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@_cureme_

Struggling w/ MECFS for 16+yrs, MCAS, OI, POTS, Long Covid. Victim of Domestic Abuse #NarcAbuse #FreePalestine 🇵🇸 #MillionsMissing #WearAMask #CleanAir

London, United Kingdom Katılım Kasım 2024
886 Takip Edilen299 Takipçiler
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star pwME 😷@_cureme_·
My account has been limited for some reason despite me not being active on it at all so I have had to add more info via pics below. I cannot reply to tweets atm.
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Can anyone offer advice & retweet to reach someone who can possibly help? I am severe with MECFS. My blood tests this month in A&E show: Very low venous O2 sats of 25.9% High CO2 of 7.2 Low pH of 7.342 I am experiencing hypoxia despite my oximeter readings being btwn 93-98%.

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star pwME 😷@_cureme_·
@PhotonTurtle I appreciate the sentiment. I am so sorry. I have hope that things can improve for us. The cure/treatment is out there. I just hope someone stumbles upon it sooner rather than later.
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Photon Turtle
Photon Turtle@PhotonTurtle·
@_cureme_ Wish I could give any advice. Been looking for any treatment that works for 4 years now. Extremely severe for me.
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star pwME 😷@_cureme_·
Can anyone offer advice & retweet to reach someone who can possibly help? I am severe with MECFS. My blood tests this month in A&E show: Very low venous O2 sats of 25.9% High CO2 of 7.2 Low pH of 7.342 I am experiencing hypoxia despite my oximeter readings being btwn 93-98%.
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star pwME 😷@_cureme_·
This was my hand with cyanosis in Sept ‘25. My venous o2 saturation level was 19%. The blue discolouration was much stronger and didnt show up on the phone camera well. You can definitely see a difference. The blood test reading of 19.9% was taken on September 2025.
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star pwME 😷@_cureme_·
My account has been limited for some reason despite me not being active on it at all so I have had to add more info via pics below. I cannot reply to tweets atm.
star pwME 😷 tweet mediastar pwME 😷 tweet mediastar pwME 😷 tweet media
star pwME 😷@_cureme_

Can anyone offer advice & retweet to reach someone who can possibly help? I am severe with MECFS. My blood tests this month in A&E show: Very low venous O2 sats of 25.9% High CO2 of 7.2 Low pH of 7.342 I am experiencing hypoxia despite my oximeter readings being btwn 93-98%.

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ᴘᴏᴛᴀᴛᴜᴍ
ᴘᴏᴛᴀᴛᴜᴍ@pot8um·
If you're in the market for high-quality KN95s, I have a discount code with Planet of Kind: use POTATUM25 for 25% off your entire order 🫡 public health isn't informing us that respirators lower instances of catching/spreading airborne illness. protect your health & community!
ᴘᴏᴛᴀᴛᴜᴍ tweet mediaᴘᴏᴛᴀᴛᴜᴍ tweet media
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erica
erica@sadfoxqueen·
@_cureme_ I have high CO2 as well. I’m severe too. I can’t get much help
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Dee
Dee@po_move·
@surf4children @_cureme_ A while ago I heard numerous people being refused arterial blood gas tests here in the UK (A&E) Does anyone know of the reality of the situation?
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star pwME 😷@_cureme_·
@Naomi_D_Harvey @seanstidston @surf4children @angryhacademic I even had blue fingers back in Sept ‘25 and was sent home! For more context, my o2 has definitely been decreasing due to over-exertion (no fault of my own, just an abusive household causing me to do errands myself out of my capacity). hbot helped but its not improving anymore.
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star pwME 😷@_cureme_·
@Naomi_D_Harvey @DavidJoffe64 In September 2025, my venous o2 was 19%. I have been having hbot to help raise it back to normal but my March reading was 25.9%. (My co2 and pH levels have been normal up until March 2026). Absolutely ridiculous I’ve been sent home everytime without help.
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Naomi Harvey “PhD Witch” #WearAMask
Naomi Harvey “PhD Witch” #WearAMask@Naomi_D_Harvey·
Bloody hell: “Doctors have said they aren't going to administer oxygen because they "don't believe levels can be that bad" despite repeated tests showing these same low o2 figures.” Venous O2 is at 25.9% CO2 of 7.2 pH of 7.342 @DavidJoffe64
star pwME 😷@_cureme_

My account has been limited for some reason despite me not being active on it at all so I have had to add more info via pics below. I cannot reply to tweets atm.

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nat
nat@sihleri·
twitter was so good pre-elon
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Bethel
Bethel@Bethelofenugu·
Emotionally avoidant people can be some of the hardest people to deal with. They avoid repair, resist accountability, and shut down when direct communication is needed, choosing silence, distancing, or deflection instead of clarity.
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suki
suki@soupkis·
i yearn so much for the version of me who gets up and does exactly what she wants without limitations
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Living with Trauma & Dissociation
Living with Trauma & Dissociation@RhiaCrewe·
💜 Lots of strangers have helped me. Some beautiful people in this world. 💜
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Anna (please boost pinned post)
Anna (please boost pinned post)@halcionandon·
Need enforced sleep & rest to fight Covid, especially now it’s moved to my chest. But must crowdfund to escape abuse. Problems stop for no infection, & social media needs you visible at all times so here I am. …. I can’t. Please RT pinned post.🥺 👇 x.com/halcionandon/s…
Anna (please boost pinned post)@halcionandon

March is #LongCovidAwarenessMonth It’s also my birthday. If you would like to help me escape ongoing abuse & have a chance at life: 💸Fund: chuffed.org/project/161937… ☕️BMaC: buymeacoffee.com/Halcionandon 🎁Amazon: amazon.com.au/hz/wishlist/ls… ᯓ➤Beem: Halcionandon

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Nikkole 🐝
Nikkole 🐝@nhughesoly·
Gotta love when asserting your needs/boundaries is treated like an attack on the other person. Extremely cool and not at all manipulative or hostile!
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Keşfet

@PhotonTurtle @Seafoam_Dream @Naomi_D_Harvey @seanstidston @surf4children @angryhacademic @BinitaKane @renesugar