@NICEComms has approved a twice-yearly infusion of obinutuzumab (Gazyvaro), taken with a daily immunosuppressant tablet, mycophenolate mofetil, for people with severe lupus nephritis.
Learn more: nice.org.uk/news/articles/…
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WorldLupusFederation · #WorldLupusDay
469 posts
WorldLupusFederation · #WorldLupusDay
@WorldLupusFed
The World Lupus Federation is a coalition of lupus patient organizations, united to improve the quality of life for all people affected by lupus.
Katılım Nisan 2016
265 Takip Edilen984 Takipçiler
The European Commission has approved Roche’s Gazyva/Gazyvaro for adults with active lupus nephritis, expanding treatment options across the EU. The decision follows strong trial results showing better kidney outcomes than standard therapy alone. Read more: roche.com/media/releases…
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A decade of collaboration has helped the World Lupus Federation grow from 100 to more than 200 member organizations, creating a unified voice advancing lupus awareness, improving care, and accelerating research worldwide. Read more: worldlupusfederation.org/2025/01/27/cel…
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The World Lupus Federation is celebrating 10 years of uniting #lupus patient voices to increase awareness and push for greater investment in lupus research and education. WLF member @lupustrust (UK) shares how this collective strength has helped amplify their work.
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#WorldLupusDay sparked a global response—from bold displays to raising awareness by sharing lupus facts, lupus warriors worldwide brought #lupusawareness to the forefront.
See how lupus warriors made lupus visible on World Lupus Day.
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WorldLupusFederation · #WorldLupusDay retweetledi
➡️ Esta encuesta realizada por la @WorldLupusFed revela que:
🟣 El 47 % de las personas que viven con #lupus reportan afectación renal, lo que conduce a una complicación crítica y poco reconocida conocida como #nefritislúpica (enfermedad renal relacionada con el lupus)
⬇️🧵⬇️
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WorldLupusFederation · #WorldLupusDay retweetledi
¡Sé protagonista de esta conmemoración! ¡Es tu causa, es la de todos nosotros!
#DíaMundialDelLupus
#demosvisibildadallupus
#WorldLupusDay
#lupus
#lupusawarenessmonth
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WorldLupusFederation · #WorldLupusDay retweetledi
10 de Mayo. Hoy es el #DíaMundialDelLupus, un momento para mostrar apoyo a los millones de personas afectadas por el lupus. Gracias Dra, Vanesa Calvo,
#WorldLupusDay #MakeLupusVisible #NoDejesQueElLupusGane #DemosVisibilidadAlLupus
Reumatología Valdecilla@ReumaValdecilla
Con motivo del #DiaMundialdelLupus #Worldlupusday la Dra @VanesaCalvoRio da una entrevista para el @colmedca sobre la actualidad del tratamiento del LES 🦋🦋 comcantabria.es/actualidad/exi…
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WorldLupusFederation · #WorldLupusDay retweetledi
Making lupus visible with Hon. Dr. Zanetor Agyeman-Rawlings
#MakeLupusVisible #WLD2025 #LupusAwareness #WLD #lupusadvocacy #lupusawarenessmonth
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WorldLupusFederation · #WorldLupusDay retweetledi
Make Lupus Visible
A journey of a 1000 Mike's begins with a step. #Lupus #LupusAwareness #lupusadvocacy
#WorldLupusDay #WLD2025 #WLD #Ghana
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WorldLupusFederation · #WorldLupusDay retweetledi
Most people with lupus develop the disease between the ages of 15-44, and it lasts a lifetime as there is no cure. #MakeLupusVisible #WorldLupusDay
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WorldLupusFederation · #WorldLupusDay retweetledi
Compartimos los resultados de la encuesta realizada por @WorldLupusFed
lupus.org/news/global-su…
@Felupus #DíaMundialDelLupus
#WorldLupusDay #MakeLupusVisible #NoDejesQueElLupusGane #DemosVisibilidadAlLupus
WorldLupusFederation · #WorldLupusDay@WorldLupusFed
47% of people with #lupus report kidney involvement—but 43% know little or nothing about lupus nephritis. This #WorldLupusDay, help raise awareness of this serious complication. Share facts from our global survey. 🔗 Learn more: lupus.org/news/global-su…
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WorldLupusFederation · #WorldLupusDay retweetledi
Swelling, blood in urine, and high blood pressure are common symptoms of lupus nephritis. Monitoring these symptoms is key to early detection and preventing long-term kidney damage. Stay informed and talk to your doctor about your kidney health. #WorldLupusDay #MakeLupusVisible
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WorldLupusFederation · #WorldLupusDay retweetledi
New data from @WorldLupusFed reveals a gap: 85% of people with #lupus report symptoms of #lupusnephritis, but 43% have little or no knowledge of the condition. Awareness leads to better outcomes.
🔗 Spread the word & make lupus visible: buff.ly/7scOXUx
#WorldLupusDay
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WorldLupusFederation · #WorldLupusDay retweetledi
💜 ¡Hoy! Mayo 10, Día Mundial del Lupus. Dedica tiempo para conocer sobre la enfermedad. Escucha. Apoya. Acompaña.
🙏Gracias a los profesionales y colaboradores que hacen posible una mejor calidad de vida para los pacientes, familiares y comunidad en general.💜 @WorldLupusFed
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WorldLupusFederation · #WorldLupusDay retweetledi
Let’s put on purple to raise awareness on World Lupus Day. ACR fights lupus! 💜 #ACRFightsLupus #POP #PutOnPurple #WorldLupusDay #MakeLupusVisible @LupusInitiative
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WorldLupusFederation · #WorldLupusDay retweetledi
Today is #WorldLupusDay 💜
Lupus affects 5M+ people worldwide but remains under-recognized and misunderstood.
We’re raising awareness so more people get diagnosed earlier and access the care they need. Let's #MakeLupusVisible
#LupusAwarenessMonth LupusCanada
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WorldLupusFederation · #WorldLupusDay retweetledi
It’s #WorldLupusDay! 💜 Like Izzy, show your support and help make lupus visible by rocking a purple outfit or accessories today! 💜✨ Join the global lupus community & take action.
📸 Drop a pic of yourself in purple in the replies or post on your own page with #WorldLupusDay!
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WorldLupusFederation · #WorldLupusDay retweetledi
Today is #WorldLupusDay 💜
I am one of the 5 million people living with Lupus. Lupus can be notoriously difficult to diagnose as can mimic other illnesses - taking a moment to read the symptoms could help you to recognise it in yourself or friends & family 💜 #MakeLupusVisible
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WorldLupusFederation · #WorldLupusDay retweetledi
La Federación Española de Lupus (@Felupus) es miembro y pertenece al Consejo d la @WorldLupusFed
Por responb y compromiso de identidad trasladamos ls resultados q se han hecho públicos en Washington 06/05/2025
Encuesta: El LUPUS y el Cuerpo, incluyendo el impacto en los Riñones
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