Eileen Rubin

714 posts

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Eileen Rubin

Eileen Rubin

@ardsfoundation

President ARDS Foundation, Patient Engagement/Advocacy, Speaker; Survivor of ARDS, Trial Attorney, opinions my own. Pronouns are she/her.

Chicago, IL USA Katılım Kasım 2008
154 Takip Edilen376 Takipçiler
Eileen Rubin
Eileen Rubin@ardsfoundation·
My kid and her friends saw an obviously neglected Bassett Hound being discarded by its handler at the dog park in Brooklyn today. Please read the GoFundMe and if you can help, it would be very much appreciated. gofundme.com/f/abandoned-do…
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Eileen Rubin
Eileen Rubin@ardsfoundation·
@TantamKate In the hospital for 9 weeks in 1995. I still remember most of my nurses, was so grateful for their passion. On the vent floor in week 9, I went back to the ICU to meet my main nurse. I remembered her like she was an old, dear friend. I knew innately she fought for my survival.
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Kate Tantam (She/her)
Kate Tantam (She/her)@TantamKate·
At the till in supermarket … “You aren’t #ICU Kate are you? ” “Err …. Yes ” “ I remember your voice…You made me feel safe” Patient starts crying, lady in queue behind me starts crying….
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Mayo Clinic
Mayo Clinic@MayoClinic·
If you or a loved one identifies as LGBTQ and has been in the ICU in the past six years, you may be eligible to participate in a Mayo Clinic research study to learn more about your experiences. For information contact mayocl.in/3kk2Q2m or phone (507) 293-9440.
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Mayo Clinic
Mayo Clinic@MayoClinic·
Mayo Clinic researchers are seeking ICU survivors who identify as LGBTQ to share their story. If you or a loved one identifies as LGBTQ and has been in the ICU in the past six years you may be eligible to participate. Email stout.jeremiah@mayo.edu or call (507) 293-9440 for info.
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Eileen Rubin
Eileen Rubin@ardsfoundation·
Every Deep Drawn Breath, by Dr. Wes Ely, is a book of heartbreak and hope; this review is written from the perspective of a surviving critical care patient & family member of a critical care survivor; please read this book @WesElyMD @ArdsGlobal facebook.com/ardsglobal/pos…
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Eileen Rubin
Eileen Rubin@ardsfoundation·
I am so worried for these patients. And I can’t help but think about heir short would be so different if they had just got their vaccine. I know we have too many ARDS patients as it is, but keep thinking the CoVID ARDS cases can be preventable. I am so sad for those w #ARDS
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Eileen Rubin
Eileen Rubin@ardsfoundation·
As President of ARDS Foundation, those I have been hearing from recently in ARDS crisis are people who have NOT gotten the CoVID vaccines, got CoVID, then ARDS and are critically ill, fighting for their life. Please - it is so important to get your vaccine. @ArdsGlobal
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Samuel Brown
Samuel Brown@DrSamuelBrown·
I've been trying to help unvaccinated people with their remorse when they land in the hospital/ICU with COVID. "You can use this illness to help your friends and family get vaccinated" seems to resonate. No need to rub people's noses in mistakes--look to what good can come.
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Eileen Rubin
Eileen Rubin@ardsfoundation·
@carsueb @ArdsGlobal @DrDaleNeedham This behavior may not be intentional but if medical staff treat a sedated patient as if they are alert, there can be potentially beneficial results, as medically induced coma patients are taking things in. The communication can make a substantial difference.
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Carol Billian
Carol Billian@carsueb·
@ArdsGlobal @DrDaleNeedham After reviewing, I don’t think this behavior is INTENTIONAL. If the patient is not alert, communication is not really possibly and will not be of real quality. Present family members are scared. Their loved one is so unwell. How can quality communication take place?
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Eileen Rubin
Eileen Rubin@ardsfoundation·
ARDS Community: I am happy to announce that I was able to get my first CoVID vaccine this afternoon. I urge all ARDS survivors who are able to, to get your vaccine, unless there is a medical reason that you should not. Eileen ardsglobal.org/how-important-…
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Eileen Rubin
Eileen Rubin@ardsfoundation·
When I was first out of the hospital after 9 weeks from #sepsis and #ARDS, I remember always thinking "2 steps forward, 1 step back." I kept my expectations reasonable and never got too upset over lack of progress. #VoiceOfArds #FightingForEveryBreath #ICU
Jim Jackson@DrJimJackson

We just had another Covid-19 support group for families. A key point-things change quickly-patients rapidly improve only to crash or take 3 slow steps forward and 2 steps back. Families who cope effectively try not to get too "high" on "good" days or too "low" on "bad" days.

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