AnnSomm
53K posts
AnnSomm
@beez13150
Always fighting for human and animal rights. #Resistance ME/CFS since 2010
Minnesota, USA Katılım Eylül 2014
3.8K Takip Edilen2.8K Takipçiler
Do me a favor, please:
WAVE HI if you see this. 👋
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AnnSomm retweetledi
🥁 Today is #MEAwarenessDay. Advocacy often struggles to make an impact outside the patient community. Please share this short video about #MyalgicEncephalomyelitis, aka #MECFS, with your followers. Ty for your support. 🤝 youtu.be/X6f4zCe2ZtA?si…
YouTube
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Would you support Pete Buttigieg’s run for president?
(A: Yes
(B: No
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AnnSomm retweetledi
BREAKING: There has never been a better time to retweet this video of six brave lawmakers reminding the men and women in our military to REFUSE UNLAWFUL ORDERS from Trump.
Let’s make this go viral again.
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AnnSomm retweetledi
TWEEPS: At 5pm today, trump moved to end mail-in voting while continuing to use it himself. That’s not election integrity, that’s blatant voter suppression.
I need 1,000 fast RTs and replies using #TrumpVotedByMail.
Please and thank you! 🙏💪
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AnnSomm retweetledi
No links. No news. No difficult content. Just rescued dogs, safe and playing.
And still, almost no reach.
So we have to ask if this platform still works for the dogs.
If you’re seeing this, please like or share it so others do too.
Dog Desk Animal Action@DogDeskAction
From streets and shelters to the dogs’ playground. Running, rolling, chasing, barking, living. Sometimes the smallest piece of land can mean the biggest change in a dog’s life.
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AnnSomm retweetledi
🚨NEW: Bruce Springsteen has announced he will perform at the No Kings protest in Minneapolis this weekend.
RETWEET if you proud to stand with @Springsteen!
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“By consciously going from tunnel #vision to #panoramic vision, you activate your #parasympathetic nervous system — the system in your body designed for #calm and #relaxation and tell your brain and body that “Everything is OK”.”: buff.ly/jq4ZlVB from @dlhampton
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@Moonplanter_ Someone once recommended to me *talking* to an illness with your internal voice, and asking it to leave. It sounded absolutely bonkers at the time, until it seemed to work, twice.
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When I read how someone’s improved it’s usually by starting a med, such as POTS meds, which allowed them to recover. But I’m already on all that & still worsening, which is upsetting. Makes me feel I’m one of the unlucky ones who won’t improve #mecfs #dysautonomia #longcovid
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AnnSomm retweetledi
Is there any organization or individual in Stefan’s area in Mexico who could help him once a week to keep his home clean? His father is his only caregiver and cannot manage alone. Please share so this can reach someone who may be able to help. 🙏🏻
Stefan Arce ME/CFS@stefan_arce
My father is my only caregiver, and I have very severe ME/CFS. He only has about 1 hour in the morning and 1 hour at night to care for me. The rest of the day I am mostly alone. I am so severe that sometimes I cannot even reach my earplugs with my own arm when I need them. I also have very distressing neurological and neuropsychiatric symptoms — severe OCD, involuntary noises, and other symptoms that are extremely difficult to live with. I also cannot tolerate most medications that are often suggested (SSRIs, LDA, etc.) because of side effects. We also cannot afford a caregiver, and we have no nearby family, neighbors, church, or community support. It is essentially just my father and me. Because of severe PTSD, I cannot tolerate strangers in the caregiving role. My mother can sometimes help in emergencies, but she does not understand my autistic communication style combined with ME/CFS, so it is not a sustainable solution. Hospital care is also not a realistic option where I live (Mexico). Public hospitals are extremely difficult environments for someone with very severe ME/CFS, and I do not want to spend my life sedated in a hospital. I still want to be myself and live at home. My father is exhausted and close to burnout. I love him deeply, and there are real emotions involved here — not just logistics. I am trying to figure out how to reduce the burden on him without harming my own health. For those in the ME/CFS community: • How do you structure care when a caregiver has very limited time? • What routines or systems helped reduce caregiver strain? • How do you balance not overwhelming your caregiver while still meeting basic needs? • Any tools, pacing strategies, or practical ideas that helped? I would deeply appreciate advice from people who have faced something similar. #caregiver #severeme #awaraness #imss @SSalud_mx
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I work 1-2 hours a day from bed. 11 months ago I lost the ability to stand, not from ME but from Long Covid microvascular damage. I got ME in 2003, LC in 2024.
I use a wheelchair around my home, but wheelchair time is limited and dangerous. Today I reached for a book on a shelf and triggered a 4 hour microvascular crisis.
I can make a cup of tea most days, but not cook.
I am on oxygen a few hours a day.
Apart from work, I do very little! Or rather, a quite lot - as resting, breathing, meditation with this level of illness is something like elite sport.
I reply to messages from dear friends - except the very closest ones - with a delay of weeks or months.
There are medical appointments on Zoom.
Occasionally, I wheel out onto my rooftop. Twice in the last month.
Once a week I taste fine wine without swallowing it.
Once a week I listen to classical music with full concentration.
Twice a week I make myself half a cup of decaf pour-over coffee.
It’s like being a very busy CEO who is permitted to work 10% of the time from bed, while being physically tortured in a dungeon the rest of the time.
Rename MECFS@renamemecfs
For those of us who are housebound/bedbound, how do spend your days?
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@Thebestfigen Who puts a puppy in 2 boxes? The poor thing was probably terrified 😨
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@NimraShahzadin Black dogs are the best!! I love my Black rescue dog and kitty 😺 ❤
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0 likes 0 followers people's hate me because I'm black 😭😭
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AnnSomm retweetledi
Can you stay here for 10 seconds? If you share this, it will help with my physical therapy; I want to walk again.
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AnnSomm retweetledi
A Retweet and a Like take 2 seconds, but they could get these pups their next meal. 🐾 Please don’t scroll past—stay for 10, drop some random words, and help us boost this! Let's get them those treats! 🦴 #DogLovers #RescueDogs
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AnnSomm retweetledi
🚨NEW: James Talarico has won the Democratic primary for the U.S. Senate race in Texas.
RETWEET if you support @JamesTalarico and donate below to help him flip Texas Blue!
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For the life of me I can’t understand the logic of Democrats siding with Iran. Just boggles the mind.
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