Vertex Save Us

🚨@VertexPharma charges $370,000 a year for a drug that keeps people with cystic fibrosis (CF) alive - pricing it out of reach for most. So CF families built their own access: Triko, is the same medicine but 95% cheaper ⬇️

@chandan6661 @Dev_Fadnavis @PMOIndia @rashtrapatibhvn @VertexPharma We’ve been working with Bangladeshi manufacturer, Beximco Pharma, to deliver a more affordable generic version of CF miracle drug Trikafta. Hopefully patients in India will be able to access this too in the months ahead. 🫁🌎💊 timesofindia.indiatimes.com/world/south-as…

@Dev_Fadnavis @PMOIndia @rashtrapatibhvn @VertexSaveUs @VertexPharma pls help indians in getting CYSTIC FABRIOSIS med. Sir, Govt. Should allow production of generic medicines in india and save world.

The cost of meds was too high for thousands of #CF patients. We worked with @VertexSaveUs & @3rdworldnetwork to approach a Bangladeshi company to make a generic version at a fraction of the price - it’s now on the way. This will change lives. theguardian.com/society/2026/j…

🚨 BREAKING: Yesterday at #NACFC we announced the first truly affordable #cysticfibrosis modulator is here. The CF community is reviving the CF Buyers’ Club with Triko: - A generic version of Trikafta - Costs just $6,375 per child/yr 🔗 To find out more: cfbuyersclub.org

Una simple pastilla cambiaría la realidad de al menos 8 000000 de mexicanos y sus familias @Claudiashein @SSalud_mx @Tu_IMSS @VertexSaveUs @SSalud_mx

💥Historic news today!💥 #Trikafta (ETI) is the first CF treatment to be added to the @WHO ‘Essential Medicines List’. We’ve worked tirelessly with academics & allies to make this possible. This listing must translate into access for all. Govt’s & @VertexPharma must step up.

So many years of work behind today's decision #Trikafta is on the @WHO Essential Medicines List! Well done @VertexSaveUs @JustTreatment & all the advocates/medical professionals worldwide who contributed to this ground breaking achievement Now @VertexPharma - DROP YOUR PRICES

Huge news today that Trikafta (ETI) is now on the @WHO ‘Essential Medicines List’. The first ever CF drug to be listed💥 So proud to be part of a group of academics/advocates that worked on the submission 🥰 @VertexPharma & govt’s must act now. Trikafta for all! #EML 👊💊🌎🫁

@Le_Lemgruber We completely agree with you Leticia. It was so good to collaborate with you - you were absolutely key to this threat and the success in Brazil ❤️

@VertexSaveUs Infelizmente nenhuma mobilização de pacientes - por maior que seja - tem o mesmo efeito que a ameaça do licenciamento compulsório. Ele continua sendo imprescindível para garantir o acesso.

Great to be mentioned in this paper about access to CF modulators in Brazil, following our involvement there in 2022/3. We know threatening Vertex’s monopoly with compulsory licensing is the ONLY language they respond to = lower pricing. Read more: righttobreathe.net/post/cystic-fi… 🇧🇷

@VertexSaveUs @VertexPharma @CompComSA This is what keeps me up at night. How can there be miracle drug for those of us born with CF, yet the barrier to get it is $30,000 per month?!?! UNCONSCIONABLE

South African #cysticfibrosis patient JC speaks about about @VertexPharma’s inhumane & inequitable ‘access programme’ that means that only the privileged can access Trikafta, while he & the other 50% are left behind. The @CompComSA must re-open their investigation now. 😡

@Teodor147 @CompComSA @VertexPharma @HealthJusticeIn @JustTreatment @gayle_pledger Any day now 🤞🤞🤞

@VertexSaveUs @CompComSA @VertexPharma @HealthJusticeIn @JustTreatment @gayle_pledger When The Decision of WHO experts in Geneva?

Today we’ve been @CompComSA to deliver a dossier of evidence showing that @VertexPharma has misled them & that 50% of CF patients in SA are still dying w/o access to #Trikafta. They must reopen their investigation into Vertex’s anti-competitive behaviour. No one left behind!

🚨 BREAKING: #CysticFibrosis families handed over a 100-page dossier to @CompComSA. It shows how @VertexPharma misled the Commission & public. Half of CF patients still can’t access lifesaving #Trikafta. We demand the investigation be re-opened. #NoOneLeftBehind @VertexSaveUs

'Access for the Privileged' SA Health Advocates Demand Competition Commission Reopen Vertex Investigation 1/2 of eligible cystic fibrosis patients in public & private health sectors still cannot access life-saving drug. healthjusticeinitiative.org.za/2025/08/07/acc… @VertexSaveUs @JustTreatment

@VertexSaveUs @VertexPharma Dear Vertex-You are truly vile. How dare u raise prices on a life saving drug that none of us can afford? WHO has an extra $30,000 per month?!?! Signed-a CF WARRIOR

@JustTreatment @VertexPharma Utterly cruel & disgusting behaviour. Every employee of @VertexPharma should hang their heads in shame. 😡

🚨@VertexPharma just hiked the price of its life-saving #cysticfibrosis drug Trikafta from $326,000 to $370,000 a year (a 7% increase). Whilst their execs will be counting dollars, the CF community will be counting lives slipping away. Vertex’s greed knows no bounds.

Nothing surprises us when it comes to the greed & inhumane behaviour of @VertexPharma. Children are dying w/o access to #Trikafta due to the unaffordable price. Vertex’s response - to INCREASE the price. That says everything about their utter disregard for CF patients 🤬

Amazing news from #Turkey today - CF patients aged 6+ will have access to #Trikafta. ❤️ BUT… Why did it take 6 years whilst @VertexPharma blocked efforts to access affordable alternatives? How many young lives were lost? 😞 And 000’s globally are still waiting 😡 #CFCantWait