Victoria Parmelee

285 posts

Victoria Parmelee

Victoria Parmelee

@Victoria_Parm

Restauranteur, mom and wife...living on the beach!

Katılım Mart 2020
512 Takip Edilen315 Takipçiler
Matthew Halma
Matthew Halma@MatthewHalma·
Patients with long COVID and post-acute COVID vaccination syndrome are coming back from Tokyo reporting major gains after the McCairn–Edogawa protocol: double-filtration plasmapheresis to clear microclots/spike/autoantibodies + dental pulp stem cell secretome to repair damage. Assume those gains are real. The crucial question now isn’t whether it helped short-term — it’s whether the benefit will hold. The shape of any relapse curve in the coming weeks will distinguish two fundamentally different models of what post-viral/vax illness actually is. (This is from an outsider perspective, I have not communicated with any of the participants or researchers or caregivers.)
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Victoria Parmelee
Victoria Parmelee@Victoria_Parm·
@liamsLCjourney @Burning_mama47 @MatthewHalma Liam I read your story and my husband Anthony is similar. Mostly fatigue and PEM and all over body pain (A lot in thighs). Former marathon runner/skier with no underlying conditions. Recovered for a 3 month period for no apparent reason… in the gym lifting hard then 💥 its back.
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Liam's LC/ME Journey
Liam's LC/ME Journey@liamsLCjourney·
@Burning_mama47 @MatthewHalma Zero misinformation in my tweet, but I'm happy to wager on the amount of patients who are willing to publicly speak up in 3+ months that the protocol hadn't worked for them. What's your over/under?
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Humanspective
Humanspective@Humanspective·
A Hospital in Japan is at the forefront of treating those impacted by messenger RNA technology. Plasmapheresis and Stem Cells. Filter the blood. Bring in restorative biologics. And in a surreal moment, an unexpected finding was revealed live one air. For a symptom Dr. Mary Bowden has been struggling to treat. BOWDEN - “Robert commented that he had tremors.... he was a patient. right?.... Robert just said it was gone after the first treatment... that’s pretty cool... that’s been the hardest thing for me to treat... I have one women... her right arm has not stopped shaking since she got the shot...” Tremors disappeared after the first filtration. Kevin MacCairn PhD, Dr. Kato Shojiro, Charles Rixey MBA, and an entire team at Edogawa, including one of the pioneers of a particular Stem Cell therapy, are all working together to solve the riddle. The Filtration and Stem Cell treatment is called the McCairn-Edogawa Protocol, establish at the Edogawa Hospital in Tokyo. The Hospital just expanded their capacity to treat more patients. Exciting times. New science. And real hope for a lot of people.
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H@HearherDickhau1·
@Humanspective @JanciToxDoc Where is that nurse lindsey that had it, I don’t see her on x anymore?
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Victoria Parmelee
Victoria Parmelee@Victoria_Parm·
@MatthewHalma @Gmwetz There are two major differences in the DFPP compared to TPE. The first is you receive your own clean blood and plasma not a donor or substitute fluid. Second the filter is particular to the smallest autoantibodies and nuero components. TPE does not filter these
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Matthew Halma
Matthew Halma@MatthewHalma·
I don't know how it differs significantly from TPE, which doesn't show a benefit in Long COVID. It's possible that #PACVS pathology is distinct enough from LC that it's not a valid comparison. nature.com/articles/s4146… It's possible that its the sequence of treatments, ie. the combination itself. My intuition would suggest that plasmapheresis would cause short term improvement and then decay back down, but it doesn't appear to have the short term improvement (at least in this trial). And I see plasmapheresis as mechanistically plausible. But in isolation, plasmapheresis doesn't seem to do much, at least from what's published so far. Then the question becomes: what work is the SHED-derived growth factor doing? It's postulated to heal the tissue damage link.springer.com/article/10.100… I could see it as, if the plasmapheresis opens up a brief window which allows the factors to do their work and repair, and get to a new baseline. And it could be the case that alone the SHED-derived factors aren't effective or are less effective. That's plausible. I think the main issue so far is we have anecdotal stories.. If the therapeutic effect holds up it's remarkable, and could greatly advance the understanding of the disease. I don't have reason to doubt these, but this community has previously been swayed by other seemingly silver bullet therapies. IVM, nattokinase, augmented NAC, etc. Maybe useful, but promoted and not scrutinized. Ironically this is a condition of the fact that PACVS exists largely outside of institutional acknowledgement. Precisely the situation which 'disinformation studies' and similar de-facto censorship have tried to squash, ie. promotion of silver bullet cures.
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Victoria Parmelee
Victoria Parmelee@Victoria_Parm·
@transfatfree It is a dual filtration plasma pheresis that filters spike proteins/fibrin amyloids/autoantibodies and mis folded proteins out of your plasma. I’m not sure what the root cause of CFS is but i imagine it is autoimmune and would help. Follow @KevinMcCairnPhD
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Victoria Parmelee
Victoria Parmelee@Victoria_Parm·
Anthony had his 2nd DFPA a couple days ago. He is staying for one more week and i will update his progress after then. His comment after 2nd was “i feel like i can go out and kick some ass now!”. Still needs time to accurately assess his symptoms.. To be continued…
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Dean Cheramie
Dean Cheramie@DysautoDad·
It's happening! My daughter Annelise (Li) will be treated in Japan in August for debilitating POTS, dizziness, neuropathy, headaches, brain fog, GI disruption, and crushing exhaustion, with a long history of hEDS and MCAS issues. DFPA filtration for removal of amyloidogenic clotting, and restorative treatment for the vascular system, and heart, brain, and organ tissue. Bravest and strongest person I know (other than her Mom). Bless the McCairn-Edogawa team. 🙏
Dean Cheramie tweet media
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Victoria Parmelee
Victoria Parmelee@Victoria_Parm·
@CoyoteSanctuary I really believe this is going to work! You know how many times we thought he had the one thing that would cure him?! ugh to only be disappointed. This HAS to work 🙏❤️
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CoyoteSanctuary🐺🐭🦝🔬 🐉🏴‍☠️
I doubt that as the consistency is too solid, even before there were multiple patients there to converse with It's amazing what removing Cytokines and amyloids does for oxygenation of the entire body, not mentioning what's being removed from the brain. And the other toxins being removed as a value added benefit that no one is even discussing. Keep Healing. 🙏✨🏆
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Victoria Parmelee
Victoria Parmelee@Victoria_Parm·
This is the IV infusion of SGF (Stem cell growth factor) that is administered each day in between filtration. Tomorrow is PA number 2 which is where most of the patients really start to feel a difference. Met nurse Lyndsey today. She’s an inspiration!
Victoria Parmelee tweet media
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AventJustice
AventJustice@EmAdJustice·
@Victoria_Parm He already looked like he could kick some ass! He’s literally a weapon now 🤣
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Victoria Parmelee
Victoria Parmelee@Victoria_Parm·
I had to leave Japan yesterday, but feel very comfortable that he is in good hands! The other patients, Lyndsey and Charles have been a huge support! Finally to meet ppl that know what you are going through. ❤️
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AventJustice
AventJustice@EmAdJustice·
This lil raccoon is scurrying off to her first Dual Filtration Plasmapheresis! I owe you a dept of gratitude @KevinMcCairnPhD for this opportunity! 🙏🦝💫
AventJustice tweet media
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Lock Robster
Lock Robster@LockRobsters·
@MaryBowdenMD The whole traveling to Japan and doing an invasive treatment that may or may not be 100% effective is not even plausible to even attempt to do for 99.9% of the population.
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