Kidneys! Hear from experts as they discuss how to protect your kidneys, the importance of early detection, which labs to watch, and treatment options. Register now: buff.ly/1HFUk0H

380+ clinical trials disrupted. More than 74k real people waiting for breakthroughs. All derailed by NIH grants cuts. I’m leading the MA delegation demanding answers from the Trump admin. We need the truth about cuts to lifesaving research.

The Lupus Nephritis Symposium at the General Hospital of Mexico was a great success. With over 96 attendees, 2 international speakers @BradRovin, and 21 national speakers, it became an outstanding space for learning and collaboration. @ISNkidneycare Renal Sister Center.

@LupusMI Great work @LupusMI ! We must continue to educate 💜💜

📢 📣 Calling all medical professionals: The #Michigan Lupus Foundation is hosting a #lupus symposium to bring healthcare providers together for a day of advanced education, collaboration and networking. This event is exclusively open to #rheumatologists, medical professionals and medical students. Presenters include Dr. Michelle Kahlenberg, Dr. Wendy Marder and Dr. Aaron Stubbs from @umichmedicine. Organized by Dr. Zeinab Saleh. Register at: milupus.org/events/annarbo…

From virtual doctor visits to COVID-19 vaccine safety, discover how researchers are tackling the challenges that matter most to people with lupus. Watch the full video on the RheumLab: bit.ly/4kDdXSl

We have an important announcement regarding the charity and its future. Please go to the following link for all the information: lupus.org.uk/lupus-trust-uk… #lupus #lupustrust #announcement

Honored to celebrate @OSUWexMed's @BradRovin who was named the 2026 Donald W. Seldin Award recipient by the @nkf. He is recognized for decades of leadership in clinical nephrology and transformative research in lupus nephritis. #Nephrology #LupusNephritis #KidneyHealth

During last night’s @TheAcademy #Oscars show on @ABC, @ConanOBrien insensitively used #lupus as a joke, highlighting the need for lupus awareness & education. Lupus is a chronic disease that can cause inflammation, pain & can be fatal. Read our statement: buff.ly/f8WO7Zy

@LADAOrg Thank you! 💜💜

Great job Trisha! #PatientVoice

The Diagnosis Was in the Story One lesson we learn slowly in medicine: Sometimes the history is the key. Actually… it is almost always the history. A 40-year-old lady with Systemic Lupus Erythematosus came with a long story. Her lupus had always been mild. No major organ involvement. She was doing well on Methotrexate and Hydroxychloroquine. Then a year ago, a new symptom began. Chest pain. Not severe. Not constant. Sometimes on the right side, sometimes on the left. She underwent many tests. ECG normal Echo normal Blood tests including cardiac markers and ddimer normal A CT thorax only showed mild pleural effusion. So she was treated symptomatically. Months passed. The chest pain slowly settled, but breathlessness began. At first during exertion. Then gradually she noticed something unusual. “Doctor, I feel more breathless when I lie down. When I sit up, it becomes better.” That single line changed everything. Breathlessness worse in supine position is not a common complaint. So we started again. We repeated the basics. A chest X-ray. It showed something subtle — an elevated left dome of diaphragm and mild bilateral pleural effusion. Then we performed spirometry. In sitting position it showed a restrictive pattern. But when we repeated spirometry in supine position, the FVC dropped by 18%. A decline more than 15%. That was an important clue. HRCT thorax showed: • Normal lung parenchyma • Mild bilateral pleural effusion • Small areas of atelectasis Nothing severe enough to explain the symptoms. Respiratory muscle testing showed reduced inspiratory and expiratory pressures. Phrenic nerve conduction and EMG were normal. Fluoroscopy showed reduced diaphragmatic movements. Everything slowly pointed toward one rare diagnosis. A condition many of us remember only from exam preparation. Shrinking Lung Syndrome In this condition: • Lung parenchyma is mostly normal • The diaphragm becomes elevated • Lung volumes reduce • Patients develop progressive breathlessness And the key clue is often breathlessness when lying down. When we looked back, the diagnosis had been hiding in plain sight. The recurrent pleural pain. The mild effusions. The elevated diaphragm. And most importantly - the patient’s history. Medicine often makes us chase investigations. But sometimes the most important test is still the simplest one. Listening carefully. Because in many patients like her, the diagnosis is already in the story they tell us. @DrAkhilX @IhabFathiSulima @CelestinoGutirr @Urchilla01 @DurgaPrasannaM1

@RheumattDoc Congrats!!! A huge honor! 🏆

Honored to receive the Active Academic Achievement Award for the Department of Clinical Immunology and Rheumatology, Christian Medical College (CMC), Vellore at the World Rheumatology Forum Summit (WRF) 2026, India. A proud recognition of our continued commitment to academic excellence, research, and patient care. 🙏🏆 #WRF2026 #WorldRheumatologyForum #CMCVellore #rheumatology @OffCMCVellore

What an incredible weekend at the 2026 ANRF Research Scholar Symposium in Cambridge! From keynote presentations and scientific talks to corporate roundtables and poster sessions, the weekend was filled with ideas, collaboration, and momentum across the arthritis and autoimmune research community. Thank you to our keynote leaders, ANRF scholars, attendees, partners, and generous sponsors for making this gathering possible and helping move research forward. The conversations and connections sparked here will continue to drive discoveries toward better treatments—and ultimately cures.

Immensely grateful to the incredible team @curearthritis for allowing me to share my story.  The opportunity to be in the room to hear about research continues to give me hope for our entire rheumatic patient population. We truly are #strongertogether. 💜💁🏻‍♀️💜#lupus