VOGM Genetics Research Consortium

#NEUVisualAbstract Endoluminal Biopsy for Vein of Galen Malformation bit.ly/3NDEn6L by Hale et al @NeurosurgeryUab @SmrutiPatelMD @CNS_Update @george_maragkos @DKondziolkaCNS @jh_kanterMD @Zaazoue @urquiagajf_MD @e_celano @LKReedMD

Great insights from @johannatfifi at #ESMINT2024! Excited to see the future of Vein Galen research with new genomics and proteomic data! 🧠🔬 @snisinfo @esmintsociety

🌍 Calling All VOGM Families! 🌍 We’re grateful for the 300+ swabs received for the VOGM-GRC! ⭐️ We still need YOUR help! Join our study—whether you're a patient, parent, or family member. 👉 Sign up: redcap.peds.uab.edu/redcap/surveys… @TAAF @taaf4kids @andrewthale3 #GeneticResearch

Thrilled with the responses/updates from those who received swabs & thank you to those who have sent back the kits❤️. Still looking for more participants! Sign up:redcap.peds.uab.edu/red Questions? Contact: 📧 vogm-genetics@uabmc.edu📲 205-638-2201 🌎WhatsApp (U.S.): 205-603-4424

🌟 Swab Kit Update! 🌟 We’ve sent out all swab kits to everyone who has expressed interest! 💌 However, we're still looking for more participants! Click the link here to join if you are interested! redcap.peds.uab.edu/redcap/surveys… @taaf4kids @TAAF @ChildrensAL

🎉 Thanks to our amazing participants, we have sent nearly 100 swab kits all over the world! We're still looking for more participants to help us learn more about VOGMs. If you're interested, check out this link: childrensal.org/vogm-grc-ways-… @TAAF @ChildrensAL

We’re thrilled to continue our VOGM research and need YOUR help! Join us in making a difference. If you or someone you know is interested, please fill out the form: redcap.peds.uab.edu/redcap/surveys… Huge thanks to everyone who has participated! @NeurosurgeryUab @TAAF @taaf4kids

Pleased to share our paper demonstrating feasibility of endoluminal biopsy for VOGM! More to come! ⁦@TAAF⁩ ⁦@taaf4kids⁩ ⁦@joeniekro⁩ ⁦@cvsection⁩ ⁦@PedsSection⁩ ⁦@NeurosurgeryUab⁩ ⁦@VOGM_GRC⁩ journals.lww.com/neurosurgery/f…

Delve into the latest research on Vein of Galen Malformations (VOGM) with Dr. Andrew Hale's insightful presentation! Learn about the contributions of the VOGM Genetics Research Consortium to the pediatric neurosurgical field. Explore more: childrensal.org/vein-galen-mal… @TAAF @taaf4kids

Check out our new Facebook page! facebook.com/profile.php?id… @taaf4kids @TAAF @PedsSection @CNS_Update @AANSNeuro @NeurosurgeryUab @andrewthale3

🌟 Calling the VOGM community! 🌟 Join us in advancing Vein of Galen Malformation Genetics research. Led by Dr. Andrew Hale and Dr. Jesse Jones from UAB, our team aims to improve care for VOGM patients worldwide. Participation is FREE. #VOGM #Research Click below for details:

Thank you, @curekidstroke, 4 having @andrewthale3 speak. His TAAF supported work on #VOGM sheds light on crucial genetics research. Grateful for TAAF Board members involved in IPSO, advancing #pediatric #stroke care. Your dedication is inspiring! #PediatricStrokeAwareness

@VOGM_GRC is recruiting children and their parents to join a research study to understand if genetic factors play a role in Vein of Galen Malformations. Learn more about who is eligible to participate by reading their article in the latest IPSO periodical! …nity.internationalpediatricstroke.org/vein-of-galen-…

@johannatfifi @PMuthusami @PeterKa80460001 @Starkeneurosurg @cvsection @TAAF @taaf4kids @joeniekro @PedsSection @GOSH_NeuroSurg @VOGM_GRC @SickKidsNV @CNS_Update @AANSNeuro @SNISinfo

Thrilled to partner with the VOGM Support Network! ⁦@PedsSection⁩ ⁦@cvsection⁩ ⁦@CNS_Update⁩ ⁦@TAAF⁩ ⁦@taaf4kids⁩ ⁦@joeniekro⁩ ⁦@NeurosurgeryUab⁩ instagram.com/p/CuAhWS2gMdk/…

Only 1 week left to submit your #abstracts for the 2023 Joint Pediatric Section Annual Meeting! Join us in Oklahoma City and present your science in front of your peers and showcase the new frontiers of pediatric neurosurgery! Register now: cns.org/pediatric @PedsSection

Participate in our study here! Vein of Galen Malformation Genetics Research Consortium ⁦@PedsSection⁩ ⁦@svinsociety⁩ ⁦@CNS_Update⁩ ⁦@AANSNeuro⁩ ⁦@cvsection⁩ ⁦@TAAF⁩ ⁦@taaf4kids⁩ ⁦@joeniekro⁩ childrensal.org/vein-galen-mal…

#ThrowbackThursday It's Annual Meeting month! We hope to see you in San Diego in just a few weeks. Until then, check out these photos from our meeting in 2017. This is when we celebrated 25 years of #SNIS! Register for the Annual Meeting here: pulse.ly/e7ckmdtv5l

Researchers hope to understand the genetic factors that cause Vein of Galen malformation & are now seeking patients of any age who have been diagnosed w/ VOGM. For more info, please visit childrensal.org/vein-galen-mal… #AVM #VOGM #PediatricStroke