VGEndoFoundation
930 posts

VGEndoFoundation
@VgEndo
My name is Vasundhara. I’m an #Endometriosis Survivor, Advocate. Doing my part to contribute to it’s research and to spread the awareness - #SpeakUpEndo @VGEndo
Vernon Hills, IL Katılım Ocak 2019
121 Takip Edilen132 Takipçiler
VGEndoFoundation retweetledi

Excellent 🧵by the brilliant Dr. Lawrenson @lawrensonlab who we are so fortunate to work with @CedarsSinai to figure out the origins of #endometriosis! Check it out!
#MIGS #MIGSlife #gynfluencer #endowarrior
@Endofound @nancynursez637 @Endometriosis @EndometriosisUK
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VGEndoFoundation retweetledi

#endometriosis are we making headway yet? Recently in discussion with a couple of ob/gyns associated with academia, they indicated they feel the paradigm is shifting, I truly hope so, patients have suffered long enough, been gaslighted long enough and th…lnkd.in/gVC9RRp
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I was told the same thing by my fertility doctor as if it is nothing to worry, which lead to a 3 yrs of trauma with 3 major surgeries. We need to create the awareness in the doctors first that this is not a simple thing to brush away #endometriosis
Nancy Petersen RN retired@nancynursez637
#endometriosis being fobbed off, a classic experience amp.theguardian.com/society/2021/a…
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VGEndoFoundation retweetledi

#endometriosis needs to come out of the dark ages
nbcnews.com/think/amp/ncna…
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#endometriosis This engagement is critical in endometriosis care to stop the gaslighting and inappropriate treatment of their disease lnkd.in/gdFYK-v
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#Endometriosis Endo What? last year noted that 58% of patients had visited doctors 10 times before getting a diagnosis. Given that endo has some classic and predictable symptoms, that is a pretty big black eye for a speciality field?Some visits may have been pc, still classic sx
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#endometriosis Almost 300 pages of data analysis on the original study data on lupron that was never fully reported to physicians or patients noting serious issues, the lack of which prevented informed choices by physicians and patients

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@Mikhail_MIGS @TheBSGE Many patients in need of surgery for DIE are experiencing complications of their endo, including some reported bowel ruptures when pregnant before endo is resolved in my group of 124,000 patients
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VGEndoFoundation retweetledi

This #EndometriosisAwarenessMonth - educate yourself. The chances are you know someone with endometriosis, it affects 1.5 million of us.
We must all educate ourselves so that nobody with #endometriosis suffers in silence.
Find out more: endometriosis-uk.org/awareness-mont…
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VGEndoFoundation retweetledi

The gaslighting about symptoms is stunning, so many are told bowel pain, shoulder pain, bladder pain, pallor, nausea, bloating, have nothing to do with endo, but in fact are central to the experience. lnkd.in/gDGDXCH
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VGEndoFoundation retweetledi

#endometriosisawareness
One of the biggest problems that we have in medicine today is a complete disconnect between the physician's knowledge base and the patient's experience and knowledge base.
With the advent of crowdsourced knowledge, it now turns…lnkd.in/gdrrN3R
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VGEndoFoundation retweetledi

Endometriosis can be best treated by laparoscopic excision by expert surgeon. Medications play no role in their management. For some they may give symptomatic relief but disease progression never stops .......
#endometriosis #pcos #endowarrior #infertility #womenshealth

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VGEndoFoundation retweetledi

Hysterectomy is not a cure for endometriosis. #demystifythemythmonday #rethinkendo #breakthecycle #bethechange #endomyths #endofacts #endo #efhou #endometriosis #houston #expertcare #endoawareness #pelvicpain #speakendotruths

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VGEndoFoundation retweetledi

#endometriosis #symptoms widely ranging symptoms. Understanding them can lead to earlier diagnosis and less damage from this disease. lnkd.in/gXzUX87
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