Joining Jack

Givinostat approved for use in NHS England We're delighted to share the news that the National Institute for Health and Care Excellence (NICE) has recommended givinostat for use on the NHS in England. Full story here: joiningjack.org/about-joining-… #TeamJJ #makeadifference 👉👈

Massive thanks to our amazing friends at @DevelopUK and the players in the company's mini Golf Day yesterday raising £1,785! Extra rounds came after rain stopped play at the annual charity Golf Day where they had raised £10,000 #thebestsupporters #TeamJJ #makeadifference 📷📷

A very happy 50th birthday to our awesome trustee friend and our Number One Kris Radlinski! The @WiganWarriorsRL legend and Club CEO has been with Team JJ since day one and we hope he has a 50th as fabulous as he is! 💕 #JJLegend #rugbyfamily #TeamJJ #makeadifference 👉👈

Here is the full interview which Alex and Jack were invited to be part of with Jesy Nelson and five other incredible mums ahead of Mothers' Day. youtube.com/watch?v=v6Hosp… 📷

Massive thanks to @dolphinsnrl Herbie Farnworth for a terrific JJ salute ahead of this afternoon's 3rd Test @England_RL and @Kangaroos Loads of luck to Shaun Wane, our ambassador @samtomkins1 and the England team at Headingley today #rugbyfamily #JJSalute #makeadifference 📷📷

We wanted to share with you a lovely letter that Alex and Andy received from @AndyBurnhamGM @MayorofGM congratulating Joining Jack for the NICE recognition of the DMD Care UK Cardiac Care guideline described as a landmark moment for the Duchenne community #makeadifference 📷📷

Thank you to Dan from the @Motability field assessment team for coming out and talking to Jack about all the adaptations that are available to help him drive. They now have a plan of what he will need!

Jack has managed to prove us wrong again! He’s passed his driving theory test first time. He’s now got a driving assessment booked with @Motability foundation to see what adaptations he will need to a vehicle!

Massive thanks to these two @SuperLeague legends hanging up their rugby boots - @DragonsOfficiel @samtomkins1 & @WarringtonRLFC @ratch06 have been incredible ambassadors for Team JJ and the Duchenne community #thebestsupporters #rugbyfamily❤️🏉 #TeamJJ #makeadifference 👉👈

Loads of luck and massive thanks to this hardy lot taking on the annual @DevelopUK Golf Day for Joining Jack at @ManchesterGolf ☔️ ☔️ umbrellas were optional 😛 #thebestsupporters #TeamJJ #makeadifference 👉👈

Massive congratulations to our awesome ambassador and lovely friend @LeighLeopardsRL @Joshuacharnley scoring his 250th try and STILL remembering to do a JJ salute for his mate! ❤️ #rugbyfamily #thebestsupporters #TeamJJ #MakeADifference 👉👈

A massive thank you to the terrific team at @MiRiDERuk supporting Joining Jack at their 5th birthday celebrations today A raffle to win a MiRiDER bike drawn by @WiganWarriorsRL boss Matt Peet raised an amazing £1110 for Team JJ ❤ #thebestsupporters #TeamJJ #makeadifference 👉👈

Can't wait for @DevelopUK Golf Day for Team JJ with a Ryder Cup theme and a host of legends from rugby league and union Taking place on September 11 at @GolfManchester teams of 3 will be allocated a rugby legend - email info@joiningjack.org #rydercuprugby #TeamJJ 👉👈

Congratulations Jack on winning the Creative Arts Leadership Award @wiganleighcol What a great end to the academic year!

We're thrilled to confirm this September's 13th @HWMoonToyota @Wigan10K is set to smash £1/2M fundraising milestone for Joining Jack! Huge thanks to everyone who has made this possible - can't wait to see you on the startline! ❤ #thebeststupporters #TeamJJ #makeadifference 👉👈

Huge congratulations to the legendary Sir Billy Boston being made a Knight Commander of the Order of the British Empire @WiganWarriorsRL greatest ever player becomes the first RL player to receive a knighthood at Buckingham Palace today #rugbyfamily #TeamJJ #makeadifference 📷📷

Tomorrow @DuchenneUK will be on BBC Breakfast at 8:20am talking about our #timeismuscle campaign. Please watch @wesstreeting @lisanandy You can help us end the horrific postcode lottery of access to this treatment!

@wesstreeting how is it fair that if you live in Scotland you get access to the Givinostat EAP but if your in England or NI it’s a barbaric postcode lottery #TimeisMuscle use your muscle to intervene and end this heartbreaking situation! dailyrecord.co.uk/news/scottish-…

Huge thank you to our lovely friend and supporter James Hooton donating a terrific £2,000 in memory of his wife Sylvia, and son Stephen, a fellow Duchenne warrior. Stephen lost his battle with DMD 35 years ago aged just 19 #thebestsupporters #TeamJJ #makeadifference 👉👈

Our piece on @GranadaReports Givinostat was made available through an Early Access Program in November. It’s been licensed. 6 months on patients are still waiting for access to a drug proven to slow the progression of the disease @DuchenneUK @AlderHey #TimeIsMuscle