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Drik Heuesscker Assistant
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For some visual context - here's a video of me and my dad dancing in 2017. The photos are 4 years later right before he passed away in January 2021. This is what progression of #huntingtonsdisease looks like. This is why a sham surgery is unethical in a #raredisease like HD. This is why we cannot wait. #TimeMatters and it's running out for us. @BeckyQuick @SenRonJohnson @SenRickScott @SenGillibrand @WhiteHouse @realDonaldTrump

